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​Screening and Early Identification Articles

Lifelon​​g Care Articles

Webinars 

Adult Congenital Heart Association (ACHA) Webinars
The ACHA conducts Webinars for patients and professionals on a monthly basis. The current schedule is available on the ACHA Web site.

Newborn Screening​ Recommendations for Critical Congenital Heart Disease (CCHD)​: Implications for State Programs
webinar presented by AMCHP

Early Identification of Congenital Heart Defects: Information for Primary Care Providers webinar presented by the Congenital Heart Public Health Consortium (CHPHC)​​​

Screens to Te​​ens

​The American Academy of Pediatrics Webinar series, Congenital Heart Defect Advances: From Screens to Teens and Beyond, is a three-part series that covers advances in both the science and care management of young patients with a congenital heart defect and tackles questions about newborn screening, care transition for older youth, and the nuances of neurodevelopmental outcomes.

Webinar 1: Cong​​enital Hea​rt Defect Advances: Screening and Early Identification of CHD

This webinar will provide information regarding newborn screening for CHDs, recognizing early signs and symptoms of CHDs within your practice, identifying appropriate pediatric cardiology/tertiary care center channels to refer children with suspected CHDs and linking patients/families with resources and support. This live session was held on Tuesday, September 24, 2013 2pm ET. Session participants are encouraged to complete the evaluation survey.

Recorded Webinar: Screening and Early Identification of CHD

Webinar 2: ​​Congenital Heart Defec​​t Advances: Lifelong Care for Patients with CHD

This Webinar will summarize the understanding of and need for coordination of lifelong care and medical needs for individuals with congenital heart defects. Based on recent surveillance data revealing that children are expected to survive well into their adult years, participants will explore the roles of the primary care provider in concert with the specialty cardiology provider to implement clinical guidelines and best practices related to the concepts of lifelong care and transition. Practical resources will be shared to facilitate working with patients and families regarding the continuum of care in the medical home and transition to self-care and adult oriented systems as appropriate. This live session was held on Tuesday, October 22, 2013 2pm ET. Session participants are encouraged to complete the evaluation survey. This activity was designated for 1.00 AMA PRA Category 1 Credit(s)™.

Recorded Webinar: Lifelong Care for Patients with CHD

Webinar 3: ​​Congenital Heart Defect Adv​​ances: Evaluating and Managing Neurodevelopmental Outcomes in Children with CHD

In 2012 the American Heart Association published a scientific statement in the journal Circulation stating that children born with congenital heart defects have an increased risk for developmental disorders including impaired fine motor skills, learning difficulties and attention deficit hyperactivity disorder. This Webinar will review the author's recommendations for periodic developmental surveillance, screening, evaluation, and reevaluation throughout childhood in order to enhance identification of significant deficits. Faculty will present practices that can be implemented in the medical home to facilitate appropriate referrals to therapies and education to enhance later academic, behavioral, psychosocial, and adaptive functioning. This live session was held on Tuesday, November 19, 2013 2pm ET. Session participants are encouraged to complete the evaluation survey. This activity was designated for 1.00 AMA PRA Category 1 Credit(s)™.
Recorded Webinar: Evaluating and Managing Neurodevelopmental Outcomes in Children with CHD​

Designed to enhance coordination between cardiologists, pediatricians and other primary care providers, the Advances Webinar series will offer the top thought leaders in both cardiology and pediatrics together on one stage. If you work with providers whose practice includes identification, care or follow up of any child with a congenital heart defect then please forward this message as they will want to consider attending. ​

CHPHC We​bi​n​ar Series

​The Congenital Heart Public Health Consortium (CHPHC) Webinar Series is based on the CHPHC strategic plan to improve the Consortium's focus and direction, to ensure the CHPHC's financial and ideological sustainability, and demonstrate the CHPHC's relevance and value to member organizations. It serves to empower members to communicate on behalf of the CHPHC, share progress to date, and implications for the future. Each Webinar is approximately one-hour in length, including the question and answer period, and is facilitated by a member of the executive committee of the steering committee and a program committee subgroup chairperson.

Webinar 1: CHPHC O​​verview an​​d Public Health Priorities

The first Webinar in the series provides an overview of the mission for the consortium as well as outline the plan for assuring that progress is made towards achieving a unified voice for congenital heart defects. Dr Geoff Rosenthal, CHPHC Chairperson, and Jodi Lemacks, Communications Committee Chairperson, lead an engaging presentation covering the formation of the CHPHC, its ouputs and educational products, its place and influence in the public health sphere, and future directions for impacting awareness of and improvements in the field of CHD care.
Recorded Webinar: CHPHC Overview and Public Health Priorities 

Webinar 2: Datab​​a​​ses for Congenital Heart Defect, Public Health Science, Overview and Applications

This Webinar provides an overview of the Congenital Heart Public Health Consortium (CHPCH) focus area on databases. Drs Tiffany Colarusso, Dataset Workgroup Chairperson, and Kathy Jenkins, CHPHC Chairperson-Elect, present the key aspects of databases for public health, detail the different categories of databases, and discuss gaps and opportunities for using databases to improve public health science. 
Recorded Webinar: Databases for Congenital Heart Defect, Public Health Science, Overview and Applications

Webinar 3: Lifelong Car​e for​​ Congenital Heart Defects: The Continuing Journey Into and Through Adulthood

The third Webinar in the series, Lifelong Care for CHD: The Continuing Journey Into and Through Adulthood, covers lifelong care for people with a congenital heart defect. Drs Michelle Gurvitz and Susan Fernandes examine why lifelong care is an important healthcare issue, how large the issue has become, and how all members of the medical team can work to improve care throughout the lifespan. Using recent statistics, Drs Gurvitz and Fernandes show that an alarming number of patients are lost-to-follow-up for CHD care and present practical ways to address these gaps in care continuity. Dr Gurvitz closes the presentation with an update on the work of the CHPHC Lifelong Care Workgroup of the Program Committee.
Recorded Webinar: Lifelong Care for CHD The Continuing JourneyInto and Through Adulthood

Webinar 4: Public Hea​​lth Framew​ork for Congenital Heart Defects

The Public Health Framework Webinar introduces a framework for addressing the public health systems that monitor CHDs throughout the lifespan. Drs Kathy Jenkins and Peggy Honein provide an overview of Public Health in the United States and specifically address the Framework for CHDs and the components related to assessment, policy development and assurance. Discussion includes the issues of prevention, quality care, disparities, and assurances that are in place or need to be developed further to reduce risk and improve outcomes for children and adults living with a CHD. 
Recorded WebinarPublic Health Framework for Congenital Heart Defects ​

Webinar 5: Neurode​​​velopmental and Psychosocial Issues in Children with Congenital Heart Defects: Expected Not Accepted

Children with Congenital Heart Defects (CHDs) are living longer, have increased risk of neurodevelopmental and psychosocial issues, and are more likely to receive special education services. Early deficit identification through screening can help children achieve optimal outcomes. Faculty on this November 2015 webinar summarized current evidence related to children with CHDs and developmental issues, reviewed guidelines for periodic screening and evaluation, and presented strategies to enhance outcomes.
Recorded WebinarNeurodevelopmental and Psyhosocial Issues in Children with Congenital Heart Defects: Expected Not Accepted. 
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