The National Coordinating Center for Epilepsy: Innovations in Access to Care for CYE established a multi-disciplinary CYE Advisory Committee (CYE AC) to advise, inform, and guide activities. The CYE AC is composed of national experts in the fields of family engagement/advocacy, pediatric neurology/epilepsy, primary care (pediatrics, family medicine, and nursing), medical home, QI/systems change, evaluation, rural health, health disparities, cultural competence, and development of comprehensive system of services for children with special health care needs.
CYE Advisory Committee
American Academy of Pediatrics
American Academy of Neurology
American Epilepsy Society
American Psychological Association
Association of Maternal and Child Health Programs
Child Neurology Foundation
Citizens United for Research in Epilepsy (CURE)
Danny Did Foundation
Epilepsy Foundation
Family Voices
Got Transition
Mickie's Miracles
National Association of Pediatric Nurse Practitioners
Pediatric Neurology
Primary Care Provider
Transforming Health Care for CYE Learning Collaborative Grantee
Young adults with epilepsy
Young Adult Council
The Young Adult Council is a subset workgroup of the CYE AC. The Young Adult Council includes two CYE AC liaisons to ensure bi-directional communication between the Young Adult Council and the CYE AC. The AAP believes that youth and family engagement in informing strategic direction is critical and greatly values this perspective.
Roles of the Young Adult Council Members:
- Develop a mission statement and objectives for the Council
- Create a peer-to-peer empowerment and support network
- Discuss opportunities to work with the CYE AC and other stakeholders such as implementing a national needs assessment, developing products, publications, and other educational materials
- Participate in quarterly virtual meetings
- Other opportunities as identified
Recruitment:
The center is looking for young adults with epilepsy 18 years and older who are interested in serving as a member of the Young Adult Council. If you are interested in participating or would like more information, please contact epilepsy@aap.org.
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U23MC26252, Awareness and Access to Care for Children and Youth with Epilepsy/ cooperative agreement. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.