Transforming Health Care for Children and Youth with Epilepsy

The Health Resources and Services Administration (HRSA) oversaw the Transforming Health Care for Children and Youth with Epilepsy (CYE) program by providing funding to grantees who implemented efforts to increase access to coordinated, quality care in a patient/family-centered medical home for CYE residing in rural and/or medically underserved areas. This was accomplished by supporting quality improvement networks to address four content areas: (1) increasing access to specialists through telehealth and telemedicine strategies; (2) increasing family engagement at various levels across the health care system; (3) improving the transition from pediatric to adult health care; and (4) increasing communication, collaboration and co-management between primary care physicians and epilepsy specialists.

The National Coordinating Center for Epilepsy provided infrastructure and technical assistance to the Transforming Health Care for CYE program grantees.

Previous Grantees, 2019-2024 Cycle

Ann & Robert H. Lurie Children's Hospital of Chicago

Project Title: Collaborative Neurology Network for Enhanced Care through Telehealth for Children and Youth with Epilepsy Consortium (CONNECT for CYE)

Boston Medical Center

Project Title: Strategic Approaches to Transforming Health Care for Children and Youth with Epilepsy

Children's Mercy Hospital, Kansas City

Project Title: Reaching out for Epilepsy in Adolescents and Children through Telemedicine

Children's Hospital of Philadelphia

Project Title: Promoting Improved Outcomes through Resource Integration for Children and Youth with Epilepsy (PRIORITY Epilepsy)

Cleveland Clinic

Project Title: Integrating Mobile Provider Access for Telemedicine and Transition (IMPACTT)

Epilepsy Florida

Project Title: Project IMPACT - Improving Medical Pediatric Access to Care through Telemedicine

Michigan Department of Health and Human Services

Project Title: Michigan's Project to Transform Health Care for Children and Youth with Epilepsy (CYE)

Previous Grantees, 2016-2019 Cycle

Boston Medical Center
Project Title: Delivering High Quality Care to Children and Youth with Epilepsy in Urban and Rural Settings

Children's Hospital of Philadelphia
Project Title: Improving Access to Care and Transition Services for Children and Youth with Epilepsy in Eastern Pennsylvania (I-ACT for Epilepsy)

Cleveland Clinic
Project Title: Integrating Mobile Provider Access for Telemedicine and Transition (IMPACTT)

Epilepsy Foundation of Texas
Project Title: Project IMPACT- Emerging Strategies for Children and Youth with Epilepsy in Texas

Epilepsy Foundation of Western/Central Pennsylvania
Project Title: Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy

Michigan Department of Health and Human Services
Project Title: Michigan's Project to Transform Health Care for Children and Youth with Epilepsy (CYE)

Michigan Medicine
Project Title: Access and Quality Care in Pediatric Epilepsy

Previous Grantees, 2013-2016 Cycle

Cleveland Clinic
Project Title: Coordination Access Resources Education 4 Epilepsy (Project CARE 4 Epilepsy)

Epilepsy Foundation of New Jersey
Project Title: Regional Access Collaborative: Improving Diagnosis, Treatment, and Services for Children and Youths with Epilepsy

Epilepsy Foundation of Texas
Project Title: Emerging Strategies for Children and Youth with Epilepsy in Texas

Epilepsy Foundation of Western/Central Pennsylvania
Project Title: State and Regional Approaches to Improving Access to Services for Children/Youth with Epilepsy

Michigan Department of Community Health
Project Title: Michigan Strategies to Improve Access to Services for Children and Youths with Epilepsy

New Hampshire Department of Health and Human Services
Project Title: Facilitating Access to Care for Epilepsy and Transition success (FACETS of NH)

The Parents Place of Maryland
Project Title:  Maryland Access Improvement Project for CYSHCN with Epilepsy