Epilepsy Foundation of Texas
Project Title: Emerging Strategies for Children and Youth with Epilepsy in Texas
Goals/Objectives: To improve access to medical homes, availability of specialty care, and training in transitional skills for children and youths with epilepsy. The proposed project will improve access to coordinated care through establishment of a culturally competent Patient Centered Medical Home (PCMH) by: 1) Providing access to comprehensive coordinated healthcare; 2) Increasing levels of health literacy; and 3) Improving transitional skills for CYE into adulthood. Objectives will 1) Utilize advanced technologies such as telemedicine to connect the PCMH to epilepsy specialists; 2) Incorporate learning activities into youth programming to increase transitional skills; and 3) Create and deliver culturally appropriate health literacy.
Michigan Department of Community Health
Project Title: Michigan Strategies to Improve Access to Services for Children and Youths with Epilepsy
Goals/Objectives: The purpose of the project is to: 1) Increase access to family-centered, culturally-competent medical homes, using telemedicine technologies for Children and Youth with Epilepsy (CYE); 2) Use telemedicine to increase and improve partnerships, relationships, and communication between families of CYE and providers; 3) Increase the number of and process for transition planning and care appointments for adolescents and youth from pediatric specialty providers to adult providers; 4) Develop partnership with the Region 4 Genetics Collaborative to link genetic service providers and genetic counselors with families of children and youth with epilepsy; and 5) Increase public family-provider awareness of epilepsy through the dissemination of existing guidelines and practice parameters for CYE related to early identification and treatment of epilepsy.
Epilepsy Foundation of Western/Central Pennsylvania
Project Title: State & Regional Approaches to Improving Access to Services for Children/Youth with Epilepsy
Goals/Objectives: The purpose of the proposed project is to establish a state and regional approach to improving access to healthcare and community services for children/youth with epilepsy by implementing a plan to accomplish the following: 1) Enhance the coordination of care between primary and specialty care through telemedicine and other health education technology systems; 2) Increase the capacity of medical home practices to support children and youth with epilepsy and their families; 3) Increase public awareness of epilepsy/seizure disorders 4) Enhance the knowledge and skills of families and youth in the area of transition to adult life and healthcare; and 5) Ensure that residents in rural communities are provided education that is culturally appropriate.
The Parents Place of Maryland
Project Title: Maryland Access Improvement Project for CYSHCN with Epilepsy
Goals/Objectives: The overarching goal of this project is to improve access to comprehensive, coordinated health care and related services for Maryland CYSHCN-E/SD and to increase the number of CYSHCN-E/SD who have: a medical home; an individual care plan accessible to all providers; a plan to begin taking responsibility for their own health care; and a plan for transition to adult health care. Goals include: 1) Improving the infrastructure needed to assure that services for CYSHCN-E/SD are community-based and easy to use and that adolescents begin to take responsibility for their own health care needs; 2) Increasing the number of CYSHCN-E/SD in rural and medically underserved areas who have access to medical homes that coordinate care with other providers and encourage youth to take increased responsibility for their health care needs; and 3) Supporting the development of family/professional partnerships among CYSHCN-E/SD and the system of care.
New Hampshire Department of Health and Human Services
Project Title: FACETS of NH
Goals/Objectives: 1) Increase access to appropriate care and improve capacity of neurology-primary care providers to effectively co-manage children and youth with epilepsy residing in medically underserved/rural areas of NH; 2) Develop standards and recommendations for a Transition Clinic for Adolescents as they progress from Pediatric Neurology to Adult Neurology, to be piloted at Dartmouth-Hitchcock; 3) Increase community capacity to understand epilepsy, reduce stigma, and enhance partnerships via improved and accessible education awareness initiatives for families, primary care providers, and community providers regarding current standards of care, diagnostic, and treatment concerns.
Epilepsy Foundation of New Jersey
Project Title: Regional Access Collaborative: Improving Diagnosis, Treatment, and Services for Children and Youths with Epilepsy
Goals/Objectives: Major Goal #1: To increase awareness of epilepsy and improve access to coordinated and comprehensive care for children and youths with epilepsy that promote early recognition, timely diagnosis, and access to appropriate care, particularly to underserved geographical areas and groups. 1) Develop Improving Accurate Diagnosis & Treatment of Epilepsy: A Training for Pediatric Practice Teams; 2) Conduct 21 trainings at large pediatric practices and Federally Qualified Health Centers (FQHCs) in Connecticut, New Jersey, and New York. 3) Present training at state Title V meeting and at state school nurse and Department of Health Conferences. Major Goal #2: Enhance the knowledge of children and youths with epilepsy and their families about epilepsy, treatment, health, and local community services. 1) Organize parent focus groups, which will allow parents to give valuable feedback about what services they are receiving and what services are needed. 2) Connect children and youth with epilepsy and their families to the services and local resources including the Epilepsy Foundation and Family Voices. Online and print materials will be made available.
The Cleveland Clinic Foundation
Project Title: Coordination Access Resources Education 4 Epilepsy (Project CARE 4 Epilepsy)
Goals/Objectives: To improve care coordination; provide patient and family education; access early mental health screening; and increase family and patient engagement. Objectives 1) Create a Care Coordination Clinic that will improve effectiveness and efficiency for youth with epilepsy and their families. 2) Create a Transition Clinic using the six core elements of health care transition identified by the National Healthcare Transition center. 3) Increase knowledge about epilepsy and epilepsy care for families and youth with epilepsy. 4) Provide a bullying prevention program for CYE. 5) Increase social support for youth with epilepsy and their families. 6) Disseminate the Mental Health and Epilepsy toolkit to professionals in epilepsy care and family members of Children with Epilepsy (CYE).