Explore gastroschisis resources designed to help pediatricians, pediatric clinicians and caregivers improve outcomes through early diagnosis, coordinated care across the lifespan and family-centered support.


Gastroschisis Overview

Gastroschisis (gas-tro- skee-sis) is a birth defect where a baby’s intestines and sometimes other organs are positioned outside the abdomen through a hole next to the belly button. It occurs during fetal development and requires surgical repair, sometimes done in stages, shortly after birth. There are two main types of gastroschisis: simple and complex. Simple gastroschisis means the intestines are outside the abdomen at birth without additional complications. Complex gastroschisis involves the intestines being outside the abdomen plus related problems, such as abnormal intestinal formation, twisting or narrowing of the bowel, a hole in the intestine or tissue death. A rare, severe form of complex gastroschisis called vanishing (or closing) gastroschisis occurs when the abdominal wall closes over the intestines before birth, which can severely damage the external bowel and lead to intestinal failure or short bowel syndrome. Babies with this type of gastroschisis may require long term intravenous nutrition. This page provides information and resources about gastroschisis, including what it is, how it occurs and care across the lifespan.

Quick Facts

About 1 in 2,500 babies in the U.S. is born with gastroschisis.

While the exact cause of gastroschisis remains unknown, young maternal age (<25 years) is a strong known factor, with low maternal BMI also often cited as another possible risk factor.

Babies born with gastroschisis require surgery to place the intestines and organs back inside the abdomen.

Long-term care for gastroschisis usually includes regular visits with a pediatrician, gastroenterologist, and sometimes a surgeon to monitor nutrition, growth and overall health, while also watching for and managing potential long-term issues such as chronic abdominal pain, constipation, diarrhea and bowel function concerns.

Understanding Gastroschisis: Educational Resources for Healthcare Professionals

Explore specialty-specific information for pediatric clinicians, surgeons, and emergency medicine clinicians highlighting health considerations across the lifespan, potential gastrointestinal complications, symptom awareness, and care coordination for individuals with a history of gastroschisis.

 

Professional Tools & Resources

Birth Prevalence of Gastroschisis in the United States: 2016–2022

Explore key findings on the rising birth prevalence of gastroschisis in the U.S., emphasizing the importance of early detection and intervention for affected infants.

Postnatal Assessment of Common Prenatal Sonographic Findings

Learn about the critical postnatal evaluations for common prenatal concerns.

Prenatal Counseling Series: Gastroschisis

Discover essential information about gastroschisis, including causes, treatment options and support resources for families from the American Pediatric Surgical Association.

Questions From NeoReviews: A Study Guide for Neonatal-Perinatal Medicine, Volume 2

Gain pediatric knowledge with "Questions From NeoReviews: A Study Guide," featuring critical questions and expert insights for effective learning.

Textbook of Neonatal Resuscitation (9th Edition)

The Textbook of Neonatal Resuscitation, 9th Edition, incorporates the latest evidence and reflects the 2025 AHA/AAP Guidelines for Cardiopulmonary Resuscitation and Emergency Cardiovascular Care.

Resources for Families

Gastroschisis in Babies: Causes, Treatment & Long-Term Outlook
Discover essential information on gastroschisis in babies, including causes, treatment options and long-term outlook for affected infants.
Gastroschisis | March of Dimes
Learn about gastroschisis, its implications for pregnancy and find vital support resources to help you navigate this journey with confidence and care.

Get Involved

Section on Gastroenterology, Hepatology, and Nutrition (SOGHN)
Learn more about and join the AAP Section on Gastroenterology, Hepatology and Nutrition
Section on Neonatal Perinatal Medicine (SONPM)
Learn more about and join the AAP Section on Neonatal Perinatal Medicine.
Section on Surgery (SOSu)
Learn more about and join the AAP Section on Surgery.
Council on Children with Disabilities (COCWD)
Learn more about and join the AAP Council on Children with Disabilities.


This webpage is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $400,000 with 100 percent funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.

Last Updated

09/16/2026

Source

American Academy of Pediatrics