Note
from the Web Editor: This is simply a listing of articles and
books that caught my attention. I thought they might be of interest
to pediatricians who have an interest in Bioethics. I've tried to
include a short statement about the article if it didn't seem clear
as to content. The arrangement is by general topics. Within the
topics, the arrangement is by author then title. I'm open to suggestions
on articles or books to include. To keep it from getting too long,
occasionally I'll take some of them off. Some of the articles may provide cme credit but t
here is also a separate listing
for CME courses available.
Categories
“A Piece of My Mind” & other similar type articles
Bandman CE. A Medical Humanist Says Good-bye. JAMA 2008;300(2):149-150.
http://jama.ama-assn.org/cgi/content/full/300/2/149?etoc
Challacombe B. A Pair of Memorable Patients. BMJ 2008;336:1173.
http://www.bmj.com/cgi/content/full/336/7654/1173
Ringel SP. Lessons from the Santa Fe Trail. JAMA 2008;299(9):998-999.
http://jama.ama-assn.org/cgi/content/full/299/9/998?etoc
Rosenbaum JT. In Defense of Phobias. JAMA. 2008;299(20):2368.
http://jama.ama-assn.org/cgi/content/full/299/20/2368
Stillman MD. Physicians Behaving Badly. JAMA 2008;300(1):21-22.
http://jama.ama-assn.org/cgi/content/full/300/1/21?etoc
Zink TM. Thank Goodness for My Ass. JAMA 2008;299(16):1879-1880.
http://jama.ama-assn.org/cgi/content/full/299/16/1879
AAP Articles-Pediatrics in Review
Mercurio MR, et al. American Academy of Pediatrics Policy Statements on Bioethics: Summaries and Commentaries: Part 1. Pediatrics in Review. 2008;29:e1-e8.
http://pedsinreview.aappublications.org/cgi/content/full/29/1/e1
Mercurio MR, et al. American Academy of Pediatrics Policy Statements on Bioethics: Summaries and Commentaries: Part 2. Pediatrics in Review. 2008;29:e15-e22.
http://pedsinreview.aappublications.org/cgi/content/extract/29/3/e15
Mercurio MR, et al. American Academy of Pediatrics Policy Statements on Bioethics: Summaries and Commentaries: Part 3. Pediatrics in Review. 2008;29:e28-e34.
http://pedsinreview.aappublications.org/cgi/content/extract/29/5/e28
Abuse & Neglect
Mathews B, Bross DC. Mandated Reporting is Still a Policy with Reason: Empirical Evidence and Philosophical Grounds. Child Abuse and Neglect. 2008;32:511-516. http://www.ncbi.nlm.nih.gov/pubmed/18514830
Access to care
Kaebnick GE. Evidence and Ethics. Hastings Center Report 2008;38(3):2.
http://www.thehastingscenter.org/pdf/publications/hcr_2008_may_jun_editors_note.pdf
Romain PL. Access to Clinical Care Vis Clinical Trials: Is It Ethically Possible? Nature Clinical Practice Rheumatology. 2008;4:166-167.
http://www.nature.com/ncprheum/journal/v4/n4/full/ncprheum0739.html
Advertising/Commercialism
Katsanis SH, Javitt G, Hudson K. A Case Study of Personalized Health. Science. 2008;320(5872):53-54. http://www.sciencemag.org/cgi/content/summary/320/5872/53?sa_campaign=Email/toc/4-April-
2008/10.1126/science.1156604
Autonomy, Beneficence, Paternalism etc.
Hofmann B. Moral principles and medical practice: the role of patient autonomy in the extensive use of radiological services. Journal of Medical Ethics 2008;34:446-449.
http://jme.bmj.com/cgi/content/abstract/34/6/446?etoc
“Patient autonomy intended to reduce paternalism, to legitimise otherwise morally unjustifiable actions (such as exposure to radiation), and to protect patients, can easily be used as a moral means for opposite ends.”
Committees
Cho MK, Tobin SL, Greely HT, McCormick J, Boyce A, Magnus D. Strangers at the benchside: research ethics consultation. Am J Bioeth. 2008;8(3):4-13.
http://www.informaworld.com/smpp/section?content=a794143396&fulltext=713
Communication/Relationships
Howe EG. When, If Ever, Should Careproviders Give Moral Advice? J Clin Ethics. 2008;19(1):3-10. http://www.clinicalethics.com/
Complementary, alternative medicine & unproven methods
Applbaum AI, et al. A Family’s Request for Complementary Medicine after Patient Brain Death. JAMA. 2008;299(18):2188-2193.
http://jama.ama-assn.org/cgi/content/full/299/18/2188?etoc
This has cme connected to it.
http://cmejama-archives.ama-assn.org/cgi/hierarchy/amacme_course;jama299/18/2188
Stokstad E. Stalled Trial for Autism Highlights Dilemma of Alternative Treatment. Science 2008;321(5887):326.
http://www.sciencemag.org/cgi/content/summary/321/5887/326
Confidentiality/HIPAA/Privacy/Medical Records
Alpert S. Privacy Issues in Clinical Genomic Medicine, or Marcus Welby, M.D., Meets the $1000 Genome. Cambridge Quarterly of Healthcare Ethics. 2008;17(4):373-384.
http://journals.cambridge.org/action/displayAbstract?aid=2151396
Ness RB. Influence of the HIPAA Privacy Rule on Health Research. JAMA 2007;298(18):2164-2170.
http://jama.ama-assn.org/cgi/content/abstract/298/18/2164?etoc
Sokol DK. A Crisis of Confidence. BMJ 2008;336:639.
http://www.bmj.com/cgi/content/extract/336/7645/639
Steinbrook R. Personally Controlled Online Health Data — The Next Big Thing in Medical Care? NEJM 2008;358(16):1653-1656.
http://content.nejm.org/cgi/content/short/358/16/1653?query=TOC
Conflict of interests
Cain DM, etsky AS. Everyone’s a Little Bit Biased (Even Physicians) JAMA 2008;299(24):2893-2895.
http://jama.ama-assn.org/cgi/content/full/299/24/2893
Lee K. Has the Hunt for Conflicts of Interest Gone Too Far? No. BMJ 2008;336:477.
http://www.bmj.com/cgi/content/full/336/7642/477
Stossel TP. Has the Hunt for Conflicts of Interest Gone Too Far? Yes. BMJ 2008;336:476.
http://www.bmj.com/cgi/content/full/336/7642/476
Consent (including parental consent & decisions)
Borry P, et al. Minors and informed consent in carrier testing: a survey of European clinical geneticists. Journal of Medical Ethics 2008;34:370-374.
http://jme.bmj.com/cgi/content/abstract/34/5/370?etoc
Frank B, Gupta S, McGlynn DJ. Psychotropic medications and informed consent: a review. Ann Clin Psychiatry. 2008;20(2):87-95. http://www.informaworld.com/smpp/content~content=a793374443~db=all~jumptype=rss
John T, et al. Children’s consent and paediatric research: is it appropriate for healthy children to be the decision-makers in clinical research? Archives of Disease in Childhood 2008;93:379-383.
http://adc.bmj.com/cgi/content/abstract/93/5/379?etoc
Johnsson L, et al. Patients’ refusal to consent to storage and use of samples in Swedish biobanks: cross sectional study. BMJ 2008;337:a345. http://www.bmj.com/cgi/content/abstract/337/jul10_3/a345
O’Connor AM, et al. Coaching to Support Patients in Making Decisions. BMJ 2008;336:228-229.
http://www.bmj.com/cgi/content/full/336/7638/228
Santen SA et al. Chaperones for Rectal and Genital Examinations in the Emergency Department: What Do Patients and Physicians Want? SMJ 2008;101(1):24-28.
