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| PARENT
AND CHILD REPORTS OF ASTHMA SYMPTOMS, ACTIVITY LIMITATIONS AND EMOTIONAL
DISTRESS: EARLY RESULTS FROM THE CHIRP
Rationale: The capacity of children to report on their own health status is a currently under debate. CHIRP examines children's age-related ability to report quality of life (QOL) on an asthma-specific instrument.
Methods:Children (7-16) and their parents completed a battery of questionnaires, including the Children's Health Survey for Asthma (CHSA). With 100 cases complete, we explore quality of life data from both child and parent report. Parents self-completed the instrument; children received an interviewer-administered version.
Results::
59% of the sample were males; mean child age was 10.6 years (range
= 7-16); 56% of children were Black/African American. Over half
of all parents reported their child's asthma as moderate to severe;
64% characterized the child's asthma as intermittent. Child ratings
of symptoms "at least some of the time" ranged from a
high of 39% (cough) to a low of (17%). Overall, parent ratings of
symptomatology were generally higher than that of child respondents.
Parent and child ratings of activity limitations due to asthma were
fairly similar - nearly 1/3 reported at least some limitations in
strenuous activities. In general, differences in reports of emotional
distress were most pronounced between parents and chlidren. Parents
consistently rated children as more frustrated and upset about asthma
and asthma treatments than did child participants.
Conclusions:
Child and parent reports regarding asthma-related QOL frequently
often differ in key areas, further emphasizing the need to understand
children's ability to act as reporters of their own health status.
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