Grantees

​Coordinatin​g Center on Epilepsy

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​Grantees

The HRSA Epilepsy Program integrates public health, epilepsy affiliates, and providers to develop more seamless services across primary and specialty care, educational services, and other community resources.

The following is a list of grantees and their projects for the 2016-2019 cycle:​

Boston Medical Center 
Project Title: Delivering High Quality Care to Children and Youth with Epilepsy in Urban and Rural Setting

Goals/Objectives:  

  • Improve access to quality integrated care/ intervention;

  • Improve transitional care for CYE

  • Create and cultivate a CYE quality improvement learning collaborative 

View abstract

Children's Hospital of Philadelphia 
Project Title: Improving Access to Care and Transition Services for Children and Youth with Epilepsy in Eastern Pennsylvania (I-ACT for Epilepsy)
 
Goals/Objectives

  • Increase by 25% the number of CYE in the target population who receive care through a patient/family-centered medical home;

  • Increase by 50% the number of CYE served by the clinical sites who have a youth transition plan in place;

  • Increase by 25% the number of CYE in the target population who are from populations experiencing health disparities and/or residing in medically underserved and/or rural areas that have access to specialized epilepsy care;

  • Increase by 25% the number of CYE in the target population reporting use of comprehensive and coordinated treatment and care plans;

  • Increase by 25% the proportion of CYE served by the clinical sites receiving coordinated and comprehensive health care through telemedicine visits;

  • Increase by 20% the number of CYE in the target population who are from populations experiencing health disparities and/or residing in medically underserved and/or rural areas receiving coordinated and comprehensive health care through telemedicine visits;

  • Implement a pediatric to adult epilepsy transition infrastructure using the Got Transition Six Core Elements Framework across all clinical sites; and

  • Increase by 50% the number of clinical sites with a plan in place to use telemedicine and mHealth to coordinate care for CYE from populations experiencing health disparities.

View abstract

Epilepsy Foundation of Texas
Project Title:  Emerging Strategies for Children and Youth with Epilepsy in Texas 

Goals/Objectives: 

  • Seven clinics will have increased telemedicine services to CYE, including those CYE experiencing health disparities, and/or living in medically underserved/rural areas;

  • Seven clinics will have a pediatric to adult transition infrastructure in place using Got Transition: Six Core Elements of Health Care Transition Model;

  • Improve care to 1000 CYE including 200 CYE experiencing health disparities/living in Medically Underserved Areas (MUA)/rural area.

View abstract

Epilepsy Foundation of Western/Central Pennsylvania  
Project Title: Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy 

Goals/Objectives:  

The goal of this initiative is to utilize quality improvement methods and measure outcomes to improve access to coordinated and comprehensive quality care for CYE, with an emphasis on populations experiencing health disparities and CYE residing in underserved and/or rural communities. The EFWCP will work to:

  • Increase the capacity of medical home and pediatric practices to support CYE;

  • Establish primary care clinical sites to conduct telemedicine appointments;

  • Establish and implement epilepsy pediatric to adult transition models in clinical sites based on the Got Transition Six Core Elements Framework;

  • Establish and implement a program of education to increase awareness and knowledge of epilepsy and,

  • Implement quality improvement initiatives for the use of telehealth technologies to educate CYE and pediatric practitioners using telehealth/ehealth and mhealth. 

View abstract

Michigan Department of Health and Human Services 
Project Title: Michigan Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy

Goals/Objectives

  • Michigan children and youth with epilepsy (CYE) will receive comprehensive and coordinated care within a patient-centered medical home;

  • Michigan youth with epilepsy will have a youth transition plan to enable seamless transition to adult care and services;

  • Michigan CYE will have access to appropriate specialized epilepsy care; and

  • Michigan families of CYE and youth with epilepsy will be fully engaged in shared decision-making at all levels of services.