http://www.smajournalonline.com/pt/re/smj/currenttoc.htm;jsessionid=HjyVxwDJh0nxQnk0T3WTY2sw
jTyLWNnyY0P251V0Grl1TPHc2zWJ!-1383090724!181195629!8091!-1
(I think you need to be a member to access this)
Sjostrand M, et al. Coercive Treatment and Autonomy in Psychiatry. Bioethics 2008;22(2):113-120.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00610.x
“While coercive actions can be acceptable in order to protect close family and others, medical treatment is not justified for such reasons but should be given only in the interest of patients”
Development/ADD/Autism
Morrow EM, et al. Identifying Autism Loci and Genes by Tracing Shared Ancestry. Science. 2008;321(5886):218-223.
http://www.sciencemag.org/cgi/content/abstract/321/5886/218?sa_campaign=Email/toc/11-July-
2008/10.1126/science.1157657
Offit PA. Vaccines and Autism Revisited—The Hannah Poling Case. NEJM 2008;358(20):2089-2091.
http://content.nejm.org/cgi/content/full/358/20/2089?query=TOC
Disability
Shakespeare T. Disability Rights and Wrongs. Routledge, 2006. ISBN 978-0-415-34719-8.
http://www.amazon.com/Disability-Rights-Wrongs-Shakespeare/dp/041534719X This is reviewed in J Med Ethics 2008;34(3):222.
http://jme.bmj.com/cgi/content/extract/34/3/222
Shaw D. Deaf by Design: Disability and Impartiality. Bioethics. 2008; 22(8):407-413. http://www3.interscience.wiley.com/journal/120121939/abstract?CRETRY=1&SRETRY=0
Drugs/Pharmacology
Bonebrake R, et al. Ethical Challenges of Pregnancy Programs. Cutis. 2008;81(6):494-500.
http://www.cutis.com/asp/archive/article.asp?ArticleID=2203&filetype=abs
Kesselheim AS, Avorn J. Pharmaceutical Promotion to Physicians and First Amendment Rights. NEJM 2008;358(16):1727-1732.
http://content.nejm.org/cgi/content/extract/358/16/1727
Marder L. Every Disabled Child Matters—But Do They All Benefit from Benefits? Arch Dis Child. 2008 93(1):1-2.
http://adc.bmj.com/cgi/content/extract/93/1/1?etoc
Sammons H, Conroy S. How Do We Ensure Safe Prescribing for Children? Arch Dis Child 2008;93(2):98-99.
http://adc.bmj.com/cgi/content/extract/93/2/98?etoc
Turner EH, et al. Selective Publication of Antidepressant Trials and Its Influence on Apparent Efficacy. NEJM 2008;358(3):252-260.
http://content.nejm.org/cgi/content/short/358/3/252
Duty/Virtues/”First Do No Harm”/Truth Telling
Alexander GC. Commentary on “The Case of Mr. A.B.”; Dilemmas for a Reason. Journal of Clinical Ethics. 2008;19(1):70-71.
http://www.clinicalethics.com/
Anderson RJ. White Coat Ceremony: The Healer’s Way. Dallas Medical Journal. 2008;94(5):156-159.
http://www.dallas-cms.org/ss9/dmj.toc/2008toc/may08.toc.html
Benham B. The Ubiquity of Deception and the Ethics of Deceptive Research. Bioethics 2008;22(3):147-156.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00619.x
Bostick NA, et al. Placebo Use in Clinical Practice: Report of the American Medical Association Council on Ethical Judicial Affairs. ? J Clin Ethics. 2008;19(1): 58-61.
http://www.clinicalethics.com/
Goldworth A. Deception and the Principle of Double Effect. Cambridge Quarterly of Healthcare Ethics. 2008;17(4):471-472.
http://journals.cambridge.org/action/displayAbstract?aid=2151504
Helgesson G. Should Physicians Fake Diagnoses to Help Their Patients? J Med Ethics 2008;34(3):133-136.
http://jme.bmj.com/cgi/content/abstract/34/3/133
Hrobjartsson A. Clinical Placebo Interventions Are Unethical, Unnecessary, and Unprofessional. ? J Clin Ethics. 2008;19(1): 66-69.
http://www.clinicalethics.com/
Kahn MW. Etiquette-Based Medicine. NEJM 2008;358(19):1988-1989.
http://content.nejm.org/cgi/content/full/358/19/1988?query=TOC
Lyon TD, Dorado JS. Truth Induction in Young Maltreated Children: The Effects of Oath-Taking and Reassurance on True and False Disclosures.” Child Abuse & Neglect. 2008;32:738-748.
http://www.ncbi.nlm.nih.gov/pubmed/18599119
Mercurio M. A Day To Long. Hastings Center Report. 2008; 38(4): 26-27.
http://www.thehastingscenter.org/hcaccts/include/download.asp?file=hcr_2008_jul_aug_essay.pdf
Miller, F. and T. Kaptchuk. "Deception of Subjects in Neuroscience: An Ethical Analysis." The Journal of Neuroscience 2008 :28(19): 4841-4843.
http://bioethics.nih.gov/departmentpubs/Miller 2008 - Neuroscience.pdf
Miller, F. and T. Kaptchuk. "The power of context: Reconceptualizing the placebo effect."
Journal of the Royal Society of Medicine 2008:
101: 222-225.
http://bioethics.nih.gov/departmentpubs/Miller 2008 - JRSM.pdf
Patel K. Why I Love a Free Lunch. BMJ 2008;336:962.
http://www.bmj.com/cgi/content/full/336/7650/962-a
Peleg R. Is Truth a Supreme Value? J Med Ethics 2008;34:325-326.
http://jme.bmj.com/cgi/content/abstract/34/5/325?etoc
Sherman R, Hickner J. Placebos: Current Clinical Realities. ? J Clin Ethics. 2008;19(1): 62-65.
http://www.clinicalethics.com/
Economics/financing/insurance
Emanuel EJ, Fuchs VR. Who Really Pays for Health Care? The Myth of “Shared Responsibility” JAMA 2008;299(9):1057-1059.
http://jama.ama-assn.org/cgi/content/full/299/9/1057?etoc
http://www.bioethics.nih.gov/publications/emanuel/emanueljama2008.pdf
Menzel PT. A Path to Universal Access. Hastings Center Report. 2008:38(1):34-36.
http://www.thehastingscenter.org/publications/hcr/hcr.asp this is a free download.
Scott C. Belief in a Just World: A Case Study in Public Health Ethics. Hastings Center Report. 2008:38(1):16-19.
http://www.thehastingscenter.org/publications/hcr/hcr.asp this is a free download.
Education & Mentors
Mercurio MR. An analysis of candidate ethical justifications for allowing inexperienced physicians-in-training to perform invasive procedures. J Med Philos. 2008;33(1):44-57.
http://www.ncbi.nlm.nih.gov/pubmed/18420550
Mercurio MR. A Day Too Long: Rethinking Physician Work Hours. Hastings Center Report 2008:38(4):26-27.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Persad, G., l. Elder, et al. "The Current State of Medical School Education in Bioethics, Health Law, and Health Economics." Journal of Law, Medicine and Ethics 2008. 36(1): 89-94.
http://www.bioethics.nih.gov/publications/fellows/persadjlme2008.pdf
Emergency Care/Emergency Rooms/Disasters/Intensive Care
Daly B. An Indecent Proposal: Withholding Cardiopulmonary Resuscitation. Am J Crit Care 2008 17(4): 377-380.
http://ajcc.aacnjournals.org/current.shtml
End-of-Life Care/Dying/Futility
Asscher J. The Moral Distinction Between Killing and Letting Die in Medical Cases. Bioethics 2008;22(5):278-285.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2008.00616.x
Berison DJ. When Treatment Fails: How Medicine Cares for Dying Children. New York, NY, Oxford University Press, 2006. ISBN-13 978-0-1951-5612-6.
http://www.amazon.com/When-Treatment-Fails-Medicine-Children/dp/0195156129
This is reviewed in JAMA in the November 21 issue.
http://jama.ama-assn.org/cgi/content/full/298/19/2313
Berry SR. Just Say Die. J Clin Oncology 2008;26(1):157-159.
