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Resource Guide for Using the Internet for Pediatric Advocacy

This internet guide has been produced to assist you in accessing valuable information from a variety of governmental and private sector sources that will allow you to utilize the information super highway in your advocacy efforts. The resource book will help you identify information on the Academy’s position on a variety of public policy issues, allow you to e-mail federal and state representatives, will provide you with the text of federal legislation and regulations, present you with media contacts, inform you on how to join list-serves, newsgroups, etc. The material will also give you access to health journals/statistics and other data from reliable governmental sources that you can use in federal, state and local advocacy efforts.

We hope you find this Guide useful and would appreciate your feedback and suggestions for ways to improve communicating this information. If you happen to come across interesting sites or discussion groups during your internet activities, it would be greatly appreciated if you would e-mail them or mail them to the address below, so they may be incorporated in future issues of this guide and shared with others.

Thank you and happy surfing!

Mary McGowan
American Academy of Pediatrics
Washington Office
601 13th Street, NW, Suite 400 North
Washington, DC 20005
800/336-5475
www.aap.org

Disclaimer note: This Guide is a sampling of selected advocacy, medical, media, and other sites of interest. There are numerous sites which may be additional assistance to you in your efforts. Due to the nature of the on-going changes to the internet, some of these sites may in fact change or cease to exist in the future.


INTERNET RESOURCE GUIDE

INDEX

Overview of Internet Services

AAP Web Site

Federal Advocacy Sites

State Advocacy Sites

Medical Resources for Pediatrics

Organizational Resources

Sites by Issue

Newsgroups of Interest to Pediatricians

Useful Pediatric Mailing Lists

Media --Newspapers/TV Networks/News & Info/Radio

Internet Tips and Tools

URL Minder

Bookmarks

Internet Etiquette - Netiquette

Fun and Interesting Web Sites

Glossary of Terms


OVERVIEW

The Internet is a system of computers around the world that are able to communicate with each other. It provides access to vast amounts of information via electronic mail (e-mail), newsgroups (Usenet), mailing lists, and the World Wide Web (WWW). Given the vast amount of information that is available from the Internet, it is clear that it is a great source of information for child advocacy. It is the purpose of this resource book to provide a general overview of Internet services and tips, and also to provide specific helpful information relating to pediatrics and child advocacy.

A great place to start is at http://www.learnthenet.com. This site has everything you want to know about how to use the internet -- Internet 101 at its finest. Also includes information on etiquette, making connections, using e-mail, parents guide for kids online, etc., etc.

Pediatricians need to know almost nothing on how computers work or where they came from to navigate the web -- today’s graphical applications encourage the computer illiterate to connect and play.

On a cautionary note, when using the Internet, keep in mind that the information obtained from it is not always accurate and that the information might come with viruses that can damage your computer. Although the Internet provides access to a plethora of information, it is not always accurate. Therefore, when using the Internet to obtain critical information, make sure to double-check the accuracy of the information with another source. In addition, because the Internet provides connection to a multitude of other computers, it is pretty easy to catch a virus while using the Internet. You can protect your computer by backing up your system frequently -- specifically before surfing the Internet. In addition, use virus protection and checking programs that will check for most viruses in material that you may download onto your computer. Note that e-mail messages themselves cannot directly infect your computer - but files that must be downloaded (like .ftp files) can infect your computer and should be scanned for viruses.

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ELECTRONIC MAIL (E-MAIL)

Electronic mail provides a fast and convenient way to communicate. To reach somebody by e-mail, all you need is their address and access to an e-mail account. There are many different servers available for e-mail (America OnLine, CompuServe, Prodigy) and each have their own address systems. The basic principle is the same for each server, and once you learn how to use e-mail on one system it is easy to apply the basic principles to another system. It is helpful to know that e-mail addresses are not case sensitive and can be typed in capital letters or lower case.

