Project ECHO

NATIONAL COORDINATING CENTER for EPILEPSY

Project ECHO

The ECHO program builds a bi-directional virtual knowledge network.

Project ECHO is a telementoring program designed to create communities of learners by bringing together health care providers and experts in topical areas using didactic and case‐based presentations, fostering an “all learn, all teach” approach. Watch this video to learn more about Project ECHO. 

AAP Epilepsy and Comorbidities ECHO

In November 2013, the AAP partnered with the ECHO Institute to deliver a 1-year pilot CYE TeleECHO clinic in New Mexico. The pilot was a success and was expanded to five other states (Illinois, Colorado, New York, Kansas, and Missouri). Together, these multi-disciplinary teams created a standardized curriculum comprised of 13 sessions using evidence-based and/or evidence-informed clinical guidelines and practices on the diagnosis and management of epilepsy, while also integrating team-based care among patients, families, primary and subspecialty care practitioners in a patient/family-centered medical home. 

The CYE ECHO program has evolved to integrate quality improvement to generate practice change. In Spring 2018, the AAP launched Epilepsy and Comorbidities ECHO. The American Academy of Neurology measure set for Epilepsy was utilized to assist primary care practices in improving quality of care through evidence-based processes to reach desired outcomes. 

Using this as the framework, this program used QI methodology to improve:

  • Early and accurate diagnosis
  • Reduction and monitoring of anti-seizures therapy
  • Improved care coordination
  • Patient-centered care
  • Timely and appropriate referrals
  • Health care transitions

The AAP Epilepsy and Comorbidities ECHO served as an interactive forum for healthcare professionals to improve access to quality healthcare for CYE in their respective practices. The ECHO program builds a bi-directional virtual knowledge network whereby participants form the recruited primary care practices learn from experts and each other, gaining access to evidence-based and capacity-building 

AAP Epilepsy and Comorbidities Standardized Curriculum

​Session #
​Title
​1
​Epilepsy Overview
​2
​Workflow Processes and the PDSA Cycle
​3
​Comorbidities of Epilepsy 
​4
​Testing and Diagnosis of Epilepsy
​5
​Medication Treatment
​6
​Safety and Education for Epilepsy
​7
​Role of PCP in a Medical Home Setting
​8
​Transition to Adult Care


For additional information, please contact Amy Shah, MPH.
For more information about the AAP ECHO Superhub, click here.

Managing Students with Seizures ECHO: The Importance of School Nurses

The American Academy of Pediatrics National Coordinating Center for Epilepsy and Epilepsy Foundation of America are hosting a tri-weekly (every three weeks), eight-session learning collaborative, Managing Students with Seizures ECHO: The Importance of School Nurses. Project ECHO® (Extension for Community Healthcare Outcomes) is a telementoring platform designed to create communities of learners by bringing together health care providers and subject matter experts using didactic and case-based presentations, fostering an “All TEACH, ALL LEARN” approach.  

Participating school nurses can expect to: 

  • Increase knowledge and self-efficacy around managing students with seizures. 
  • Increase communication between school nurses, other school personnel and parents to improve care coordination of students with seizures. 
  • Learn best practices to create a safe and supportive school environment for students with seizures. 
  • Gain access to resources to support the care of students with seizures. 

School nurses are eligible to participate and encouraged to invite other school personnel to join as applicable. Continuing education credits are available at no cost. As part of the registration process, participants will be asked to provide additional information about their school.  

AAP Managing Students with Seizures ECHO Standardized Curriculum

​Session #
Title
​1
​Seizures and Epilepsy - The Importance of Seizure Recognition
​2
​The Latest in Seizure First Aid and Use of Rescue Therapies
​3
​Managing Seizures in a School Setting: Delegating and Training
​4
​Comorbidities and Impact on Mood, Learning and School
​5
​Social and Emotional Impact of Epilepsy on Students with Seizures
​6
​Managing Seizure Medications and Referral to Comprehensive Epilepsy Care
​7
​When Events are Not Epilepsy
​8
​504, IEP Plans, and Other Resources for Students with Seizures


For additional information, please contact Amy Shah, MPH.
For more information about the AAP ECHO Superhub, click here.

Transition to ECHO

The AAP Transition ECHO serves as a forum for health care professionals to learn how to successfully transition youth from pediatrics to the adult care system. This virtual community builds a bi-directional knowledge network whereby participants learn from experts and each other, gaining access to evidence-based and capacity-building resources. Each clinic includes a brief presentation by a national transition expert, followed by in-depth, practice-based presentations for discussion, problem-solving guidance and recommendations. All attendees are invited to share and actively participate. Through regular attendance, participants will use quality improvement techniques to support planning and transfer of care to ensure that all youth and young adults, including those with epilepsy, successfully transition into adult care.

All healthcare professionals, including office staff, who have an interest in improving transitional care for youth and young adults (including patients with epilepsy) are welcome to participate. Participants will receive the following benefits from participating in the ECHO clinic:

  • Receive up-to-date information on clinical recommendations from the Clinical Report on Transition and nationally recognized transition model, “Six Core Elements of Health Care Transition”.
  • Acquire evidence-based health care transition tools and resources.
  • Identify quality improvement lessons learned around transition from colleagues caring for youth and young adults with epilepsy.
  • Access guidance and recommendations related to transition from peers and national experts.

In partnership with Got Transition, a standardized curriculum has been developed with the flexibility to evolve as new information becomes available as well as additional feedback is received from clinic participants.

AAP Transition Standardized Curriculum

​Session #
​Title
​1
​Overview of Health Care Transition
​2
​How to Begin a Health Care Transition Process for Your Practice
​3
​Adult Approach to Health Care; Find and Partner with Adult Clinicians
​4
​Taking it to the Streets: Family Engagement
​5
​Coming Together: Create and Share a Consistent Health Care Transition Approach (Policy)
​6
​Partner to Assess Health Care Transition Readiness and Add Transition to the Plan of Care
​7
​Transfer and Integration into Adult Health Care: Clinician Roles
​8
​Guardianship

For additional information, please contact Amy Shah, MPH
For more information about the AAP ECHO Superhub, click here.

Need more information, technical assistance, or training? Visit our resources page! 

References for this page can be found here.

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U23MC26252, Awareness and Access to Care for Children and Youth with Epilepsy/ cooperative agreement. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

Advertising Disclaimer
            print           email           share