Needs Assessment

In the spring and summer of 2021, the National Coordinating Center for Epilepsy (Center) conducted a needs assessment to better understand the landscape of pediatric epilepsy care. The needs assessment sought to determine the perception of existing gaps and challenges in health care for children and youth with epilepsy (CYE), along with the assets, resources, capabilities, and strengths that patients, their families, and health care providers possess.

The full report and an executive summary are now available for review. To obtain the appendices referenced in the report, please contact Center staff.

CYE Need Assessment Report


Executive Summary

Strategic Agenda

Based on the findings of the needs assessment as well as a strategic planning session with its CYE Advisory Committee, the Center has developed a strategic agenda to inform the work of pediatricians, pediatric subspecialists, allied health professionals, patient/family advocates and researchers. The Center encourages all those working in the field of pediatric epilepsy to refer to this document when undertaking new initiatives to improve the care of this population.

Priorities for Pediatric Epilepsy Care: A Strategic Agenda


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American Academy of Pediatrics