The scope of this toolkit focuses on the transition to the adult care process at a clinician and patient level. The toolkit highlights best practices from pediatric and adult programs to help inform pediatric and adult care clinicians regarding recommendations for facilitating a successful transition from pediatric to adult focused care for young adults living with Spina Bifida.

Please view the short medical summary video below for a general overview of this toolkit.

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About the Spina Bifida Health Care Transition Toolkit

Learn about the Spina Bifida Health Care Transition Toolkit.

Section 1: Planning for Transition

This transition planning period often spans the time between ages 12-14 years and the age of transfer to adult care, generally between ages 18 and 21 years, but timing can vary based on care needs and health care settings.

Section 2: Transfer to Adult Care

The following procedures should be in place for the youth according to transfer timing, which is based on the individual’s cognitive development, physical abilities, social and financial situation and health status for processing the transfer of care.

Section 3: Integration and Post-transition Care in the Adult Clinic

This section focuses on the integration of adult care with the target audience being the primary care physician (PCP) caring for the young adult with SB, as they are the “care hub” or “medical home” in partnership with the young adult.

Last Updated

07/08/2026

Source

American Academy of Pediatrics