Through utilization of electronic mailing lists, pediatricians have developed news, chat and list group discussions. This creates the perfect environment to consult colleagues on clinical issues and send correspondence for peer review.

One of the biggest problems with using e-mail is finding a person’s address. Often, when web sites have related e-mail, the address will be provided on the web page (or with the web site address). In addition, there are some e-mail directory services, and all can be accessed via the Internet. Internet search engines also provide e-mail addresses which can be obtained by searching for the person or organization you are trying to locate. If the address you end up with is incorrect, the message will bounce back to you (in minutes or days depending on the system). It is helpful to know that the last three letters (zones) of e-mail addresses (and web sites) usually indicate the type of organization: com for commercial organizations, edu for educational institutions, gov for U.S. government department, mil for military sites, org usually for non-profit organizations.

E-MAIL ADDRESS DIRECTORIES

DIRECTORY NAME

DESCRIPTION

ADDRESS

Four11

Internet white and yellow page service that can be used to look for someone’s phone number, address, e-mail address or home page.

http://www.Four11.com

Infospace

Searches names/address/e-mails. Also has a special feature that searches businesses located within a few miles of a location. Great for seeking restaurants for example that are close to a business address.

http://www.infospace.com

Switchboard

Started out as a telephone directory and now has e-mail addresses and web sites.

http://www.switchboard.com

WhoWhere

Another good e-mail address directory.

http://www.whowhere.com

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THE WORLD WIDE WEB

The World Wide Web provides many opportunities including, but not limited to, reading journals without paying subscriptions, receiving items the same day they are published, participating in online education for CME credits, entering sites of departments of pediatrics/professional organizations/pediatric practices/children’s hospitals/medical and surgical subspecialties and accessing pediatric software of interest. Pediatricians also can follow issue specific information and advocate on line by corresponding with their legislators and others.

The World Wide Web (www) is a system that uses the Internet to link information on different computers around the world. To use the Web, you need only an Internet connection and a Web browser. Once inside the Web, the so-called, ‘hypertext’ allows the user to click on highlighted text to obtain access to another Web site. Hypertext is usually a different color than the remainder of the text, and it changes color once it has been accessed.

Web site addresses are known as Uniform Resource Locators (URL). These provide a standardized system for naming network resources and for linking pages together. They usually consist of three parts, including document access type (http:// for hypertext), host computer (www for World Wide Web), and the path to the information (often the organization initials followed by .com). Be sure to enter the URL exactly as written as they tend to be case sensitive (unlike e-mail addresses). To access a Web site, the URL can be typed directly or selected from a list of ‘bookmarked’ URLs. Bookmarking is available with most Web browsers and allows you to save any URL at any time while using the Web.

It is important to note that Web sites and URLs do change (as with any addresses). Fortunately, there is a free service that notifies the user whenever a Web site or URL changes. This service is called URL Minder and can be accessed at http://www.netmind.com">http://www.netmind.com/html/url-minder.

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GATEWAYS

A gateway is a computer that connects one network with another when the two are on different protocols. The University of Michigan and the Villanova Center for Information Law and Policy gateways are particularly useful for gaining access to government information.

GATEWAY

DESCRIPTION

URL

FedWorld

A gateway to more than 100 federal bulletin board systems and federal government Internet sites.

http://www.fedworld.gov

Information for Maryland

Offers extensive access to federal government information.

http://www.inform.umd.edu

LC MARVEL

A Gopher operated by the Library of Congress. Has extensive access to information that is searched using a program called Jughead.

http://gopher marvel.loc.gov

University of Michigan

Excellent source of federal government information. Offers services such as free files from the Commerce Department’s Economic Bulletin Board, Congressional e-mail addresses, and Census Bureau publications.

http://www.lib.umich.edu

Villanova Center for Information Law and Policy

Provides access to the Federal Web Locator and the Federal Court Locator, which are great starting points for any search, especially for federal court information.

http://www.law.vill.edu

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SEARCH ENGINES

A Search Engine consists of software used to search the World Wide Web and other information systems. Search engines are databases that store web pages. They index information so that when a user enters a search term the information can be retrieved quickly from the engine’s database.

