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Consortium Structure



The Congenital Heart Consortium is governed by a Steering Committee that is comprised of one or two members from each of the representative orga​nizations.

There are two Co-Chairpersons of the CHPHC who preside at meetings of the Steering Committee and general meetings.

The six standing com​mittees of the CHPHC are each led by a Committee Chairperson. The committees' chairpersons serve as non-voting liaisons on the Steering Committee. Special and Ad Hoc committees are appointed by the Co-Chairpersons as necessary.

​CHPHC Organizations

Members of the Congenital Heart Public health Consortium represent various individuals and organizations across federal, state and local communities. Members represent the voice of providers, patents, families, clinicians and researchers. Many members represent one or more of the following member organizations:

335 Heart Foundation
Adult Congenital Heart Association
Alliance for Adult Research in Congenital Cardiology
American Academy of Pediatrics
American College of Cardiology
American Heart Association
Children's Heart Foundation
Children's Heart Link
Congenital Heart Surgeons' Society
International Clearinghouse for Birth Defects Surveillance and Research
Kids with Heart (National Association for Children's Heart Disorders)
March of Dimes
Mended Hearts
Mended Little Hearts
National Birth Defects Prevention Network
Newborn Coalition
Newborn Screening Technical Assistance and Evaluation Program (NewSTEPS)
Pediatric Congenital Heart Association
Pediatric Stroke Network
Society of Thoracic Surgeons
The Federal Group, Inc.
Tiny Little Hearts
World Heart Foundation

Federal Advisors

AHRQ, Alliance for Healthcare Research and Quality
CDC, National Center on Birth Defects and Developmental Disabilities
HRSA, Health Resources and Services Administration
NIH, National Heart Lung and Blood Institute


*Bold indicates organizations that serve on the steering committee​

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