http://jco.ascopubs.org/cgi/content/full/26/1/157
Evans J. Beyond Abortion: The Looming Battle over Death in the “Culture Wars”. Bioethics 2008; 22(7):379-387.
http://www3.interscience.wiley.com/journal/120121930/abstract
Ferrand E, et al. Circumstances of Death in Hospitalized Patients and Nurses' Perceptions. Arch Intern Med. 2008;168(8):867-875.
http://archinte.ama-assn.org/cgi/content/abstract/168/8/867?etoc
Feudtner C. Ethics in the Midst of Therapeutic Evolution. Arch Pediatr Adolesc Med. 2008;162(9):854-857.
http://archpedi.ama-assn.org/cgi/content/full/162/9/854?etoc
Goldstein NE, Fischberg D. Update in Palliative Medicine. Annals Internal Medicine. 2008;148(2):135-140.
http://www.annals.org/cgi/content/full/148/2/135
Harrison PJ. Letter: Please, don’t forget ethical responsibilities. BMJ 2008;336:1085.
http://www.bmj.com/cgi/content/full/336/7653/1085
Kon A. Healthcare Providers Must Offer Palliative Treatment to Parents of Neonates With Hypoplastic Left Heart Syndrome. Arch Ped & Adol Med. 2008;162(9):844-848.
http://archpedi.ama-assn.org/cgi/content/full/162/9/844?etoc
Liben S, et al. Paediatric Palliative Care: Challenges and Emerging Ideas.Lancet 2008;371(9615):852-864.
http://www.thelancet.com/journals/lancet/article/PIIS0140673607612033/abstract
Lorenz KA, et al. Evidence for Improving Palliative Care at the End of Life: A Systematic Review. Annals Internal Medicine. 2008;148(2): 147-159.
http://www.annals.org/cgi/content/full/148/2/147
Murray SA, et al. Continuous deep sedation in patients nearing death. BMJ 2008;336:781-782
http://www.bmj.com/cgi/content/extract/336/7648/781
Qaseem A, et al. Evidence-based Interventions to Improve the Palliative Care of Pain, Dyspnea, and Depression at the End of Live: A Clinical Practice Guideline from the American College of Physicians. Annals Internal Medicine. 2008;148(2):141-146. http://www.annals.org/cgi/content/full/148/2/141
Rietjens J, et al. Continuous Deep Sedation for Patients Nearing Death in the Netherlands: Descriptive Study. BMJ 2008;336:810-813.
http://www.bmj.com/cgi/content/abstract/336/7648/810
Sidebotham P, Fleming P. Unexpected Death in Childhood: A Handbook for Practitioners. John Wiley and Sons, Chichester, 2007, ISBN 9780470060964.
http://www.amazon.com/Unexpected-Death-Childhood-Practitioners-
Protection/dp/0470060964/ref=sr_1_1?ie=UTF8&s=books&qid=1220411692&sr=8-1
This is reviewed in Arch Dis Child. 2008;93:813.
http://adc.bmj.com/cgi/content/extract/93/9/813?etoc
Steinbrook R. Disclosure of Industry Payments to Physicians. NEJM 2008;359(6):559-561.
http://content.nejm.org/cgi/content/short/359/6/559?query=TOC
Wernovsky G. The Paradigm Shift Toward Surgical Intervention for Neonates With Hypoplastic Left Heart Syndrome.
Arch Pediatr Adolesc Med. 2008; 162:849-854.
http://archpedi.ama-assn.org/cgi/content/full/162/9/849?etoc
Emergency Care/Disasters
Boyajian-O’Neill, LA, et al. Physician Licensure During Disasters: A National Survey of State Medical Boards. JAMA 2008;299(2):169-171.
http://jama.ama-assn.org/cgi/content/full/299/2/169?etoc
Enhancement/Modifications/Technology
Dees RH. Better Brains, Better Selves? The Ethics of Neuroenhancements. Kennedy Institute of Ethics Journal. 2008. 17(4): 371.
http://muse.jhu.edu/journals/kennedy_institute_of_ethics_journal/toc/ken17.4.html
Edwards SD. The Ashley treatment: a step too far, or not far enough? Journal of Medical Ethics 2008;34:341-343.
http://jme.bmj.com/cgi/content/abstract/34/5/341?etoc
Giordano S. Lives in a chiaroscuro. Should we suspend the puberty of children with gender identity disorder? Journal of Medical Ethics 2008;34:580-584.
http://jme.bmj.com/cgi/content/abstract/34/8/580?etoc
Harris J. Enhancing Evolution: The Ethical Case for Making Better People. Princeton, NJ: Princeton University Press, 2007.
http://www.amazon.com/Enhancing-Evolution-Ethical-Making-Better/dp/0691128448
This is reviewed in Cambridge Quarterly of Healthcare Ethics 2008. 17(4):473-476,
http://journals.cambridge.org/action/displayAbstract?aid=2151516
Schermer M. ENHANCEMENTS, EASY SHORTCUTCommittS, AND THE RICHNESS OF HUMAN ACTIVITIES. Bioethics. 2008; 22(7):355-363.
http://www3.interscience.wiley.com/journal/120121938/abstract
Ethics-general- philosophy, ethical codes, etc
Baines P. Medical Ethics for Children: Applying the Four Principles to Paediatrics. J Med Ethics 2008;34(3): 141-145.
http://jme.bmj.com/cgi/content/abstract/34/3/141
Helgesson G, Eriksson S. Against the principle that the individual shall have priority over science. J Med Ethics. 2008;34:54-56.
http://jme.bmj.com/cgi/content/abstract/34/1/54
Miller RB. Children, Ethics, and Modern Medicine. 2003. Blomington. Indiana University Press. ISBN-13: 978-0253342225.
http://www.amazon.com/Children-Ethics-Modern-Medicine-Medical/dp/0253342228
Professor Miller emailed me about this book.
Prograis L, Pellegrino ED. African American Bioethics: Culture, Race and Identity. Washington, DC, Georgetown University Press, 2007. ISBN 978-1-58901-163-2.
http://www.amazon.com/African-American-Bioethics-Culture-Identity/dp/1589011643/re
f=pd_bbs_sr_1?ie=UTF8&s=books&qid=1200598622&sr=1-1
This is reviewed in NEJM’s January 10th issue.
http://content.nejm.org/cgi/content/full/358/2/206
Steinbock B. The Oxford Handbook of Bioethics. New York, Oxford University Press. 2007. ISBN 978-0-19-927335-5.
http://www.amazon.com/Oxford-Handbook-Bioethics-Handbooks/dp/0199273359
This is reviewed in NEJM 2007;357(20):2094-2095.
http://content.nejm.org/cgi/content/short/357/20/2094?query=TOC
And in JAMA 2007;298(8):927-928.
http://jama.ama-assn.org/cgi/content/full/298/8/927
Euthanasia, Physician Assisted Suicide
Ganzini L, et al. Why Oregon Patients Request Assisted Death: Family Members’ Views. J Gen Intern Med 2008;23(2):154-157.
http://www.springerlink.com/content/y7775n3w41217w31/?p=8fe03d6a9d67490d8548f
6d0dc5dab6d&pi=6
Kodish E. Paediatric Ethics: A Repudiation of the Groningen Protocol. The Lancet. 2008;371: 892-893.
http://www.thelancet.com/journals/lancet/article/PIIS014067360860402X/fulltext
Lindemann H, Verkerk M. Ending the Life of a Newborn: The Groningen Protocol. Hastings Center Report. 2008:38(1):42-51.
http://www.thehastingscenter.org/publications/hcr/hcr.asp this is a free download
McLachlan HV. The ethics of killing and letting die: active and passive euthanasia. Journal of Medical Ethics 2008;34:636-638. http://jme.bmj.com/cgi/content/abstract/34/8/636
Family
Didion J. The Year of Magical Thinking. 2005. Knopf. ISBN-10: 140004314X.
http://www.amazon.com/Year-Magical-Thinking-Joan-Didion/dp/140004314X/ref=ed_oe_h
Look at Medical Humanities 2008;34:35-39 for information on this book.
