References

​​NATIONAL COORDINATING CENTER for EPILEPSY

​Referen​ces

1Fisher RS, Acevedo C, Arzimanoglou A, et al. ILAE official report: a practical clinical definition of epilepsy. Epilepsia. 2014;55(4):475-82

2Child and Adolescent Health Measurement Initiative. 2016-2017 National Survey of Children's Health (NSCH) data query. Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration's Maternal and Child Health Bureau (HRSA MCHB). Retrieved 12/19/18 from www.childhealthdata.org. CAHMI: www.cahmi.org.

3Institute of Medicine (US) Committee on the Public Health Dimensions of the Epilepsies; England MJ, Liverman CT, Schultz AM, et al., editors. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington (DC): National Academies Press (US); 2012. 7, Educating People with Epilepsy and Their Families. Available from: https://www.ncbi.nlm.nih.gov/books/NBK100608/ 

4CDC Features. Centers for Disease Control and Prevention. https://www.cdc.gov/features/epilepsy-in-children/ind ex.html/. Published September 18, 2017. Accessed January 4, 2018 

5Zack MM, Kobau R. National and state estimates of the numbers of adults and children with active epilepsy — United States, 2015. MMWR. 2017;66:821–825

6Devinsky, Orrin. "Sudden, Unexpected Death in Epilepsy." New England Journal of Medicine, vol. 365, 2011, pp. 1801 -1811,  https://www.nejm.org/doi/full/10.1056/NEJMra1010481. Accessed 11 December 2018. 

7Kossoff E. Ketogenic Diet. Epilepsy Foundation. https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/dietary-therapies/ketogenic-diet. Published October 2017. Accessed January 11, 2018.

8Halevy A, Peleg-Weiss L, Cohen R, Shuper A. An Update on the Ketogenic Diet, 2012. Rambam Maimonides Medical Journal. 2012;3(1). doi:10.5041/rmmj.10072.

9Kim J-M. Ketogenic diet: Old treatment, new beginning. Clinical Neurophysiology Practice. 2017;2:161-162. doi:10.1016/j.cnp.2017.07.001.

10Halevy A, Peleg-Weiss L, Cohen R, Shuper A. An Update on the Ketogenic Diet, 2012. Rambam Maimonides Medical Journal. 2012;3(1). doi:10.5041/rmmj.10072.

11Luat AF, Coyle L, Kamat D. The Ketogenic Diet: A Practical Guide for Pediatricians. Pediatric Annals. 2016;45(12). doi:10.3928/19382359-20161109-01.

12Ketogenic Diet. https://www.pediatrics.emory.edu/divisions/neurology/education/ketogenic.html. Accessed January 10, 2018.

13Attention-Deficit / Hyperactivity Disorder (ADHD). Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/adhd/data.html. Published January 24, 2018. Accessed February 7, 2018.

14Williams AE, Giust JM, Kronenberger WG, Dunn DW. Epilepsy and attention-deficit hyperactivity disorder: links, risks, and challenges. Neuropsychiatric Disease and Treatment. 2016;12:287-296. doi:10.2147/NDT.S81549

15Attention-Deficit / Hyperactivity Disorder (ADHD). Centers for Disease Control and Prevention. https://www.cdc.gov/ncbddd/adhd/data.html. Published January 24, 2018. Accessed February 7, 2018.

16Diagnosing ADHD in Children: Guidelines & Information for Parents. HealthyChildren.org. https://www.healthychildren.org/English/health-issues/conditions/adhd/Pages/Diagnosing-ADHD-in-Children-Guidelines-Information-for-Parents.aspx. Accessed January 9, 2018..

17NICHQ Vanderbilt Assessment Scales used for diagnosing ADHD. http://www.nichq.org/sites/default/files/resource-file/NICHQ_Vanderbilt_Assessment_Scales_0.pdf. Published 2001. Accessed 2017.