Subject indexes are similar to search engines as they sift through a database holding of internet URLs (addresses). However, subject indexes categorize sites into topical areas, which can be browsed as one would browse through a magazine. Subject indexes generally have fewer holding and less searching capability than a search engine, but they are excellent starting places when you are looking for information which can be categorized into a general topic. Yahoo and Magellan are the most popular.

There are many, many search engines and all operate and search by varying relevant information. Search engines should be chosen depending on the features you need in a search engine at a particular time. No two search engine operate identically.

"Meta Engines" are designed to search more than one engine at a time. This can be very useful for wide searches on a particular topic, but a drawback can be that the meta-engines often will not allow you to use all the search capabilities that would be available if the individual engine was being used. Also, because a number of search tools are being consulted at one time, the search is often slower.

Good meta-engines are:

Dogpile

http://www.dogpile.com

will display how many search engines found the number of your topic

Profusion

http://profusion.ittc.ukans.edu

Same thing but can select which ones you want to search and gets rid of duplications.

Savvy Search

http://guaraldi.cs.colostate.edu:2000/form

Unique in providing language versions of its search pages

MetaCrawlwer

http://www.lib.ua.edu/mcrawler.htm

Anything and everything you want to know about search engines is located at http://www.searchenginewatch.com. One of the pages on Search Engine Watch has a very handy features comparison chart. Fabulous resource site for every search engine on the web.

Other very exhaustive list of search engines can be found at Cyberstack Needle: http://home.revealed.net/albee/ and at Beaucoup http://www.beaucoup.com

One of the more interesting activities, is to see who is linked to the Academy’s web site. You can see this by going to one of the search engines (except Yahoo) and in the search box type

Link: http://www.aap.org The search engine will identify who the company/person is with a brief description and offer you the opportunity to visit their site. Many of the child health advocacy organizations are in fact linked to the Academy’s site.

Each search engine has its own search syntax for forming Boolean searches. Search engines all have "Help" or "Tips" pages and they offer important and time saving information about how to use individual sites. One of the best help pages in AltaVista.

Listed below are general methods for using search engines 

  1. Pick a search engine and go to its Web site.
  2. Click on the "Help" or "Tips" button to view how that particular search engine functions.
  3. In the text area of the search engine’s page, type in a few words that describe the information that you’re looking for. There is a specific universal syntax which helps to optimize search requests. The use of AND and OR (boolean operators) varies from search engine to search engine, and their specific use for each engine is specified in the table below.
  4. Indicate your search words in lower case as this will match any case. Only capitalize words if you are sure they will be stored that way.
  5. Put double quotation marks (" ") around words that you want to be next to each other and in the specified order.
  6. Put a plus sign (+) in front of any word that must appear in the document.
  7. Put a minus sign (-) in front of any word that must not appear.
  8. Make sure to put the plus or minus sign directly next to the word.
  9. Hit the return key or click on the search button.
  10. The search engine will provide a list of matching items. These items will be provided in different orders by different search engines. Don’t assume that the first items are the best !
  11. Click on items that seem to match your needs. Once you have explored a topic, you can return to the original search result by using the Back button.

Some useful search engines

On the following page is a list of search engines. There are many search engines not specified in this table. For further reference, the University of Michigan provides a list of search engines which can be found at http://www.lib.umich.edu/hw/public.health/engines.html.

A government search engine is available through My Virtual Reference Desk at http://www.refdesk.com/govsrch.html.

Category-Based Engines - Use categories to perform searches. With a database of registered sites, these search engines search first for matching categories and then by matching text within the sites. Examples are Yahoo!, Infoseek, and Webcrawler.