http://mh.bmj.com/cgi/content/abstract/34/1/35
Farrelly C. The Case for Re-Thinking Incest Laws. Journal of Medical Ethics 2008;34:e11.
http://jme.bmj.com/cgi/content/abstract/34/9/e11
Lindemann H, Nelson JL. The Romance of the Family. Hastings Center Report. 2008;38(4):.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Lindemann H, et al. The Romance of the Family. Hastings Center Report 2008:38(4):19-21.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Futility
Curlin FA, Nwodim C, Vance JL, Chin MH, Lantos JD. To die, to sleep: US physicians' religious and other objections to physician-assisted suicide, terminal sedation, and withdrawal of life support. Am J Hosp Palliat Care. 2008;25(2):112-20.
http://ajh.sagepub.com/cgi/content/short/25/2/112
Genetics/Testing/Enhancements
Ayme S, et al. Patenting and Licensing in Genetic Testing. Eur J Hum Genet 2008. 16: S3-S9.
http://www.nature.com/ejhg/journal/v16/n1s/abs/5201929a.html
Farrell MH, Kuruvilla P. Assessment of Parental Understanding by Pediatric Residents During Counseling After Newborn Genetic Screening. Arch Ped & Adol Med. 2008;162(3):199-204.
http://archpedi.ama-assn.org/cgi/content/abstract/162/3/199
Hausman D. Protecting Groups from Genetic Research. Bioethics 2008;22(3):157-165.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00625.x
Hudson KL, et al. Keeping Pace with the Times—The Genetic Information Nondiscrimination Act of 2008. NEJM 2008;358(25):2661-2663.
http://content.nejm.org/cgi/content/full/358/25/2661?query=TOC
Humter DJ, et al. Letting the Genome out of the Bottle—Will We Get Our Wish? NEJM 2008;358(2):105-107.
http://content.nejm.org/cgi/content/full/358/2/105?query=TOC
Lenzer J, Brownlee S. Direct to Consumer Testing. BMJ 2008;336:858-860. http://www.bmj.com/cgi/content/extract/336/7649/858
Lin BK, AR Fleischman. Screening and Caring for Children with Rare Disorders. Hastings Center Report. 2008;
http://www.thehastingscenter.org/pdf/hcr_2008_may_jun_early_release3.pdf
Malpas PJ. Predictive genetic testing of children for adult-onset diseases and psychological harm. Journal of Medical Ethics 2008;34(4):275-278.
http://jme.bmj.com/cgi/content/abstract/34/4/275
Malpas PJ. Is genetic information relevantly different from other kinds of non-genetic information in the life insurance context? Journal of Medical Ethics 2008;34:548-551.
http://jme.bmj.com/cgi/content/abstract/34/7/548
Savitz DA. How Far Can Prenatal Screening Go in Preventing Birth Defects? J Peds 2008;152(1):3-4.
http://www.jpeds.com/article/PIIS0022347607008578/fulltext
Soini S, et al. Patenting and Licensing in Genetic Testing: Ethical, Legal and Social Issues. Eur J Hum Genet. 2008 16: S10-S50.
http://www.nature.com/ejhg/journal/v16/n1s/full/ejhg200837a.html
Health Policy & Healthcare Systems
Baker CD, et al. Health of the Nation—Coverage for All Americans. NEJM 2008;359(8):777-780.
http://content.nejm.org/cgi/content/full/359/8/777?query=TOC
Brown LD. The Amazing Noncollapsing US Health Care System —Is Reform Finally at Hand? NEJM 2008;358(4):325-327.
http://content.nejm.org/cgi/content/full/358/4/325
Emanuel E, V Fuchs. Healthcare, Guaranteed. PublicAffairs. 2008. ISBN-10: 1586486624.
http://www.amazon.com/Healthcare-Guaranteed-Simple-Solution-
America/dp/1586486624/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1211665563&sr=8-1
This is reviewed:
http://www.ft.com/cms/s/0/8187ad4a-253c-11dd-a14a-000077b07658.html?nclick_check=1
Emanuel EJ. The Cost-Coverage Trade-Off. JAMA 2008;299(8):947-949.
http://jama.ama-assn.org/cgi/content/full/299/8/947?etoc
Emanuel, E. "The Problem with Single-Payer Plans."
Hastings Center Report. 2008.38(1): 38-41.
http://www.bioethics.nih.gov/publications/emanuel/emanuelhcr2008.pdf
Emanuel EJ. What are Bioethicists Doing about Health Care Reform? Hastings Center Report. 2008;38(2): 12-13.
http://www.bioethics.nih.gov/publications/emanuel/emanuelhcr2008.pdf
Gambescia SF. Enlightenment Thinking Could Bring Health Care for All Americans. Philosophy & Public Policy Quarterly 2008;28(1/2):19.
http://www.puaf.umd.edu/IPPP/reports/vol28winterspring08/vol28winterspring08.pdf
Glied SA. Universal Coverage One Head at a Time—The Risks and Benefits of Individual Insurance Mandates. NEJM 2008;358(15):1540-1542.
http://content.nejm.org/cgi/content/full/358/15/1540?query=TOC
Katz MH. Golden Gate to Health Care for All? San Francisco’s New Universal-Access Program. NEJM 2008;358(4):327-329.
http://content.nejm.org/cgi/content/full/358/4/327
Morrissey S, et al. Health of the Nation—Coverage for All Americans. NEJM 2008;359(8):855-856.
http://content.nejm.org/cgi/content/full/359/8/855?query=TOC
Oberlander J. The Partisan Divide—The McCain and Obama Plans for US Health Care Reform. NEJM 2008;359(8):781-784.
http://content.nejm.org/cgi/content/full/359/8/781?query=TOC
Rosenbaum S. The Proxy War-SCHIP and the Government’s Role in Health Care Reform. NEJM 2008 358(9):869-872,
http://content.nejm.org/cgi/content/full/358/9/869?query=TOC
Steinbrook R. Health Care Reform in Massachusetts—Expanding Coverage, Escalating Costs. NEJM 2008;358(26):2757-2760.
http://content.nejm.org/cgi/content/full/358/26/2757?query=TOC
Hematology
Fergusson DA, McIntyre L. The Future of Clinical Trials Evaluating Blood Substitutes. JAMA 2008;299(19):2324-2326.
http://jama.ama-assn.org/cgi/content/full/299.19.jed80027
Hospitalization/Hospitals
Salamon J. Hospital: Man, Woman, Birth, Death, Infinity, Plus Red Tape, Bad Behavior, Money, God, and Diversity on Steroids. 2008. Penguin Press. ISBN-10: 1594201714.
http://www.amazon.com/Hospital-Infinity-Behavior-andDiversity-Steroids/dp/1594201714
This is reviewed unfavorably by Jerome Karrirer in BMJ 2008;337:a946.
http://www.bmj.com/cgi/content/full/337/jul23_2/a946
Industry
Steinbrook R. Disclosure of Industry Payments to Physicians. NEJM 2008;359(6):559-561. http://content.nejm.org/cgi/content/short/359/6/559?ssource=mfv
Infectious disease/Vaccinations
Asveld L. Mass-Vaccination Programmes and the Value of Respect for Autonomy. Bioethics. 2008;22(5):245-257.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2008.00630.x
Berlinger N, Moses J. Pandemic Flu Planning in the Community: What Can Clinical Ethicists Bring to the Public Health Table? Cambridge Quarterly of Healthcare Ethics.2008;17(4):468-470.
http://journals.cambridge.org/action/displayAbstract?aid=2151492
Coleman CH, Reis A. Potential Penalties for Health Care Professionals Who Refuse to Work During a Pandemic. JAMA 2008;299(12):1471-1473.
http://jama.ama-assn.org/cgi/content/full/299/12/1471?etoc
Corbin JR. Disclosure of HIV Status to an Infected Child: COnfiedentiality, Duty to Warn, and Ethical Practice. J Clin Ethics. 2008;19(1): 53-57.
