National Coordinating Center for Epilepsy

The AAP has served as home to the National Coordinating Center for Epilepsy (the Center) since 2013. Through a cooperative agreement with the Health Resources and Services Administration’s (HRSA) Maternal Child Health Bureau (MCHB), the Center aims to improve access to coordinated, comprehensive and quality care across the life-course for children and youth with epilepsy (CYE), particularly those who live in medically underserved and/or rural areas. Learn more about the National Coordinating Center for Epilepsy’s mission, goals and objectives.

The National Coordinating Center for Epilepsy provides information about pediatric epilepsy for:

  • Pediatricians, physicians and nonphysician clinicians (such as nurses or physician assistants)
  • Families and caregivers
  • Children and teens with epilepsy
  • Allied health professionals such as community health workers, care coordinators and social workers
  • Public health professionals

Information about the National Coordinating Center for Epilepsy Transforming Health Care for Children and Youth with Epilepsy program, and the grantees involved, can be found here.

Technical Assistance and Support

The National Coordinating Center for Epilepsy provides technical assistance and support to pediatric health professionals, family members and advocates, public health professionals, public policy professionals and others interested in learning more about improving access to quality care for CYE. The Center has resources tools related to telemedicine, health care transition, family engagement, quality improvement and more.

Support Offered

  • Individualized technical assistance through email and telephone
  • Educational materials and resources such as webinars, toolkits and tip sheets
  • Connection with subject matter experts such as pediatricians, epileptologists and neurologists
  • Assistance and resources to help practices better support children and youth with epilepsy

 

Learn More About the Center

 

 

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Last Updated

11/18/2021

Source

American Academy of Pediatrics