Michigan Department of Health and Human Services
Project Title: Michigan's Project to Transform Health Care for Children and Youth with Epilepsy (CYE)
Goals and Objectives: The goal of this project is to improve health outcomes among Michigan's children and youth with epilepsy (CYE), especially in those rural and underserved areas, through better support for health care transition, improved communication among providers, expanded access to telehealth/telemedicine services, and better training in shared decision-making.
Project Title: Project IMPACT- Improving Medical Pediatric Access to Care through Telemedicine
Goals and Objectives: The purpose of the proposed project is to address the maldistribution of resources and services to children and youths with epilepsy (CYE) residing in rural and/or medically underserved areas. Pivotal to this proposal is a Telemedicine component which will increase access to specialized neurological care to CYE who may be medically complex/fragile and difficult to transport, live in remote areas or lack access to specialty care.
Project Title: Integrating Mobile Provider Access for Telemedicine and Transition (IMPACTT)
Goals and Objectives: 1) Telemedicine: face to face cameras allow patient to meet with providers virtually, use of MyChart, the Cleveland Clinic technology based record keeping and communication system available to all patients and physicians, and TytoCare which allows the providers to obtain physical examination findings to further advance the current capabilities of telehealth/telemedicine; 2) families as partners in decision making: the medical home model that underlies the care coordination clinic in Pediatric Epilepsy will be expanded to CYE in the pediatric sites; 3) transition: evaluate all CYE in the pediatric sites and pediatric epilepsy regarding transition activities, and provide technical assistance on implementation of the Got Transition Six Core Elements Framework. Including how to use tools embedded in EPIC for tracking, recording, and billing to help youth transition from the pediatric to adult system of health care; and 4) consultation/co-management: virtual sessions involving primary care doctor and specialist will be provided using the Zoom platform and Project ECHO.
Children's Hospital of Philadelphia
Project Title: Promoting Improved Outcomes through Resource Integration for Children and Youth with Epilepsy (PRIORITY Epilepsy)
Goals and Objectives: 1) Increase by 25 percent, access to care for CYE in the target population through telehealth strategies that provide direct care, including teleconsultation, tele-education, telemedicine, mobile health, etc.; 2) 90 percent of families in the target population report they are partners in shared-decision making in their child's care; 3) Increase by 75 percent the number of completed health care transition readiness assessments of youth (ages 14-22) with epilepsy in the target population; 4) increase by 40 percent, the number of participating primary care providers who report increased communication, collaboration, and co-management with specialty providers.
Children's Mercy Hospital, Kansas City
Project Title: Reaching out for Epilepsy in Adolescents and Children through Telemedicine
Goals and Objectives:
- Improving access to epileptologists via TM
- mproving the psychological care of CYE
- Improvingprovider comfort level in managing CYE
- IncreasingPCPs who report increased co-management of CYE
- Increasingthe number of CYE who complete healthcare transition readiness
- Improvingfamily engagement in the care of CYE
Boston Medical Center
Project Title: Strategic Approaches to Transforming Health Care for Children and Youth with Epilepsy
Goals and Objectives: The project will increase access to care for CYE using telehealth and overcome barriers to care by using telemedicine to deliver acute epilepsy care, outpatient epilepsy care and mental health for CYE. Seizure screening will be disseminated to new practices and a second medical center. The VPCMH will allow CYE, families, primary care providers, specialists and caregivers to collaborate in one virtual space to enhance shared-decision making and care coordination. Over the next four years, the number of CYE with VPCMHs will be doubled, reaching more non-English speaking CYE, and maximizing the tool's potential to connect CYE and providers. TRAQ assessments in youth 14-22 years will increase and the Transition Together mentoring program will develop buy-in from youth through group tele-education programs and one-on-one tele-mentorship. The proposed strategies will expand our reach to the approximately 12,996patients seen by the Network and the 10,000 served by the EFNE. We will expand the scope of our telemedicine program to include acute and outpatient epilepsy care, and teletherapy to provide needed mental health services for CYE. The VPCMH will expand the ability for CYE and their care providers to engage in shared decision making. CYE and their families will be more fully engaged through the Transition Together program. Lastly, we will better demonstrate the ability of the proposed strategies to transform healthcare for CYE by collecting and analyzing data longitudinally, thereby enhancing sustainability.
Ann & Robert H Lurie Children's Hospital of Chicago
Project Title: Collaborative Neurology Network for Enhanced Care through Telehealth for Children and Youth with Epilepsy Consortium (CONNECT for CYE)
Goals and Objectives: 1)By 2023, increase by 25 percent, access to care for CYE in the target population through telehealth strategies that provide direct care, including teleconsultation, tele-education, telemedicine, mobile health etc.2)By 2023, 90 percent of families in the target population report they are partners in shared-decision making in their child's care.3)By 2023, increase by 75 percent the number of completed health care transition readiness assessments of youth (ages 14-22) with epilepsy in the target population.4)By 2023, increase by 40 percent, the number of participating primary care providers who report increased communication, collaboration, and co-management with specialty providers.