The American Academy of Pediatrics is excited to welcome you to the first iteration of the Care Considerations for People Living with Duchenne Muscular Dystrophy (DMD), Project ECHO (Extension for Community Healthcare Outcomes). The purpose of the lectures is to build the knowledge, skills and competence of providers who care for children with DMD. The focus of these lectures is not on diagnosis, but on improving patient health, promoting proactive care and supporting best practices in care management of DMD.
Symptomatology & Diagnosis
Dr. Ashutosh Kumar discusses how to identify signs and symptoms, understand genetics and diagnoses, and the most current status of treatment for DMD.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Proactive Care in the Medical Home
Dr. Garey Noritz discusses how to identify primary care interventions, the role of the primary care physician (PCP) in managing acute illness, and the role of the PCP in coordinating care among medical and other subspecialists.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Multidisciplinary Care for Duchenne Muscular Dystrophy (MD)
Rachel Schrader discusses the need for a multidisciplinary approach to Duchenne care, and the role of care coordination for children living with DMD.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Bone Health Management/Endocrine Care
Dr. David Weber discusses the effects of DMD and chronic glucocorticoid therapy on bone and endocrine health and how to apply the 2018 DMD “Care Considerations” for Bone and Endocrine Care to patients.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Cardiology: The Impact for Children with Duchenne MD
Dr. Chet Villa discusses the timeline of cardiac disease progression, the current medical therapies for cardiac disease, and how heart failure may present in children living with DMD.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Gastrointestinal (GI) Care and Nutrition
Dr. Kent Williams discusses gastrointestinal (GI) disorders associated with DMD, nutritional assessments and the early implementation of gastronomy tubes.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Emergency Care
Dr. Chet Villa discusses the impact of adrenal suppression, cardiac, and pulmonary disease on emergency care in DMD, along with the importance of an individualized emergency care plan as patients age.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Neuropsychiatric Comorbidities
Dr. Molly Colvin discusses how to identify common neuropsychiatric and developmental conditions associated with DMD, early warning signs that should prompt evaluation, and sources of support to target concerns that may arise for the patient and their family at different developmental stages.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Pulmonology Care for Individuals with Duchenne MD
Dr. Andrew Sokolow discusses the current pulmonary guidelines and outcomes of care, and how to recognize pulmonary complications seen in individuals living with DMD.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Transition and Palliative Care for Individuals with Duchenne MD
Christina Trout discusses the importance of age-appropriate conversations and the expected changes in health and adult living, which may include greater involvement of palliative care services or goals of care discussions. She also discusses how to identify team members to coordinate transition planning activities.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Supporting Families with Children who have Chronic Conditions
Dr. Molly Colvin discusses how to identify factors that influence family’s experience of chronic illness and ways that the impact of a chronic illness may vary depending on family role.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Habilitative Services for People Living with Duchenne Muscular Dystrophy
Dr. ShaEssa Wright discusses adaptive equipment, assistive technology and orthotics, along with comprehensive musculoskeletal assessment and management strategies that may improve function, quality of life and longevity for people living with DMD.
After viewing, please take a moment to complete this brief 1-minute survey to help us improve future ECHO sessions.
Last Updated
07/15/2022
Source
American Academy of Pediatrics