http://www.clinicalethics.com/
Field R, Caplan AL. A Proposed Ethical Framework for Vaccine Mandates: Competing Values and the Case of HPV. Kennedy Institute of Ethics Journal. 2008;18(2):111-124.
http://www.ncbi.nlm.nih.gov/sites/entrez
Klitzman R, et al. Ethical Issues Concerning Disclosures of HIV Diagnoses to Perinatally Infected Children and Adolescents. J Clin Ethics. 2008;19(1): 31-42.
http://www.clinicalethics.com/
Mello MM. Rationalizing Vaccine Injury Compensation. Bioethics 2008;22(1):32-42.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00590.x
Mitchell CD, et al. Disclosure of HIV Status to an Infected Child: Medical, Psychological, Ethical, and Legal Perspectives in an Era of Super-Vertical Transmission. J Clin Ethics. 2008;19(1): 43-52.
http://www.clinicalethics.com/
Normile D. Rinderpest: Driven to Extinction. Science 2008;319(5870):1606-1609.
http://www.sciencemag.org/cgi/content/summary/319/5870/1606?rss=1
Pearce A, Law C, et al. Factors associated with uptake of measles, mumps, and rubella vaccine (MMR) and use of single antigen vaccines in a contemporary UK cohort: prospective cohort study. BMJ 2008;
http://www.bmj.com/cgi/reprint/bmj.39489.590671.25v1
Peterson M. The Moral Importance of Selecting People Randomly. Bioethics. 2008;22(6):321-327.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2008.00636.x
Shaw D. Dentistry and the Ethics of Infection. J Med Ethics 2008;34(3):184-187.
http://jme.bmj.com/cgi/content/abstract/34/3/184
Intersex/Transgender
Giordano S. Lives in a chiaroscuro. Should we suspend the puberty of children with gender identity disorder? Journal of Medical Ethics 2008;34:580-584.
http://jme.bmj.com/cgi/content/abstract/34/8/580
Legal
Annas GJ. Doctors, Drugs, and Driving — Tort Liability for Patient-Caused Accidents. NEJM 2008;359(5):521-525.
http://content.nejm.org/cgi/content/short/359/5/521?query=TOC
Hellman D. Pushing Drugs or Pushing the Envelope: The Prosecution of Doctors in Connection with Over-Prescribing Of Opium-Based Drugs. Philosophy & Public Policy Quarterly 2008;28(1/2):7.
http://www.puaf.umd.edu/IPPP/reports/vol28winterspring08/vol28winterspring08.pdf
Maisel WH. Semper Fidelis—Consumer Protection for Patients with Implanted Medical Devices. NEJM 2008;358(10):985-987.
http://content.nejm.org/cgi/content/full/358/10/985
Media/Infomatics
Capretta JC. The Clipboard of the Future. The New Atlantic. 2008;19:119 -125.
http://www.thenewatlantis.com/publications/the-clipboard-of-the-future on medical records
Robinson CH. Sick and Famous. The New Atlantic. 2008;19:113-117.
http://www.thenewatlantis.com/publications/sick-and-famous
On:
Lerner BH. When Illness Goes Public Celebrity Patients and How We Look at Medicine. Johns Hopkins 2006.
http://www.amazon.com/When-Illness-Goes-Public-Celebrity/dp/0801884624
“in August 2007, the actor Owen Wilson was hospitalized after apparently trying to take his own life. The media coverage of his hospitalization was swift and, once the reason for it was leaked, unrelenting.”
Medical Error/Quality of Care/Improving outcome
Aily MA. Harming Through Protection? NEJM 2008;358(8):768-769.
http://content.nejm.org/cgi/content/full/358/8/768?query=TOC
Cave J, Dacre J. Dealing with Complaints. BMJ 2008:336:326-328.
http://www.bmj.com/cgi/content/full/336/7639/326
Cuzner E. Saying Sorry Is Not Admission of Liability. BMJ 2008;336:291.
http://www.bmj.com/cgi/content/full/336/7639/291-b (a letter)
Dresser R. The Limits of Apology Laws. Hastings Center Report 2008;38(3):6-7.
http://www.thehastingscenter.org/pdf/publications/hcr_2008_may_jun_at_law.pdf
Fahrenkopf AM, et al. Rates of Medication Errors Among Depressed and Burnt Out Residents: Prospective Cohort Study. BMJ 2008;336:488-491.
http://www.bmj.com/cgi/content/abstract/336/7642/488
Fung CH, et al. Systematic Review: The Evidence that Publishing Patient Care Performance Data Improves Quality of Care. Ann Int Med 2008; 148(2):111-123.
http://www.annals.org/cgi/content/abstract/148/2/111
Garbutt J, et al. Lost Opportunities: How Physicians Communicate About Medical Errors. Health Affairs 2008;27(1):246-255.
http://content.healthaffairs.org/cgi/content/abstract/27/1/246
Godlee F. The Value of Complaints. BMJ 2008; 336:
http://www.bmj.com/cgi/content/full/336/7639/0 (editorial)
Hibbard JH. What Can We Say about the Impact of Public Reporting? Inconsistent Execution Yields Variable Results. Ann Int Med 2008;148(2):160-161.
http://www.annals.org/content/vol148/issue2/
Kaldjian LC, et al. Reporting Medical Errors to Improve Patient Safety. Arch Int Med. 2008;168(1);40-46.
http://archinte.ama-assn.org/cgi/content/abstract/168/1/40?etoc
McLay J, Ross S. Medication Errors Caused by Junior Doctors. BMJ 2008;336:456.
http://www.bmj.com/cgi/content/full/336/7642/456
Miller FG, Emanuel EJ. Quality-Improvement Research and Informed Consent. NEJM 2008;358(8):765-767.
http://content.nejm.org/cgi/content/full/358/8/765?query=TOC
Pronovost PJ, et al. The Wisdom and Justice of Not Paying for “Preventable Complications” JAMA 2008;299(18):2197-2199.
http://jama.ama-assn.org/cgi/content/full/299/18/2197?etoc
Shulkin DJ. Like Night and Day—Shedding Light on Off-Hours Care. NEJM 2008;358(20):2091-2093.
http://content.nejm.org/cgi/content/full/358/20/2091?query=TOC
Misconduct
Sokol DK. The Dilemma of Authorship. . BMJ 2008;336:478.
http://www.bmj.com/cgi/content/extract/336/7642/478
Vogel G. Fraud Charges Cast Doubt on Claims of DNA Damage from Cell Phone Fields. Science. 2008;321(5893):1144-1145.
http://www.sciencemag.org/cgi/content/summary/321/5893/1144a?sa_campaign=Email/toc/29-
August-2008/10.1126/science.321.5893.1144a
Neonatology and Fetal Issues
Ahiuwalia JS, et al. Decisions for Life Made in the Perinatal Period Who Decides; On Which Standards? Arch Dis Child. Fetal Neonatal Ed. 2008;
http://fn.bmj.com/cgi/content/abstract/adc.2006.113373v1?papetoc
Mercurio MR. Rituals of Unburdening. Hastings Center Report. 2008;38(2):8-9. http://www.thehastingscenter.org/publications/hcr/hcr.asp
O'Donnell CPF, et al. Ethical and Legal Aspects of Video Recording Neonatal Resuscitation. Arch Dis Child Fetal Neonatal Ed. 2008;93:F82-F84.
http://fn.bmj.com/cgi/content/extract/93/2/F82?etoc
Samaan MC, et al. Doctors’ and nurses’ attitudes towards neonatal ethical decision making in Ireland. Archives of Disease in Childhood - Fetal and Neonatal Edition 2008;93:F217-F221.
http://fn.bmj.com/cgi/content/abstract/93/3/F217?etoc
Newborn Screening
Baily MA, TH Murray. Ethics, Evidence, and Cost in Newborn Screening. Hastings Center Report. 2008; 38(3):23-31
http://www.thehastingscenter.org/pdf/hcr_2008_may_jun_early_release1.pdf?src=bailymurraypdf
Balfour-Lynn IM. Newborn Screening for Cystic Fibrosis: Evidence for Benefit. Arch Dis Child 2008;93(1):7-10.
