A Spina Bifida Health Care Transition (SB HCT) ECHO was held from February – May 2024. The ECHO covered a variety of topics related to SB HCT. The didactic portions of these videos are available to view. 

Note: None of the presenters had any conflicts of interest with the material presented. 

This project is funded through a cooperative agreement (#5NU38OT000282) between the American Academy of Pediatrics and the Centers for Disease Control and Prevention’s National Center on Birth Defects and Developmental Disabilities.

Session 1

Considerations for Adolescent and Young Adult Care for Individuals with Spina Bifida

Session 2

Healthcare Transition for Patients with Spina Bifida

Session 3

Cultural Consideration and Cognition Related Issues in Health Care Transition

Session 4

Utilizing Guidelines for the Care of People with Spina Bifida

Session 5

Partnering with the Young Adult and Family for Transition: Supporting Decision Making and Guardianship

Session 6

Strategies for a Safe Transfer of Care for People Living with Spina Bifida

Session 7

Coming Together to Create and Share a Consistent Health Care Transition Approach for Individuals with Spina Bifida

Session 8

Finding an Adult Physician - Considerations for Transfer and Integration into Adult-centered Health Care

Session 9

Models of Care for People with Spina Bifida

Last Updated

10/15/2026

Source

American Academy of Pediatrics