Hearing loss is the most common congenital condition in the United States (US). Each year, an estimated three in 1,000 infants are born in the US with moderate, severe, or profound hearing loss resulting in delayed development in language, learning, and speech.
Children who are deaf or hard of hearing face a potential developmental emergency and should be identified as quickly as possible so that appropriate intervention services can be started.
American Academy of Pediatrics (AAP) Early Hearing Detection and Intervention (EHDI) Goals
Ensure every child with hearing loss is diagnosed and receives appropriate, timely intervention.
- Enhance pediatricians’, other physicians’, and non-physician clinicians’ knowledge about the EHDI 1-3-6 guidelines—screening by 1 month of age, diagnosis of hearing loss by 3 months of age, and entry into early intervention (EI) services by 6 months of age.
- Ensure newborn hearing screening results are communicated to all parents and reported in a timely fashion according to state laws, regulations, and guidelines.
- Incorporate EHDI into an integrated, medical home approach to child health.
- Between the years of 2005-2012 over 34,000 infants were identified with hearing loss.
- 1 to 3 of every 1,000 newborns have confirmed hearing loss.
- There has been an increase in the percentage of infants who receive newborn hearing screening. In 1999, 46.5% of infants were screened and in 2011, over 97% of infants received newborn hearing screening.
- Only 86.0% of infants received hearing re-screening before 1 month of age.
- Only 69.1% of infants who do not pass a hearing screening test are diagnosed with hearing loss before 3 months of age.
- Of those diagnosed, only 67.1% receive intervention before 6 months of age.
- Almost 36 percent of infants who do not pass a newborn hearing screening are considered Lost to Follow-up/Documentation.
AAP EHDI Regional Network Liaison and Chapter Champions
Information, Resources, and Tools for Primary Care Clinicians
Partners and Organizations with Hearing Loss Information/Resources
- Maternal and Child Health Bureau (MCHB)
Part of the Health Resources and Services Administration (HRSA), for over 75 years, the Federal Title V Maternal and Child Health program has provided a foundation for ensuring the health of the Nation’s mothers, women, children and youth, including children and youth with special health care needs, and their families.
- Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD)
Provides research, basic information and statistics regarding hearing loss, screening and diagnosis, as well as current articles and educational materials for clinicians and families.
- National Center for Hearing Assessment and Management (NCHAM)
Serves as the national resource center for the implementation and improvement of comprehensive and effective Early Hearing Detection and Intervention (EHDI) systems.
- Joint Committee on Infant Hearing
Works to address issues that are important to the early identification, intervention, and follow-up care of infants and young children with hearing loss.
- Hands & Voices
Provides parent-to-parent support for families of children of hearing loss, particularly providing unbiased information and promoting interventions that best suit the child and family needs.
A resource for parents of children with hearing loss and for primary care providers; provides education resources, fact sheets, and other materials on hearing loss screening and intervention.
- National Institute on Deafness and Other Communication Disorders (NIDCD)
Part of the National Institutes of Health (NIH), conducts and supports research in the normal and disordered processes of hearing, balance, smell, voice, speech, and language.