View abstract

University of Michigan
Project Title:  Access and Quality Care in Pediatric Epilepsy

Goals/Objectives: 

This proposed project will utilize three key strategies to improve access to quality health care for children and youth with epilepsy (CYE):

  • Establishment of a technology-based learning collaborative for epilepsy education of CYE, their families and providers;

  • Development of a transition program for adolescents with epilepsy from pediatric to adult specialty care;

  • Expansion of a robust medical home-based telemedicine system to incorporate an innovative tiered telemedicine system of care that links community neurologists in rural and medically underserved areas with the Level 4 Pediatric Epilepsy Center at the University of Michigan. 

View abstract

​The following is a current list of grantees and their projects:

Boston Medical Center 
Project Title:  Delivering High Quality Care to Children and Youth with Epilepsy in Urban and Rural Settings
Goals/Objectives:   The overall goal of this project is to: (1) improve access to quality integrated care/ intervention; (2) improve transitional care for CYE; (3) create and cultivate a CYE quality improvement learning collaborative
View abstract​

​Children's Hospital of Philadelphia ​
Project Title:   Improving Access to Care and Transition Services for Children and Youth with Epilepsy in Eastern Pennsylvania (I-ACT for Epilepsy) 
Goals/Objectives:  The overall goal of this project is to 1) increase by 25% the number of CYE in the target population who receive care through a patient/family-centered medical home; 2) increase by 50% the number of CYE served by the clinical sites who have a youth transition plan in place; 3) increase by 25% the number of CYE in the target population who are from populations experiencing health disparities and/or residing in medically underserved and/or rural areas that have access to specialized epilepsy care; 4) increase by 25% the number of CYE in the target population reporting use of comprehensive and coordinated treatment and care plans; 5) increase by 25% the proportion of CYE served by the clinical sites receiving coordinated and comprehensive health care through telemedicine visits; 6) increase by 20% the number of CYE in the target population who are from populations experiencing health disparities and/or residing in medically underserved and/or rural areas receiving coordinated and comprehensive health care through telemedicine visits; 7) implement a pediatric to adult epilepsy transition infrastructure using the Got Transition Six Core Elements Framework across all clinical sites; and 8) increase by 50% the number of clinical sites with a plan in place to use telemedicine and mHealth to coordinate care for CYE from populations experiencing health disparities. 
View abstract​​

Cleveland Clinic Foundation

Project Title: Integrating Mobile Provider Access for Telemedicine and Transition (IMPACTT)
Goals/Objectives: The goals of the project are: 1) to provide care to CYE through a patient/family-centered medical home; 2) to provide transition planning for CYE; 3) to implement telemedicine with CYE and their families at CCF main and 9 clinical sites; 4) to establish a Learning Collaborative involving 9 pediatric primary care sites; and 5) to increase outreach and family engagement, using educational webinars.
View abstract​​

Epilepsy Foundation of Texas
Project Title:  Emerging Strategies for Children and Youth with Epilepsy in Texas 
Goals/Objectives:  The goals of the program are: 1) Seven clinics will have increased telemedicine services to CYE, including those CYE experiencing health disparities, and/or living in medically underserved/rural areas; 2) Seven clinics will have a pediatric to adult transition infrastructure in place using Got Transition: Six Core Elements of Health Care Transition Model; 3) Improve care to 1000 CYE including 200 CYE experiencing health disparities/living in Medically Underserved Areas (MUA)/rural area
View abstract​

Epilepsy Foundation of Western/Central Pennsylvania​ 
Project Title: Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy 
Goals/Objectives:  The goal of this initiative is to utilize quality improvement methods and measure outcomes to improve access to coordinated and comprehensive quality care for CYE, with an emphasis on populations experiencing health disparities and CYE residing in underserved and/or rural communities. The EFWCP will work to 1) Increase the capacity of medical home and pediatric practices to support CYE; 2) Establish primary care clinical sites to conduct telemedicine appointments; 3) Establish and implement epilepsy pediatric to adult transition models in clinical sites based on the Got Transition Six Core Elements Framework; 4) Establish and implement a program of education to increase awareness and knowledge of epilepsy and, 5) Implement quality improvement initiatives for the use of telehealth technologies to educate CYE and pediatric practitioners using telehealth/ehealth and mhealth. 
View abstract​

