The Congenital Heart Public Health Consortium (CHPHC) was formed in 2009 and represents various organizations across federal, state and local communities. Organizational members of the Consortium represent the voice of providers, patents, families, clinicians and researchers. The Consortium was formed in an effort to utilize public health principles to affect change for those whose lives are impacted by Congenital Heart Disorders (CHD).
Since the inception of the Consortium several educational and awareness resources have been made available including the CHPHC web site, CHD fact sheets and multiple educational webinars. In addition, the consortium has provided the opportunity for open dialogue between member organizations—improving synergy and unifying public health messaging.
Congenital Heart Disease remains a prevalent issue affecting many individuals and families. CHD is considered to be the most common birth defect and is a leading cause of birth-defect related deaths worldwide. CHD affects approximately 1.8 million families in the United States. CHD affects approximately forty-thousand babies each year in the United States. By working together and leveraging the knowledge and expertise of the many CHD stakeholders, the Consortium is able to make progress to mitigating these staggering statistics.
The mission of the Congenital Heart Public Health Consortium is to prevent congenital heart defects and improve outcomes for affected children and adults.
The Consortium achieves its mission by:
- Providing leadership and a unified voice for public health priorities
- Expanding opportunities for surveillance and public health research
- Informing public policy priorities that benefit public health and affected persons
Goals and Objectives
The bi-annual operating plan takes into consideration realistic expectations of the CHPHC member organizations, staff capacity and budget. The intent of the plan is to provide an overview of the process as well as a clear plan for assuring the mission is upheld and that progress is made towards achieving a unified voice for congenital heart defects.
- Goal 1. Infrastructure
Create and maintain the optimal infrastructure to support the mission of the Consortium.
- Maintain consortium governance documents that guides and structures the operations of the consortium in support of the mission.
- Assure ongoing leadership development for volunteers in leadership positions for the CHPHC.
- Identify appropriate resources (staff, volunteer, in-kind and financial) to achieve the strategic plan of the CHPHC.
- Create a membership policy that can include the scope of CHD stakeholder organizations and members that promotes accountability and sets expectations for participation.
- Goal 2: Membership Engagement and Recruitment
Strengthen membership engagement to increase the effectiveness of the Consortium.
- Increase communication and awareness among the member organizations about CHPHC activities.
- Increase communication and awareness among the individuals participating in the CHPHC.
- Implement membership structure that provides appropriate representation of the organizational stakeholders in the field of CHD.
- Goal 3: Programs and Services
Establish and support core program services and products that help the Consortium carry out its mission.
- Provide leadership and a unified voice to increase knowledge and awareness among public health stakeholders for up to three priority areas in congenital heart defects.
- Develop and implement a collaborative public policy agenda to benefit public health and persons affected by congenital heart defects.
Develop and implement a comprehensive communication plan that supports the priorities of the Consortium and furthers awareness of CHD.