Concept-Based Engines - Attempt to intelligently relate words of the search request in order to find sites related to your search, but that would not otherwise be found using the designated search words. For example, these engines would search for ‘pediatrics’ if you entered ‘child health care’. Example is Excite.

NAME

DESCRIPTION

BOOLEAN OPERATORS

URL

Altavista

Searches the entire Web and Usenet listings, rather than just searching registered web sites. Results in longer lists of search results, but more likely to identify material. Foreign language searching

AND; OR; NEAR; NOT

http://altavista.digital.com

Excite

Easy to use. Concept-based search engine. Give option to search entire Web or specified subgroups. Weak in news area.

AND; OR ;AND NOT

http://www.excite.com

HotBot

Very good news searching data-base. Also has graphical inter-face. Great for searching for photos of people as well.

http://www.hotbot.com

Infoseek

Has a smaller database than other indices, but performs searches more quickly. Provides limited free access, and otherwise, requires payment.

Does not apply

http://www.infoseek.com

Lycos

Indexed directory of Web pages that can be searched by keyword. Good for sound, graphics searches.

AND; OR

http://www.lycos.com

Metacrawler

Simultaneously checks multiple search engines.

Does not apply

http://www.metacrawler.com

Webcrawler

Indexed directory of Web pages that can be searched by keyword. Owned by AOL but does not require an AOL account.

AND; OR; NOT; NEAR

http://www.webcrawler.com

Northern Light

EXCELLENT - newer search engine. Has a special collection of over 2,900 journals, books, magazines, data-bases not available on other search engines. Search folders provided. Extremely accurate, great academic resources.

http://www.northernlight.com

Yahoo!

Indexed directory of Web pages. One of the best places to begin any search. To search, you can click through categories from the Yahoo homepage or search for categories by keyword. These methods search for keywords, not for Web page names.

AND; OR

http://www.yahoo.com

 

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FEDERAL ADVOCACY SITES

The following Web sites might be helpful:

List of Government Acronyms http://www.colorodo.edu/libraries/govpubs/alphabet/alpha.htm

The Government Contractors Glossary http://www.kcilink.com/govcon/contractor/gcterms.html

RESOURCE

DESCRIPTION

URL

Administration for Children & Families

Access to information on welfare reform and policy, as well as issues impacting child and family well-being.

http://www.acf.dhhs.gov

AFSCME

Access to information on promoting electoral change, health and safety issues, and collective bargaining agreements.

http://www.afscme.org

Agency for Health Care Policy and Research (AHCPR)

Contains Guidelines and Medical Incomes, Health Care Data and Methods, and Consumer Versions of Clinical Practice Guidelines by Conditions.

http://www.ahcpr.gov/clinic

CA Nurses Association

Access to the Patient Watch page on managed care.

http://www.igc.apc.org/cna

Congress.org

Access to members of the Senate and House of Representatives, addresses, phone and fax numbers, and e-mail addresses. It also lists Committee assignments of members. All of this info can be found on AAP Members only site.

http://www.congress.org

Census Bureau

Good site for statistical information

http://www.census.gov

Centers for Disease Control (CDC)

Access to health statistics and other information from the CDC.

http://www.cdc.gov

CNN Interactive

Access to current events in the House and Senate.

http://www.cnn.com/alt_index.html

C-Span

Access to House and Senate floor, as if you were watching C-Span on TV.

http://www.c-span.org

Congressional Record

Access to free documents from the Government Printing Office.

http://www.access.gpo.gov

Congressional Quarterly

Access to news and information on government and politics.

http://www.cq.com

Congressional Quarterly Vote Watch

http://pathfinder.com/@@oAORagcAjqIA3VCs/CQ

Department of Agriculture (USDA)

Access to information about USDA.

http://www.usda.gov

Tom Delay

Communications Center Office of the Majority Whip - US House of Representatives 1997 Congressional Web Site of the year!