http://adc.bmj.com/cgi/content/extract/93/1/7?etoc
Lin BK, Fleischman AR. Screening and Caring for Children with Rare Disorders. Hastings Center Report. 2008; 38(3):3.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Moyer VA, et al. Expanding Newborn Screening: Process, Policy, and Priorities. Hastings Center Report. 2008; page 32.
http://www.thehastingscenter.org/pdf/hcr_2008_may_jun_early_release2.pdf
Ross LF. Newborn Screening for Cystic Fibrosis: A Lesson in Public Health Disparities. J Peds 2008;153(3):308-313.
http://www.jpeds.com/article/S0022-3476(08)00371-5/abstract
Van der Ploeg CPB, et al. Examination of long-lasting parental concern after false-positive results of neonatal hearing screening. Arch Dis Child. 2008;93:508-511.
http://adc.bmj.com/cgi/content/abstract/adc.2007.129320v1
Nutrition
Schmidt H. Childhood Obesity and Parental Responsibilities. Hastings Center Report 2008:38(4):3.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Pain
Baker JN, et al. Pain Still Lords Over Children. J Peds 2008;152(1):6-8.
http://www.jpeds.com/article/PIIS0022347607007755/fulltext
Hewitt M, et al. Opioid Use in Palliative Care of Children and Young People with Cancer. J Peds 2008;152(1):39-44.
http://www.jpeds.com/article/PIIS0022347607006579/abstract
Long SS. Pain Control in Children and Young People with Cancer. J Peds 2008;152(1):A1.
http://www.jpeds.com/article/PIIS0022347607010712/fulltext
Patient Ethics/Responsibility
Emanuel EJ, Fuchs VR. The Perfect Storm of Overutilization. JAMA 2008;299(23):2789-2791.
http://jama.ama-assn.org/cgi/content/full/299/23/2789
Politics & Conscientious Objection
Flynn DP. Pharmacist Conscience Clauses and Access to Oral Contraceptives. Journal of Medical Ethics 2008;34:517-520.
http://jme.bmj.com/cgi/content/abstract/34/7/517?etoc
Public Health/ Bioterrorism/Violence/Disasters
Okie S. Dr Pou and the Hurricane-Implications for Patient Care During Disasters. NEJM 2008;358(1):1-5.
http://content.nejm.org/cgi/content/full/358/1/1?query=TOC
Powell T, et al. Allocation of Ventilators in a Public Health Disaster. Disaster Medicine & Public Health Preparedness. 2008;2(1):20-26.
http://www.dmphp.org/cgi/content/abstract/2/1/20
Ransom MM, et al. Addressing Gaps in Health Care Sector Legal Preparedness for Public Health Emergencies. Disaster Medicine & Public Health Preparedness. 2008;2(1):50-56.
http://www.dmphp.org/cgi/content/abstract/2/1/50
Rolfsen ML. Medical care provided during a disaster should be immune from liability or criminal prosecution. J La State Med Soc. 2007;159(4):224-5, 227-9.
http://www.unboundmedicine.com/medline/ebm/record/17987961/abstract/Medical_care_provided_
during_a_disaster_should_be_immune_from_liability_or_criminal_prosecution_
Publications
DeAngelis CD, Thornton JP. Preserving Confidentiality in the Peer Review Process. JAMA 2008:299(16):1956
http://jama.ama-assn.org/cgi/content/full/299.16.jed80000
Quality of Life
Calvert JF, et al. What are the repercussions of disclosing a medical error? Journal of Family Practice. 2008;57(2).
http://www.jfponline.com/CurrentIssue.asp
Rosenbaum P. Children’s Quality of Life: Separating the Person from the Disorder. Arch Dis Child 2008: 93:100-101.
http://adc.bmj.com/cgi/content/extract/93/2/100
Rationing/Denial of Coverage
Hurst, SA, et al. Should Ethics Consultants Help Clinicians Face Scarcity in Their Practice? J Med Ethics 2008;34(4):241-246.
http://jme.bmj.com/cgi/content/abstract/34/4/241
Religion & Spiritual Issues
Al-Alawi I, Schwartz S. Radical Muslim Doctors and What They Mean for the NHS. BMJ 2008;336:834.
http://www.bmj.com/cgi/content/extract/336/7648/834
Bock, GL. Medically Valid Religious Beliefs. Journal of Medical Ethics 2008;34:437-440.
http://jme.bmj.com/cgi/content/abstract/34/6/437?etoc
“This paper proposes criteria that would qualify a religious belief as medically valid to help physicians decide which requests to respect. The four conditions suggested are that the belief (1) is shared by a community, (2) is deeply held, (3) would pass the test of a religious interpreter and (4) does not harm others.”
Bruzzone P. Religious aspects of organ transplantation. Transplant Proc. 2008;40(4):1064-7.
http://www.transplantation-proceedings.org/article/S0041-1345(08)00253-4/abstract
Fosarelli R. Medicine, Spirituality, and Patient Care. JAMA 2008;300(7):836-838.
http://jama.ama-assn.org/cgi/content/full/300/7/836?etoc
Milstein JM. Introducing Spirituality in Medical Care. JAMA. 2008;299(20):2440-2441.
http://jama.ama-assn.org/cgi/content/short/299/20/2440
Reproduction, Contraception, Assisted Reproduction, Abortion
Burr J, Reynolds P. Thinking ethically about genetic inheritance: liberal rights, communitarianism and the right to privacy for parents of donor insemination children. Journal of Medical Ethics 2008;34(4):281-284.
http://jme.bmj.com/cgi/content/abstract/34/4/281
Davis J. Selecting Potential Children and Unconditional Parental Love. Bioethics. 2008;22(5):258-268.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2008.00628.x
DeGrazia D. Must We Have Full Moral Status Throughout Our Existence? A Reply to Alfonso. Kennedy Institute of Ethics Journal. 2008. 17(4):297.
http://muse.jhu.edu/journals/kennedy_institute_of_ethics_journal/toc/ken17.4.html
Gomez-Lobo A. Inviolability at any Age. Kennedy Institute of Ethics Journal. 2008. 17(4):311.
http://muse.jhu.edu/journals/kennedy_institute_of_ethics_journal/toc/ken17.4.html
Green RM. Are Babies By Design in Our Future? Personalized Medicine. 2008;5(3):273-277.
http://www.medscape.com/viewarticle/576152?src=mp&spon=9&uac=13816HY
Guillebaud J. Hayes P. Population Growth and Climate Change, BMJ 2008;337:a576. http://www.bmj.com/cgi/content/full/337/jul24_2/a576?maxtoshow=&HITS=10&hits=
10&RESULTFORMAT=1&author1=Guillebaud&andorexacttitle=and&andorexacttitleabs=and&
andorexactfulltext=and&searchid=1&FIRSTINDEX=0&sortspec=relevance&resourcetype=HWCIT
Jensen DA. Abortion, Embryonic Stem Cell Research and Waste. Theoretical Medicine and Bioethics. 2008;29(1):27-41.
http://www.springerlink.com/content/f4530l5xr51x756j/
“Can one consistently deny the permissibility of abortion while endorsing the killing of human embryos for the sake of stem cell research?”
