This webinar features a multidisciplinary panel discussion of key considerations for lifelong care for patients with congenital heart defects (CHD), designed for non-physician clinicians, particularly – nurses, social workers, physician assistants, case managers, and other members of the care team. Topics include care planning, care coordination, and cardiac care referrals. The session highlights how collaboration across care teams supports people with CHD throughout their lives and explores the essential role the entire care team plays in ensuring consistent, coordinated, patient-centered care.

Learning Objectives

At the end of this presentation, viewers will be able to:

  • Identify opportunities to reduce gaps in care for individuals living with a congenital heart defect
  • Identify and promote a team-based approach for collaborative and continuous lifelong cardiac care for patients with a congenital heart defect
  • Understand intervention and prevention strategies, including utilizing patient touchpoints to promote referrals for congenital cardiac care

Moderator

Terry Saia, DNP, APRN, CPNP, CE-NP

Terry Saia, DNP, APRN, CPNP, CE-NP is the Director of Cardiology Nursing and Patient Care Services and a Level 3 Nurse Practitioner in Pediatric Cardiology at Boston Children’s Hospital Heart Center.  She has several decades of experience caring for infants, children and adults with congenital heart and acquired heart disease and 10 years of leadership experience in a combined clinical and operational leadership role as a Nurse Director, practicing NP and APRN leader in the Heart Center at Boston Children’s Hospital. Terry has been deeply involved in and committed to Staff, Patient and Family Education as well as Quality Improvement and Research on the topic of congenital and acquired heart disease. She is the current Vice President of the Society of Pediatric Cardiovascular Nurses.

Panelists

Camilla Giallourakis, DNP, APRN-PC/AC

Camilla Giallourakis, DNP, APRN-PC/AC is a dual-certified pediatric nurse practitioner with extensive experience in pediatric intensive care. Her work spans both bedside nursing and advanced practice, with a recent focus in cardiology and the pediatric cardiac Intensive Care Unit (PCICU) at the Cleveland Clinic. Her work extends beyond the bedside, with an emphasis on quality improvement, care standardization, and addressing social determinants of health. She actively contributes to interdisciplinary initiatives aimed at improving patient outcomes, including discharge process redesign, reduction of unnecessary laboratory testing, and cardiology safety efforts.

Lexi Gill, MSN, RN, RNC-NIC

Lexi Gill, MSN, RN, RNC-NIC is a Clinical Program Manager and Associate Director of Patient Family Experience within pediatric cardiology at Cleveland Clinic Children's. She advances multidisciplinary care for patients with complex CHD, fostering collaboration across teams to ensure seamless, family-centered experience. She also leads initiatives both within her organization and the community to raise awareness and expand support for patients and families. 

Asha Purohit, LISW-CP, MSW, MPH

Asha Purohit, LISW-CP, MSW, MPH is a clinical social worker based out of South Carolina. Her experience and expertise in CHD stems from disability advocacy, medical case management, individual therapeutic work around chronic illness and disability, and serving on advisory councils in related fields. Additionally, she leverages her lived experience as a patient with congenital defects, including CHD, which have required extensive and ongoing care.


The Awareness of Congenital Heart Defects Among Healthcare Clinicians Project is supported by the Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $150,000 with 100 percent funded by CDC/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by CDC/HHS, or the U.S. Government.

Last Updated

06/02/2026

Source

American Academy of Pediatrics