Great web site updated daily. The whipping post provides daily info about what’s on the floor . Whip ticker carries latest info from House Chamber. News releases and statements available.

http://www.majoritywhip.house.gov

Department of Health and Human Services (DHHS)

Access to health-related material, including, mortality & morbidity statistics.

http://www.os.dhhs.gov

EBRI

Access to Issue Briefs, Notes, Washington Bulletins, and other publications before the printed issues are mailed.

http://www.ebri.org

Environmental Protection Agency (EPA)

Access to information about the EPA.

http://www.epa.gov

Federal Election Commission

Access to information about the Federal Election Commission.

http://www.fec.gov

Federal Trade Commission (FTC)

Access to information about antitrust and consumer protection laws.

http://www.ftc.gov

Federal Web Locator

Produced by Villanova University Center for Info Law and Policy --many, many links to federal government resources.

http://www.law.vill.edu/fed-agency/fedwebloc.html

FedWorld

Comprehensive site that links federal government home pages.

http://www.fedworld.gov

Food & Drug Administration (FDA)

Access to information from the FDA..

http://www.fda.gov

Gallup Organization

World’s leading source for public opinion data since 1935. Gallup polls, public releases and special reports, archives, to the editor and more.

http://www.gallup.com

Government Printing Office

Provides links to many GPA databases, including Congressional Record, Federal Register, and reports from the General Accounting Office.

http://thorplus.lib.purdue.edu/gpo 

Health Finder

Federal Government introduced a web site which services as an entry point for hundreds of other health information sites for non-profit groups. Offers information and many links re: child health issues

http://www.healthfinder.gov

Jefferson Project

A catalog of political sites on the Web.

http://www.voxpop.org/jefferson

Health Care Financing Administration (HCFA)

Access to financing information and statistics, especially for Medicare and Medicaid.

http://www.hcfa.gov

Health Resources & Services Administration (HRSA)

Access to information about clinical preventive services.

http://www.hrsa.dhhs.gov

House Democratic Caucus

Offers current news, info on keeping teens tobacco free, affordable quality health care, this week in congress, all House committee pages, other links.

http://dcaucusweb.house.gov

House Democratic Leadership

Site offers info about the leadership, updates on legislation, statements and speeches, links to other democratic sites, the Whip wind-up.

http//www.house.gov/democrats

Indian Health Service (IHS)

Access to information about the Indian Health Service and their services.

http://www.tuscon.ihs.gov

InterAction

Web site of the American Council for Voluntary International Action. Provides access to information from the 150 non-profit organization coalition members.

http://www.interaction.org

Legi-Slate

Access to Congressional and regulatory information, updates on bills, and news events on Capitol Hill.

http://www.legislate.com

Library of Congress

Comprehensive information on the US Government, including access to the "Thomas" search engine. Thomas offers a variety of legislative information(e.g. bill text, congressional record, etc.).

http://lcweb.loc.gov

Louisiana State Univ. Libraries

Extensive listing of executive branch, executive agencies, judicial branch, legislative branch, independent establishments and government corporations, boards/commissions/committees and quasi-official agencies.

http://www.lib.lsu.edu/gov/fedgov.html

National Archives and Records Administration

NARA is the government agency responsible for overseeing the management of records from the federal government. U.S. Congress records are maintained by the Center for Legislative Archives within NARA. Has kept records for more than 200 years.

http://www.nara.gov

Center for Legislative Archives

http://www.nara.gov/nara/legislative

National Institutes of Health (NIH)

Access to a wide variety of information about NIH. 

http://www.nih.gov

NIH National Cancer Institute (NCI)

Access to cancer information and statistics. 

http://www.nci.nih.gov

Office of Disease Prevention and Health Promotion

Access to publications, including Healthy People 2000 and Guide to Clinical Preventive Services. 

http://www.odphp.osophs.dhhs.gov

Office of Minority Health Resource Center

Access to information about minority populations. 

http://www.omhrc.gov

Policy.com

Access to extensive public policy information.