Kermalvezen A, de Dinechin Blandine. Ne de spermatozoide inconnu. (Born of sperm unknown….) Presses de la Renaissance. 2008. ISBN-13: 978-2750903770.
http://translate.google.com/translate?hl=en&sl=fr&u=http://www.amazon.fr/N%25C3%25A9-
spermatozo%25C3%25AFde-inconnu-Serge-Tisseron/dp/2750903777&sa=X&oi=
translate&resnum=2&ct=result&prev=/search%3Fq%3DN%25C3%25A9%2Bde%2Bspermatozo
%25C3%25AFde%2Binconnu%26hl%3Den%26sa%3DG
In French. I haven’t found an English translation
Knowles LP, Kaebnick GE. Reprogenetics: Law, Policy, and Ethical Issues. Baltimore, Johns Hopkins University Press 2007. ISBN 978-0-8018-8524-2.
http://www.amazon.com/Reprogenetics-Law-Policy-Ethical-Issues/dp/0801885248/ref=
sr_1_1?ie=UTF8&s=books&qid=1200598437&sr=1-1
This is reviewed in NEJM’s January 10th issue.
http://content.nejm.org/cgi/content/full/358/2/204
Kuflik A. The "future like ours" argument and human embryonic stem cell research. Journal of Medical Ethics 2008;34:417-421.
http://jme.bmj.com/cgi/content/abstract/34/6/417?etoc
Landau R. Sex selection for social purposes in Israel: quest for the "perfect child" of a particular gender or centuries old prejudice against women? Journal of Medical Ethics 2008;34: e10. doi:10.1136.
http://jme.bmj.com/cgi/content/abstract/34/9/e10?etoc
Marquis D. Abortion and Human Nature. Journal of Medical Ethics 2008;34:422-426.
http://jme.bmj.com/cgi/content/extract/34/6/422?etoc
Merhi ZO, Pai L. Gender "tailored" conceptions: should the option of embryo gender selection be available to infertile couples undergoing assisted reproductive technology? Journal of Medical Ethics 2008;34:590-593.
http://jme.bmj.com/cgi/content/abstract/34/8/590
Miller C. Donated Generation. The New Atlantis. 2008;21:27-44.
http://www.thenewatlantis.com/publications/donated-generation
Siegel S, et al. Ethical Opinions and Personal Attitudes of Young Adults Conceived by In Vitro Fertilisation. J Med Ethics 2008;34(4):236-240.
http://jme.bmj.com/cgi/content/abstract/34/4/236?etoc
Stoller SE. Why We Are Not Morally Required to Select the Best Children: A Response To Savulescu. Bioethics. 2008;22(7): 364-369,
http://www3.interscience.wiley.com/journal/120121940/abstract?CRETRY=1&SRETRY=0
“Women are socially isolated, their experiences kept secret, and their grief disenfranchised”Weinberg R. The Moral Complexity of Sperm Donation. Bioethics 2008;22(3):166-178.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00624.x
Weinberg R. The Moral Complexity of Sperm Donation. Bioethics 2008;22(3):166-179.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00624.x
Research & Experimental Treatments
Abdoler, E., H. Taylor, et al. (2008). "The Ethics of Phase 0 Oncology Trials." Clinical Cancer Research 14(12): 3692-3697.
http://bioethics.nih.gov/departmentpubs/Abdoler 2008 - CCR.pdf
Brendel DH, Miller FG. A plea for pragmatism in clinical research ethics. Am J Bioeth. 2008;8(4):24-31.
http://www.informaworld.com/smpp/content~content=a794424516~db=all
Daugherty, C., M. Ratain, et al. "Ethical, Scientific, and Regulatory Perspectives Regarding the Use of Placebos in Cancer Clinical Trials." Journal of Clinical Oncology 2008;26(8): 1-8.
http://www.bioethics.nih.gov/publications/emanuel/emanueljco2008.pdf
Emanuel EJ, et al. The Oxford Textbook of Clinical Research Ethics. New York, Oxford University Press, 2008. ISBN 978-0-19-516865-5.
http://www.amazon.com/Oxford-Textbook-Clinical-Research-
Ethics/dp/0195168658/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1220236311&sr=8-1
This is reviewed in: NEJM 2008;359(9):982-983.
http://content.nejm.org/cgi/content/short/359/9/982?query=TOC
Levine RJ. Research Involving Adolescents as Subjects : Ethical Considerations. Ann N Y Acad Sci. 2008;1135;280-286.
http://www.ncbi.nlm.nih.gov/pubmed/18574234
Maienschein J, Sunderland M, Ankeny RA, Robert JS. The ethos and ethics of translational research.
Am J Bioeth. 2008;8(3):43-51.
http://www.informaworld.com/smpp/content~content=a794121162~db=all~jumptype=rss
Mastroianni AC. Sustaining Public Trust: Falling Short in the Protection of Human Research Subjects. Hastings Center Report 2008;38(3):8.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Miller, F. and D. Wendler. "Is it Ethical to Keep Interim Findings of Randomized Controlled Trials Confidential?"Journal of Medical Ethics 2008:34: 198-201.
http://bioethics.nih.gov/departmentpubs/Miller 2008 - JME.pdf
Helgesson G, Swartling U. Views on Data Use, Confidentiality and Consent in Predictive Screening Involving Children. J Med Ethics 2008;34(3):206-209.
http://jme.bmj.com/cgi/content/abstract/34/3/206
McGregor JL. Population Genomics and Research Ethics with Socially Identifable Groups. J Law Med Ethics 2007 35: 356–370.
http://www.jlme.org/cgi/reprint/35/3/356
Metcalfe C, Martin RM, Noble S, Lane JA, Hamdy FC, Neal DE, Donovan JL. Low risk research using routinely collected identifiable health information without informed consent: encounters with the Patient Information Advisory Group. J Med Ethics. 2008;34:37-40. http://jme.bmj.com/cgi/content/abstract/34/1/37
Millum J, Emanuel EJ. The Ethics of International Research with Abandoned Children. Science. 318:1874-1875.
http://www.bioethics.nih.gov/publications/fellows/millumscience2007.pdf
Moreno MA. Research Ethics in the MySpace Era. Pediatrics 2008;121(1):157-161.
http://pediatrics.aappublications.org/cgi/content/full/121/1/157
Nycum G, Reid L. The Harm Benefit Tradeoff in “Bad Deal” Trials. Kennedy Institute of Ethics Journal. 2008. 17(4):321.
http://muse.jhu.edu/journals/kennedy_institute_of_ethics_journal/toc/ken17.4.html
Streiffer R. Informed Consent and Federal Funding for Stem Cell Research. Hastings Center Report 2008;38(3):40.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Sumeeta V, Wendler D. Research Involving Wards of the State: Protecting Particularly Vulnerable Children. J Peds 2008;152(1):9-14.
http://www.jpeds.com/current
Varma, S. and D. Wendler. Research involving wards of the state: protecting particularly vulnerable children. Journal of Pediatrics 152(1) 9-14.
http://bioethics.nih.gov/departmentpubs/Varma 2008 - Pediatrics.pdf
Wendler, D., B. Krohmal, et al. (2008). "Why Patients Continue to Participate in Clinical Research."
Archives of Internal Medicine 2008;168(12): 1294-1299.
http://bioethics.nih.gov/departmentpubs/Wendler 2008 - AIM.pdf
Wendler D, Jenkins T. Children’s and Their Parents’ Views on Facing Research Risks for the Benefit of Others. Arch Ped Adol Med. 2008;162(1):9-14.
http://archpedi.ama-assn.org/cgi/content/short/162/1/9
Wendler D. Is it Possible to Protect Pediatric Research Subjects without Blocking Appropriate Research? J Pediatrics 2008;152(4):467-470.
http://www.jpeds.com/article/S0022-3476(07)00887-6/fulltext
Wendler, D. and T. Jenkins. "Children's and Their Parents' Views on Facing Research Risks for the Benefit of Others."
Archives of Pediatrics & Adolescent Medicine 2008. 162(1): 9-14.
http://www.bioethics.nih.gov/publications/wendler/wendlerapam2008.pdf
Wendler, D. and C. Grady. (2008). “What should research participants understand to understand they are participants in research?” Bioethics 22(4): 203-208.
http://www.bioethics.nih.gov/publications/wendler/wendlerbioethics2008.pdf
Social Issues
Blacksher E. Children’s Health Inequalitites: Ethical and Political Challenges to Seeking Social Justice. Hastings Center Report 2008:38(4):28-35.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Curfman GD, et al. Physicians and Execution. NEJM 2008;358(4):403-404.
http://content.nejm.org/cgi/content/full/NEJMe0800032
This is the link to 07-5439 Baze v Rees.
http://www.supremecourtus.gov/qp/07-05439qp.pdf
Gawande A, et al. Physicians and Execution—Highlights from a Discussion of Lethal Injection. NEJM 2008;358(5):448-451.
http://content.nejm.org/cgi/content/full/358/5/448?query=TOC
Stryker J. Lethal Injections: Medicine and Research. Hastings Center Report. 2008:38(1).
http://www.thehastingscenter.org/publications/hcr/hcr.asp this is a free download.