18ADHD: Clinical Practice Guideline for the Diagnosis, Evaluation, and Treatment of Attention-Deficit/Hyperactivity Disorder in Children and Adolescents. Pediatrics. 2011;128(5):1007-1022. doi:10.1542/peds.2011-2654

19Learning Disabilities. Epilepsy Society. https://www.epilepsysociety.org.uk/learning-disabilities#.WlTr75M-dZ0. Published February 6, 2017. Accessed January 9, 2018.

20Types of Learning Disabilities. Learning Disabilities Association of America. https://ldaamerica.org/types-of-learning-disabilities/. Published 2018. Accessed January 9, 2018.

21Epilepsy and Learning Disabilities. Learning Disabilities Association of America. https://ldaamerica.org/epilepsy-and-learning-disabilities/. Published November 19, 2013. Accessed January 9, 2018.

22Primary Care Tools. Mental health initiatives. https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/Mental-Health/Pages/Primary-Care-Tools.aspx. Accessed February 8, 2018.

23Cheung AH, Zuckerbrot RA, Jensen PS, Ghalib K, Laraque D, Stein REK. Guidelines for Adolescent Depression in Primary Care (GLAD-PC): II. Treatment and Ongoing Management. Pediatrics. 2007;120(5). doi:10.1542/peds.2006-1395.

24Thomas S, Hovinga ME, Rai D, Lee BK. Brief Report: Prevalence of Co-occurring Epilepsy and Autism Spectrum Disorder: The U.S. National Survey of Children's Health 2011–2012. SpringerLink. https://link.springer.com/article/10.1007/s10803-016-2938-7. Published October 17, 2016. Accessed January 4, 2018.

25Autism Spectrum Disorder Fact Sheet. National Institute of Neurological Disorders and Stroke. https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Autism-Spectrum-Disorder-Fact-Sheet. Published September 2015. Accessed January 4, 2018.

26Achkar CME, Spence SJ. Clinical characteristics of children and young adults with co-occurring autism spectrum disorder and epilepsy. Epilepsy & Behavior. 2015;47:183-190. doi:10.1016/j.yebeh.2014.12.022.

27Traumatic Brain Injury & Concussion. Centers for Disease Control and Prevention. https://www.cdc.gov/traumaticbraininjury/get_the_facts.html. Published April 27, 2017. Accessed January 14, 2018.

28Concussion and Related Neurotrauma. Gillette Children's Specialty Healthcare. https://www.gillettechildrens.org/conditions-care/concussion-and-related-neurotrauma. Published 2017. Accessed January 14, 2018.

29Chen W, Li M-D, Wang GF, Yang X-F, Liu L, Meng F-G. Risk of post-traumatic epilepsy after severe head injury in patients with at least one seizure. Neuropsychiatric Disease and Treatment. 2017;Volume 13:2301-2306. doi:10.2147/ndt.s141486

30Ritter AC, Wagner AK, Fabio A, et al. Incidence and risk factors of posttraumatic seizures following traumatic brain injury: A Traumatic Brain Injury Model Systems Study. Epilepsia 2016; 57:1968.

31Schachter S, Evans R. Post-traumatic seizures and epilepsy. Post-traumatic seizures and epilepsy. http://www.uptodate.com/contents/post-traumatic-seizures-and-epilepsy. Published April 4, 2017. Accessed January 13, 2018.

32Keret A, Bennett-Back O, Rosenthal G, et al. Posttraumatic epilepsy: long-term follow-up of children with mild traumatic brain injury. Journal of Neurosurgery: Pediatrics. 2017;20(1):64-70. doi:10.3171/2017.2.peds16585.

33Huguenard AL, Miller BA, Sarda S, Capasse M, Reisner A, Chern JJ. Mild traumatic brain injury in children is associated with a low risk for posttraumatic seizures. Journal of Neurosurgery: Pediatrics. 2016;17(4):476-482. doi:10.3171/2015.7.peds14723.

