Helpful Epilepsy Resources for Patients and Families

The following resources can provide helpful information about epilepsy for patients and families.

Epilepsy Foundation

• 24/7 Helpline
• Local Epilepsy Foundation chapters are part of a nationwide network that extend programs, services, and events to your local area. From referral assistance to support groups, they can get you the help you need.
• Seizure first aid training and certification
• Epilepsy Advocacy
• Volunteer & Community
• Detailed information on all aspects of understanding and living with epilepsy can be found on their website.

HealthyChildren.org

• Provides information for parents/caregivers on epilepsy and seizures. Topics include children with epilepsy in school, diagnosis & treatment, how to support children with epilepsy, symptoms, causes and treatment, ketogenic diet, tips for parents, seizure first aid, seizure medications, seizure safety, SUDEP, and more.

Cure Epilepsy

• Seizing Life® is a CURE Epilepsy podcast and videocast aiming to inspire empathy, offer helpful stories, and give hope as we search for a cure for epilepsy. Listen as guests share stories and insights on living with and battling epilepsy.
• Information on research, funding opportunities, webinars, clinical trials and other epilepsy information can be found on their webpage.

Danny Did

• Information on epilepsy and SUDEP
• Information, webinars, and grant funding for seizure detection and seizure prediction devices - as well as other technologies

Centers for Disease Control and Prevention

• Provides information about data and statistics, research and surveillance, managing epilepsy, preventing epilepsy, and more.
• Information is also available in Spanish.

Child Neurology Foundation

• Provides information for parents/caregivers on epilepsy. Topics include signs and symptoms, causes, treatments, outlook, related disorders, research, and more.
• Epilepsy Education Hub
• Infantile Spasms Action Network
• Grants & Scholarships

Trusted Hospitals and Health Care organizations

• Reach out to your health care providers and trusted hospitals to see what resources they offer. They may have websites with dedicated epilepsy resources, as well as local support groups or advisory groups that patients and families can join.

American Academy of Pediatrics National Coordinating Center for Epilepsy

• Technical assistance
• Young adult council