Spina Bifida is the most commonly occurring complex congenital birth defect. Early identification and intervention may help individuals with spina bifida get the services they need to lead full lives. Below is a collection of information, research and resources regarding spina bifida.

 

Spina Bifida Overview

Spina bifida is a type of neural tube defect that occurs when the spinal bones fail to close properly during early formation and is the most commonly occurring complex congenital birth defect. It is essential for pediatricians to be knowledgeable about the impact of spina bifida on all the body systems, as well as the medical issues and psychosocial factors associated with spina bifida. Although spina bifida has no cure, early identification and intervention may help individuals with spina bifida get the services they need to lead full lives.

Policy Statements and Clinical Reports

Providing a Primary Care Medical Home for Children and Youth with Spina Bifida

Folic Acid for The Prevention of Neural Tube Defects

Educational Webinars

The webinars in this 2-part series focus on primary and specialty care for individuals with spina bifida. The webinars highlight key recommendations for providing care to individuals diagnosed with spina bifida, as well as provide information to increase understanding on care provision in the medical home, and how that can be used as an aid and communication tool when making decisions regarding care provision and coordination. Emphasis is also placed on the valuable role of both primary care medical home and sub-specialty providers in coordinating effective treatment for individuals with spina bifida.

Basics to Fundamentals on Spina Bifida: Resources for the Practicing Primary Care Clinician

Spina Bifida Care-Coordination: Partnering with Subspecialists in Caring for Children with Spina Bifida

Resources