34Park JT, Chugani HT. Post-Traumatic Epilepsy in Children - Experience From a Tertiary Referral Center. Pediatric Neurology. 2015;52(2):174-181. doi:10.1016/j.pediatrneurol.2014.09.013.

35Wagner JL, Ferguson PL, Kellermann T, Smith G, Brooks B. Behavioral health referrals in pediatric epilepsy. Epilepsy Research. 2016;127:72-77. doi:10.1016/j.eplepsyres.2016.08.017.

36Szaflarski M. Social determinants of health in epilepsy. Epilepsy & Behavior. 2014;41:283-289. doi:10.1016/j.yebeh.2014.06.013.

37Institute of Medicine (US) Committee on the Public Health Dimensions of the Epilepsies; England MJ, Liverman CT, Schultz AM, et al., editors. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington (DC): National Academies Press (US); 2012. 7, Educating People with Epilepsy and Their Families. Available from: https://www.ncbi.nlm.nih.gov/books/NBK100608/

38Epilepsy Foundation. https://www.epilepsy.com/learn/early-death-and-sudep/sudep. Published July 21, 2013. Accessed December 12, 2018.

39Sudden Unexpected Death in Epilepsy (SUDEP). https://www.cdc.gov/epilepsy/about/sudep/index.htm. Published May 17, 2018. Accessed December 19, 2018.

40Epilepsy Foundation. (2018). Seizure First Aid. [online] Available at: http://www.epilepsy.com/start-here/seizure-first-aid [Accessed 4 Oct. 2018].

41Diekema, et al. Pediatrics. 1993; 91:612-6

42Harden et al. Practice Guideline Summary: SUDEP Incidences Rates and Risk Factors (AAN and AES) Epilepsy Curr. 2017 May-June; 17(3): 180-187.

43Epilepsy Foundation. (2018). The Role of Seizure Alerts. [online] Available at: https://www.epilepsy.com/learn/early-death-and-sudep/sudep/role-seizure-alerts [Accessed 4 Oct. 2018].

44Epilepsy Foundation. (2018). Playing Sports and Other Activities. [online] Available at: https://www.epilepsy.com/living-epilepsy/parentsand-caregivers/about-kids/playing-sports-and-other-activities

45Kenney MK, Mann M. Assessing Systems of Care for US Children with Epilepsy/Seizure Disorder. Epilepsy Research and Treatment. 2013;2013:1-11. doi:10.1155/2013/825824.

46GotTransition.org. http://www.gottransition.org/. Published 2018. Accessed January 17, 2018.

47Nabbout R, Camfield CS, Andrade DM, et al. Treatment issues for children with epilepsy transitioning to adult care. Epilepsy & Behavior. 2017;69:153-160. doi:10.1016/j.yebeh.2016.11.008.

48Lluxon. Survey: Siblings of children with epilepsy feel protective, not resentful. RTI. https://www.rti.org/news/survey-siblings-children-epilepsy-feel-protective-not-resentful. Published December 13, 2016. Accessed February 8, 2018.

49Franklin RC, Pearn JH, Peden AE. Drowning fatalities in childhood: the role of pre-existing medical conditions. Archives of Disease in Childhood. http://adc.bmj.com/content/early/2017/05/22/archdischild-2017-312684. Published May 22, 2017. Accessed February 8, 2018.

50Seizure Tracker . Seizure Tracker ® - Your free comprehensive resource for Seizure Logging. https://seizuretracker.com/. Accessed January 12, 2018.

51Schachter S, Shafer P, Sirven J. Developing My Seizure Plan 101. Epilepsy Foundation. https://www.epilepsy.com/learn/seizure-first-aid-and-safety/adapting-first-aid-plans/developing-my-seizure-plan-101. Published August 2013. Accessed January 12, 2018.

