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Network News Excerpts


(EXCERPTS TAKEN FROM THE SUMMER 1998
EDITION OF THE NETWORK NEWS)

From the Director
By Mort Wasserman, MD, MPH

The Origin of PROS Projects or, Whose Network Is This, Anyway?

In what sense does PROS belong to PROS practitioners? I've been pondering this question recently in light of the three PROS projects that are in, or about to begin, data collection.

The Polio Immunization Delivery Study (PIDS), a collaboration between PROS, the CDC, and the Pediatric Section of the National Medical Association, examines the extent to which a major immunization policy change (the sequential IPV/OPV schedule, with its additional injections of young infants) could result in an unintended consequence - lower immunization or health supervision rates. This is an important question for pediatric practitioners, and one that many policy makers want answered. Quite frankly, however, this research question did not come to PROS from PROS practitioners, but from officials with the National Immunization Program.

The Helping Improve Pediatric Practice Outcomes (HIPPO) asthma study is an attempt to evaluate whether pediatric practitioners in geographically dispersed and structurally diverse practices can work together (if at a distance) with quality improvement consultants to better the care of patients in their offices - in this case, patients with chronic asthma. This is an important practical question, as many experts feel that the largest gap in health care is no longer between what we know and don't know about the care of patients, but between what we know and what we do. Although practitioners who deliver care in institutional settings often have quality improvement programs to help them, most practitioners don't practice in such settings, and care improvement efforts in scattered community practices have rarely been undertaken, much less evaluated. This is an important area for pediatricians, but in all honesty, this research question didn't originate with PROS practitioners, but rather from the PROS leadership in consultation with the Packard Foundation and pediatricians at the forefront of pediatric quality improvement.

So, whose network is this, anyway? Doesn't PROS conduct research based on ideas from its own members? The answer is a re-sounding, "Yes!" The Secondary Sexual Characteristics Study and the recently completed Febrile Infant Study certainly arose from the PROS membership. And this fall PROS will begin the Life Around Newborn Discharge (LAND) study, which has recently been funded by Health Resources and Services Administration the Maternal and Child Health Bureau. The LAND study arose with a group of PROS practitioners who were outraged, several years ago, over insurance companies' attempts to force the discharge of newborns and mothers from hospital in less than 24 hours. The study idea, which began with a focus on length-of-stay, evolved with practitioner input to examine newborn discharge decision-making, its relation to other newborn support services, and their combined effect on outcomes in the newborn period. The LAND study represents an idea that "bubbled up" from the trenches and will now be executed by PROS.

And so, my answer to the question "Whose network is this, anyway?" is - "PROS practitioners." Not all ideas originate from PROS practitioners, but practitioners (via their Chapter Coordinators, PROS-Net, network surveys, etc.) put their stamp on each project. And on a regular basis, PROS conducts projects based on ideas that originate from PROS practitioners. PROS belongs to you.


From The Steering Committee Chair
By Gordon Glade, MD

In May I was able to attend the annual meeting of the Pediatric Academic Societies (PAS). I now know that these societies include the Ambulatory Pediatric Association (APA), the Society for Pediatric Research (SPR) and the American Pediatric Society (APS). Myriad other abbreviations made reading the meeting program daunting, but once I got past the program registration and into the meetings, I was enlightened and remain enthusiastic about what I observed.

Thousands of pediatric practitioners were exchanging information learned from thousands of research projects. I sensed an energy and curiosity that was unfamiliar to me at such a big meeting. As a practitioner I had to wonder "So what?" as I looked at posters on obscure metabolic mediators in mice. I also wondered at just what creates this hunger for data--true thirst for knowledge, grant money, tenure? As a practicing pediatrician not burdened by the "publish or perish" cloud, I loved gleaning as much information as possible. I couldn't move fast enough to hear and see and process research that could improve the way I practice pediatrics.

PROS was a recognized player at this meeting with about a dozen presentations in various forums. There is an APA Special Interest Group (SIG) devoted to practice-based research networks which recognizes the important part that PROS plays in PBRNs. As I visited with pediatricians from all over, I was pleased to learn that everyone knows about PROS and recognizes the important role PROS has in answering certain questions about the health and health care of children.

Thanks to PROS I was able to present an abstract about the use of the phone in our PROS referral study. What really excited me was the feedback that people gave about how important they believe this and other PROS studies are. I was proud.

As PROS becomes better known, more people are looking to PROS to do studies. Some recognize the value of the list of PROS practitioners and want to use that list to do studies of their own. At least three have approached PROS just in the past few months for a list of PROS practices that they might contact to do a study. As chairman of the steering committee I would like to ask you your opinion as to what to do.

About seven years ago, a colleague approached the PROS steering committee to ask if the APA could use the PROS membership directory to recruit new members for the APA. I strongly objected, feeling that we did not have the right to give out that information without the practitioners' permission. I am personally enthusiastic about the APA now, but realize that that enthusiasm was achieved through a personal experience, not a mass mailing. Again I wonder what you would like PROS to do.

At the end of this newsletter there is a section called PROS Practitioner Feedback where you can return comments about who should have access to our PROS membership directory. Please fill it out. If it is more convenient, respond through PROS-NET or directly to myself at glgglade@ihc.com or to Mort at rwasserm@zoo.uvm.edu.

 
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Core support for the PROS network is provided by a grant from the Health Resources and Services Administration Maternal and Child Health Bureau

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