Answers and Resources for Primary Care Pediatricians

Approximately 20 out of every 10,000 babies are born with a critical congenital heart defect (CCHD). CCHD life threatening and requires intervention in infancy. However, CCHD is not always detected prenatally or upon exam in the nursery. As a result, some infants with CCHD are discharged from the nursery to home, where they quickly decompensate. To improve the early detection of CCHD, the Secretary of Health and Human Services (HHS) recommended that CCHD screening be added to the uniform newborn screening panel.

Frequently Asked Questions

The following guidance, in question-and-answer format, was developed by a technical advisory panel comprised of experts representing various AAP entities with a broad range of CCHD expertise.

The contents of this page were developed with the support of the cooperative agreement #5NU38OT000282 funded by the Centers for Disease Control and Prevention . Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the American Academy of Pediatrics, Centers for Disease Control and Prevention, or the U.S. Department of Health and Human Services.

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American Academy of Pediatrics