http://www.policy.com

Policy Newsstand

http://www.policy.com/news/pcinnews.html

Political Site of the Day

Votes on political site of the day and posts on web. Has democratic calendar, connection to GPO, the Hill (newspaper) and library.

http://www.penncen.com/psotd

Politics Now

Access to information on current events in politics and biographical information for Congress members and Governors.

http://www.politicsnow.com

President’s Council on Physical Fitness and Sports

Access to information about promoting physical activity and fitness.

http://www.dhhs.gov/progorg/ophs/pcpfs.htm

The Progressive Directory

Directory of advocacy resources available online. Links activists around the world.

http://www.igc.apc.org

Republican Liberty Caucus

RLC is fastest growing libertarian political organization. They help elect libertarian-leaning Republicans to public offices.

http://www.rlc.org/index.html

Republican National Committee’s GOP Main Street

Cute home page set up like a small town. Has newsstand, links, GOP info, cafe, tools, etc.

http://www.rnc.org 

Senate Democratic Policy Committee

Provides info on legislative activities, Senate history, committee information, other resources

http://www.senate.gov/dpc

Senate Republican Conference

Official site of the SRC by Sen. Connie Mack (FL) and Sen. Paul Coverdell (GA0. Provides Senate info

http://www.senate.gov/src

Speaker News - Speaker Newt Gingrich news site

Sign up for periodic updates on speakers appearances and statements and other related information.

http://speakernews.house.gov

 Roll Call

Access to Roll Call, the official Capitol Hill newspaper.

http://www.rollcall.com

Thomas Site

(Library of Congress)

This site is packed with legislative resources: text of bills and major legislation congressional committee reports - even historical documents.

http:// thomas.loc.gov

Access to major legislation via Thomas.

http://thomas.loc.gov/bss/d105/hot-subj.html

Town Hall 

Rich, diverse political site with links to a wide range of conservative thought.

http://www.townhall.com

UniPress W3’s WII T. Bill

Database produced by House Information Resources, a division of the office of the Chief Administrative Officer of the House contains full text of all bills and resolutions in the House

http://www.unipress.com

US House of Representatives

The House of Representatives’ World Wide Web server contains detailed House of Representatives information, including e-mail addresses and Web sites.

http://www.house.gov

Contact information for the House

http://www.house.gov/Whoswho.html

Write your representative

http://www.house.gov/writerep

US Senate

The Senate’s World Wide Web server contains detailed Senate information, including e-mail addresses and Web sites for each Senate member.

http://www.senate.gov

Senate Committee Information (includes links to jurisdiction)

http://www.senate.gov/committee/committee.html

University of Michigan

Index of government health information.

http://www.lib.umich.edu/hw/public.health/gov.info.html

Villanova Federal Web Locator

Provides access to federal government information.

http://www.law.vill.edu/Fed-Agency/fedwebloc.html

Villanova Court Locator

Provides access to the federal court system.

http://www.law.vill.edu/Fed-Ct/fedcourt.html

Votelink

Highlights current topics and newsmakers. Follows politics, teen votes, business, and other topics.

http://www.votelink.com

Voters Tele-communications Watch

Monitors federal legislation that affects

telecommunications and civil liberties.

http://www.vtw.org

On the Road to the White House

Site full of links to presidential candidates and other government and political sites, as well as a virtual voting booth.

http://WWW.IPT.com:80/vote 

White House

Official home page of the White House: Access press releases, briefings, and speeches.

http://www.whitehouse.gov

List of online health-related resources from the U.S. Government

http://www.whitehouse.gov/WH/pointers/html/health/html

White House Virtual Library

http://library.whitehouse.gov

YouthInfo

Developed by Dept. of Health & Human Services - latest info about America’s adolescents -- statistical profile of teenagers, latest reports & publications on adolescents, speeches by federal officials on youth topics, links to other related sites.

http://youth.os.dhhs.gov

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