Michigan Department of Health and Human Services 
Project Title: Michigan Strategic Approaches to Improving Access to Quality Health Care for Children and Youth with Epilepsy
Goals/Objectives:  The goals of this project are:  1) Michigan children and youth with epilepsy (CYE) will receive comprehensive and coordinated care within a patient-centered medical home; 2) Michigan youth with epilepsy will have a youth transition plan to enable seamless transition to adult care and services; 3) Michigan CYE will have access to appropriate specialized epilepsy care; and 4) Michigan families of CYE and youth with epilepsy will be fully engaged in shared decision-making at all levels of services.
View abstract

University of Michigan
Project Title:  Access and Quality Care in Pediatric Epilepsy
Goals/Objectives:   This proposed project will utilize three key strategies to improve access to quality health care for children and youth with epilepsy (CYE): 1) establishment of a technology-based learning collaborative for epilepsy education of CYE, their families and providers; 2) development of a transition program for adolescents with epilepsy from pediatric to adult specialty care; 3) expansion of a robust medical home-based telemedicine system to incorporate an innovative tiered telemedicine system of care that links community neurologists in rural and medically underserved areas with the Level 4 Pediatric Epilepsy Center at the University of Michigan.
View abstract​

​Grantees 2013-2016
Epilepsy Foundation of Texas
Project Title: Emerging Strategies for Children and Youth with Epilepsy in Texas
Goals/Objectives:  To improve access to medical homes, availability of specialty care, and training in transitional skills for children and youths with epilepsy. The proposed project will improve access to coordinated care through establishment of a culturally competent Patient Centered Medical Home (PCMH) by: 1) Providing access to comprehensive coordinated healthcare; 2) Increasing levels of health literacy; and 3) Improving transitional skills for CYE into adulthood. Objectives will 1) Utilize advanced technologies such as telemedicine to connect the PCMH to epilepsy specialists; 2) Incorporate learning activities into youth programming to increase transitional skills; and 3) Create and deliver culturally appropriate health literacy.
View abstract

Michigan Department of Community Health
Project Title: Michigan Strategies to Improve Access to Services for Children and Youths with Epilepsy
Goals/Objectives: The purpose of the project is to: 1) Increase access to family-centered, culturally-competent medical homes, using telemedicine technologies for Children and Youth with Epilepsy (CYE); 2) Use telemedicine to increase and improve partnerships, relationships, and communication between families of CYE and providers; 3) Increase the number of and process for transition planning and care appointments for adolescents and youth from pediatric specialty providers to adult providers; 4) Develop partnership with the Region 4 Genetics Collaborative to link genetic service providers and genetic counselors with families of children and youth with epilepsy; and 5) Increase public family-provider awareness of epilepsy through the dissemination of existing guidelines and practice parameters for CYE related to early identification and treatment of epilepsy.
View abstract

Epilepsy Foundation of Western/Central Pennsylvania
Project Title: State & Regional Approaches to Improving Access to Services for Children/Youth with Epilepsy
Goals/Objectives: The purpose of the proposed project is to establish a state and regional approach to improving access to healthcare and community services for children/youth with epilepsy by implementing a plan to accomplish the following: 1) Enhance the coordination of care between primary and specialty care through telemedicine and other health education technology systems; 2) Increase the capacity of medical home practices to support children and youth with epilepsy and their families; 3) Increase public awareness of epilepsy/seizure disorders 4) Enhance the knowledge and skills of families and youth in the area of transition to adult life and healthcare; and 5) Ensure that residents in rural communities are provided education that is culturally appropriate.
View abstract

