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Critical Congenital Heart Defect (CCHD) Technical Advisory Panel

Background
In September 2011, the Secretary of Health and Human Services (HHS) recommended that screening for Critical Congenital Heart Defect (CCHD) be added to the Recommended Uniform Screening Panel (RUSP) for newborns. Subsequently the American Academy of Pediatrics published a policy statement endorsing Health and Human Services Recommendation for Pulse Oximetry Screening for Critical Congenital Heart Disease (Pediatrics, January, 2012).

Project Goal: Newborn Screening for CCHD
While state adoption has begun and there is now more literature to document better practices regarding implementation, support is needed to address key clinical issues for primary care pediatricians. The goal of this project was to develop and execute an online resource that provides support to pediatricians implementing CCHD screening. The resource will include background information, peer-reviewed answers to frequently asked questions (FAQ) and a forum through which clinicians can ask questions.  Through the Program to Enhance the Health and Development of Infants and Children, a cooperative agreement with the Center for Disease Control and Prevention (CDC), the AAP has been working with a technical advisory panel comprised of experts representing various AAP entities with a broad range of CCHD expertise. The expert panel has developed guidance for pediatricians in a usable question and answer format that includes the key points and resources for primary care pediatricians.

Roster: Technical Advisory Panel

Alex R Kemper, MD, MPH, MS FAAP (Chairperson)
Durham, NC

Lorraine Freed Garg, MD, FAAP
Trenton, NJ

John Smith Hokanson, MD FAAP
Madison, WI

Bradley Scott Marino, MD FAAP
Cincinnati, OH

Balaji Govindaswami, MD, MPH, FAAP
San Jose, CA

Matthew Oster, MD, MPH, FAAP
Atlanta, GA

Staff
Michelle Esquivel, MPH
Rachel Daskalov, MHA
Jennifer Armstrong, Project Consultant
American Academy of Pediatrics
Division of Children with Special Needs

Federal Advisor
Richard Olney, MD, MPH
Team Leader/Pediatric Genetics/DBDDD
National Center on Birth Defects & Developmental Disabilities
Centers for Disease Control and Prevention
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