52Types of Seizures. Centers for Disease Control and Prevention. https://www.cdc.gov/epilepsy/about/types-of-seizures.htm. Published January 17, 2018. Accessed December 20, 2018

53American Academy of Neurology. 2018 Insight Report. https://www.aan.com/siteassets/home-page/conferences-and-community/member-engagement/learn-about-aan-committees/board-planning/2018-insights-report.pdf. Published January 22, 2018. Accessed December 20, 2018.

54Child Neurology Foundation. I Am a Healthcare Provider. https://www.childneurologyfoundation.org/providers-or-researchers/the-field-of-child-neurology/ Published 2018. Accessed December 20, 2018.

55Institute of Medicine (US) Committee on the Public Health Dimensions of the Epilepsies; England MJ, Liverman CT, Schultz AM, et al., editors. Epilepsy Across the Spectrum: Promoting Health and Understanding. Washington (DC): National Academies Press (US); 2012. 5, Health Professional Education. Available from: https://www.ncbi.nlm.nih.gov/books/NBK100591/

56HRSA Maternal and Child Health. Children with Special Health Care Needs. https://mchb.hrsa.gov/maternal-child-health-topics/children-and-youth-special-health-needs. Published September 2018. Accessed December 20, 2018.

57Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health. 2011/12 National Survey of Children's Health. http://www.nschdata.org. Accessed December 20, 2018.

58McPherson M, Arango P, Fox H, et al. A new definition of children with special health care needs. Pediatrics.1998;102:137-139.

59Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health. 2009/10 National Survey of Children with Special Health Care Needs. http://www.nschdata.org. Accessed May 15,2016

60Bedingfield K. The pivotal role of primary care providers in epilepsy care. Elite Healthcare Website. https://www.elitecme.com/resource-center/nursing/the-pivotal-role-of-primary-care-providers-in-epilepsy-care/. Published September 12, 2017. Accessed December 20, 2018.

61Kataoka SH, Zhang L, Wells KB. Unmet need for mental health care among U.S children: variation by ethnicity and insurance status. AM J Psychiatry. 2002; 159: 1548-1555.

62Berenson J, Doty MM, Abrams MK, Shih A. Achieving Better Quality of Care for Low-Income Populations: The Role of Health Insurance and the Medical Home for Reducing Health Inequities. Issue brief (Commonwealth Fund). 2012; 11:1.

63American Academy of Pediatrics. Getting Started in Telehealth. https://www.aap.org/en-us/professional-resources/practice-transformation/telehealth/Pages/Getting-Started-in-Telehealth.aspx . Published 2018. Accessed December 21, 2018. 

64Scheffer, IE. et al, Epilepsia; 58(4):512–521 (2017).

65Sánchez Fernández I, et al. Neurology; 92:e418-e428 (2019).

66Wang J, et al. Seizure, 44:11-20 (2017).

67Ream MA & Patel AD. Epilepsia 56:1505-1514 (2015).

68Moeschler JB, Shevell M, & Committee on Genetics. Pediatrics; 134: e903-e918. (2014).

69Mullen SA, et al. Neurology; 81:1507-1514 (2013).

70Helbig I, et al. Hum Mutat; 39(11):1476-1484 (2018).

71Myers KA, Johnstone DL, & Dyment DA. Clin Genet; 95:95-111 (2019).

72Farwell KD, et al. Genetics in Medicine 17: 578–586 (2015).

73ACMG Board of Directors. Genetics in Medicine 17: 68–69 (2015).

74Wright CF, Parker M, & Lucassen AM. Genetics in Medicine; 21 97-101 (2019).

75Sands TT & Choi H. Curr Neurol Neurosci Rep; 17: 45 (2017).

76Epilepsy Genetics Initiative. Epilepsia; doi: 10.1111/epi.14698 (2019).

77Poduri A. Epilepsy Currents; 17: 16–22 (2017).

Advertising Disclaimer
            print           email           share