The Parents Place of Maryland
Project Title: Maryland Access Improvement Project for CYSHCN with Epilepsy
Goals/Objectives: The overarching goal of this project is to improve access to comprehensive, coordinated health care and related services for Maryland CYSHCN-E/SD and to increase the number of CYSHCN-E/SD who have: a medical home; an individual care plan accessible to all providers; a plan to begin taking responsibility for their own health care; and a plan for transition to adult health care. Goals include: 1) Improving the infrastructure needed to assure that services for CYSHCN-E/SD are community-based and easy to use and that adolescents begin to take responsibility for their own health care needs; 2) Increasing the number of CYSHCN-E/SD in rural and medically underserved areas who have access to medical homes that coordinate care with other providers and encourage youth to take increased responsibility for their health care needs; and 3) Supporting the development of family/professional partnerships among CYSHCN-E/SD and the system of care.
View abstract

New Hampshire Department of Health and Human Services
Project Title: FACETS of NH
Goals/Objectives: 1) Increase access to appropriate care and improve capacity of neurology-primary care providers to effectively co-manage children and youth with epilepsy residing in medically underserved/rural areas of NH; 2) Develop standards and recommendations for a Transition Clinic for Adolescents as they progress from Pediatric Neurology to Adult Neurology, to be piloted at Dartmouth-Hitchcock; 3) Increase community capacity to understand epilepsy, reduce stigma, and enhance partnerships via improved and accessible education awareness initiatives for families, primary care providers, and community providers regarding current standards of care, diagnostic, and treatment concerns.
View abstract

Epilepsy Foundation of New Jersey
Project Title: Regional Access Collaborative: Improving Diagnosis, Treatment, and Services for Children and Youths with Epilepsy
Goals/Objectives: Major Goal #1: To increase awareness of epilepsy and improve access to coordinated and comprehensive care for children and youths with epilepsy that promote early recognition, timely diagnosis, and access to appropriate care, particularly to underserved geographical areas and groups. 1) Develop Improving Accurate Diagnosis & Treatment of Epilepsy: A Training for Pediatric Practice Teams; 2) Conduct 21 trainings at large pediatric practices and Federally Qualified Health Centers (FQHCs) in Connecticut, New Jersey, and New York. 3) Present training at state Title V meeting and at state school nurse and Department of Health Conferences. Major Goal #2:  Enhance the knowledge of children and youths with epilepsy and their families about epilepsy, treatment, health, and local community services. 1) Organize parent focus groups, which will allow parents to give valuable feedback about what services they are receiving and what services are needed. 2) Connect children and youth with epilepsy and their families to the services and local resources including the Epilepsy Foundation and Family Voices. Online and print materials will be made available.
View abstract

The Cleveland Clinic Foundation
Project Title: Coordination Access Resources Education 4 Epilepsy (Project CARE 4 Epilepsy)
Goals/Objectives: To improve care coordination; provide patient and family education; access early mental health screening; and increase family and patient engagement. Objectives 1) Create a Care Coordination Clinic that will improve effectiveness and efficiency for youth with epilepsy and their families. 2) Create a Transition Clinic using the six core elements of health care transition identified by the National Healthcare Transition center. 3) Increase knowledge about epilepsy and epilepsy care for families and youth with epilepsy. 4) Provide a bullying prevention program for CYE. 5) Increase social support for youth with epilepsy and their families. 6) Disseminate the Mental Health and Epilepsy toolkit to professionals in epilepsy care and family members of Children with Epilepsy (CYE).
View abstract

The Coordinating Center is a cooperative agreement between the Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP) to establish a multifaceted community-based system of care that ensures that Children and Youth with Epilepsy (CYE) have access to the medical, social, and other supports and services that they require to achieve optimal health outcomes and improved quality of life. This Web site is funded by the US Department of Health and Human Services (HHS), Health Resources and Services Administration (HRSA).​​

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