Professional resources from the AAP and other organizations provide pediatricians with the most current practice, clinical support and education to provide optimal care for children and families affected by Duchenne Muscular Dystrophy.
Pediatric Care Online: Muscular Dystrophy
Quick access to multiple resources, all in one integrated online library and , for current clinical information needed at the point-of-care. Subscription Required.
- Specialty Care for the Patient with Duchenne Muscular Dystrophy: (Pediatrics, October 2018)
The discipline specific articles in this supplement aim to raise the standard of care and improve quality of life for those living with the condition. Specialty areas range from cardiology to osteopathic care and nutrition to psychosocial considerations for patients with Duchenne muscular dystrophy.
- Diagnosis and Management of Duchenne Muscular Dystrophy Parts 1, 2 and 3 (Lancet Neurology, January 2018)
The updated care considerations for DMD are contained in a set of three articles published in Lancet Neurology. They offer the latest clinical considerations to improve care and quality of life for people living with DMD. These care considerations, funded by the Centers for Disease Control and Prevention (CDC), are intended to raise the standards of care, help clinicians provide the best possible care to people with DMD, and give families and caregivers the necessary information to manage their care.
- Child Muscle Weakness Learn the steps to identify pediatric muscle weakness and signs of neuromuscular disease. This resource is a product of a national task force led by Parent Project Muscular Dystrophy (PPMD)
- Muscular Dystrophy Association
Explore the MDA Care Center Network and find a location near you.
- Muscular Dystrophy Research and Tracking
The Centers for Disease Control and Prevention (CDC) funds the Muscular Dystrophy Surveillance, Tracking, and Research Network, known as MD STARnet. MD STARnet collects critical information about muscular dystrophy that will improve care for those living with the disease.