Sports
Wells D. Genetic engineering in athletes. BMJ 2008;337:a607. http://www.bmj.com/cgi/content/full/337/jul07_1/a607
Stem cells/Embryos/Cord Blood/Chimeras
Capps B. Authoritative regulation and the stem cell debate. Bioethics. 2008;22:43-55.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00589.x
DiSilvestro R. A qualified endorsement of embryonic stem cell research, based on two widely shared beliefs about the brain-diseased patients such research might benefit
J Med Ethics 2008; 34: 563-567.
http://jme.bmj.com/cgi/content/abstract/34/7/563
Fennel JA. Alternate Nuclear Transfer Is No Alternative for Embryonic Stem Cell Research. Bioethics 2008;22(2):84-91.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00609.x
Fisk NM, Atun R. Public-Private Partnership in Cord Blood Banking. BMJ 2008;336:642-644.
http://www.bmj.com/cgi/content/short/336/7645/642
Gordon JS. The Status of the In Vitro Embryo. Bioethics. 2008;22(5):296-298.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2008.00635.x
McDougall R. A Resource-Based Version of the Argument that Cloning Is An Affront to Human Dignity. J Med Ethics 2008;34(4):259-261.
http://jme.bmj.com/cgi/content/abstract/34/4/259
Mertes H, Pennings G. Embryonic Stem Cell-derived Gametes and Genetic Parenthood: A Problematic Relationship. Cambridge Quarterly Healthcare Ethics. 2008;17(1): 7-14.
http://journals.cambridge.org/action/displayAbstract?aid=1512260
Transplants
Bernat JL. The Boundaries of Organ Donation after Circulatory Death. NEJM 2008;359(7):669-671.
http://content.nejm.org/cgi/content/full/359/7/669?query=TOC
Boucek MM, et al. Pediatric Heart Transplantation after Declaration of Cardiocirculatory Death. NEJM 2008;359(7):709-714.
http://content.nejm.org/cgi/content/full/359/7/709?query=TOC
Chapman J. Should we pay donors to increase the supply of organs for transplantation? No. BMJ 2008;336(7657):1343.
http://www.bmj.com/cgi/content/full/336/7657/1343
Coggon J, et al. Best Interests and Potential Organ Donors. BMJ 2008;336(7657): 1346-1347.
http://www.bmj.com/cgi/content/full/336/7657/1346
Cronin AJ. Allowing Autonomous Agents Freedom. J Med Ethics 2008;34(3):129-132.
http://jme.bmj.com/cgi/content/abstract/34/3/129
Curfman GD, et al. Cardiac Transplantation in Infants. NEJM 2008;359(7):749-750.
http://content.nejm.org/cgi/content/full/359/7/749?query=TOC
Dees RH, Singer EA. KidneyMatch.com: The Ethics of Solicited Organ Donations. Journal of Clinical Ethics. 2008;19(2):141-149. (I haven’t found a link for this yet.)
Ferriman A. Becoming a Live Kidney Donor. BMJ 2008;336(7657): 1374-1376.
http://www.bmj.com/cgi/content/full/336/7657/1374
Glannon W. The case against conscription of cadaveric organs for transplantation. Camb Q Healthc Ethics. 2008;17(3):330-6.
http://www.ncbi.nlm.nih.gov/pubmed/18495073
Glannon W. Underestimating the Risk in Living Kidney Donation. J Med Ethics 2008;34(3):127-128.
http://jme.bmj.com/cgi/content/extract/34/3/127?etoc
Godlee F. Is It Time to Pilot Paying for Organs? BMJ 2008;336(7657).
http://www.bmj.com/cgi/content/extract/336/7657/0
Glantz L, et al. Rules for Donations to Tissue Banks—What Next? NEJM 2008;358(3):298-303.
http://content.nejm.org/cgi/content/full/358/3/298
Hamm D, Tizzard J. Presumed Consent for Organ Donation. BMJ 2008;336:230.
http://www.bmj.com/cgi/content/full/336/7638/230
Harrison CH, Laussen PC. Controversy and consensus on pediatric donation after cardiac death: ethical issues and institutional process. Transplant Proc. 2008;40(4):1044-7.
http://www.transplantation-proceedings.org/article/S0041-1345(08)00282-0/abstract
Hoehn KS, Frader JE. Approaching Parents for Organ Donation: Who and When. Pediatric Critical Care Medicine. 2008;9(2).
http://www.pccmjournal.org/pt/re/pccm/toc.00130478-200803000-00000.htm;
jsessionid=LgQQGknRT1PWHFHT9jcZH81wbw2J18GZgWdBSzGLGprR0F484G2G!-
1123973585!181195628!8091!-1
(thanks for the reference to Dr Frader)
Ho D. When Good Organs Go to Bad People. Bioethics 2008;22(2):77-83.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1467-8519.2007.00606.x
“The deeper problem is that using moral responsibility as an allocation criterion undermines the functioning of medicine”
Luskin RS, et al. Organ Donation and Dual Advocacy. NEJM 2008;358(12):1297-1298. (a letter)
http://content.nejm.org/cgi/content/full/358/12/1297
Matas AJ. Should we pay donors to increase the supply of organs for transplantation? No. BMJ 2008;336(7657):1342.
http://www.bmj.com/cgi/content/full/336/7657/1342
Mathur M, et al. Pediatric Critical Care Nurses’ Perceptions ,Knowledge, and Attitudes Regarding Organ Donation after Cardiac Death. Pediatric Critical Care Medicine. 2008;9(3):261-269.
http://www.pccmjournal.org/pt/re/pccm/abstract.00130478-200805000-00003.htm;
jsessionid=LgQQGknRT1PWHFHT9jcZH81wbw2J18GZgWdBSzGLGprR0F484G2G!-
1123973585!181195628!8091!-1
Rodrigue JR, et al. Pediatric Organ Donation: What Factors Most Influence Parents’ Donation Decisions? Pediatric Critical Care Medicine. 2008;9(2):180-185.
http://www.medscape.com/viewarticle/575830?src=mp&spon=9&uac=13816HY
Schneider CE. Jesting Pilate. Hastings Center Report 2008:38(4):14-15.
http://www.thehastingscenter.org/publications/hcr/hcr.asp
Truog RD. Consent for Organ Donation—Balancing Conflicting Ethical Obligations. NEJM 2008;358(12):1209-1211.
http://content.nejm.org/cgi/content/full/358/12/1209?query=TOC
Truog RD, Miller FG. The Dead Donor Rule and Organ Transplantation. NEJM 2008;359(7):674-675.
http://content.nejm.org/cgi/content/full/359/7/74?query=TOC
Turner L. Let’s Wave Goodbye to “transplant tourism.” BMJ 2008;336(7657):1377.
http://www.bmj.com/cgi/content/extract/336/7657/1377
Veatch RM. Donating Hearts after Cardiac Death—Reversing the Irreversible. NEJM 2008;359(7):672-673.
http://content.nejm.org/cgi/content/full/359/7/672?query=TOC
Westall GP, et al. Ethics of Organ Donation and Transplantation Involving Prisoners: the Debate Extends Beyond Our Borders. 2008l38(1):56-59.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1445-5994.2007.01563.x
Wright L. Ethical controversies in public solicitations for organs. Transplant Rev (Orlando). 2008;22(3):184-6.Zeiler K, et al. The ethics of non-heart-beating donation: how new technology can change the ethical landscape. Journal of Medical Ethics 2008;34:526-529.
http://jme.bmj.com/cgi/content/abstract/34/7/526
