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History

 

​​​​​The Congenital Heart Public Health Consortium (CHPHC) was formed in 2009 and represents various organizations across federal, state and local communities. Organizational members of the Consortium include the voices of providers, patents, families, clinicians and researchers. The Consortium was formed in an effort to utilize public health principles to affect change for those whose lives are impacted by Congenital Heart Disease (CHD).

Since the inception of the Consortium several educational and awareness resources have been made available including the CHPHC web site, CHD fact sheets and multiple educational webinars. In addition, the consortium has provided the opportunity for open dialogue between member organizations—improving cooperation and unified public health messaging.

Congenital Heart Disease remains a prevalent issue affecting many individuals and families. CHD is considered the most common birth defect and is the leading cause of birth-defect related deaths worldwide. CHD affects approximately 1.8 million families in the United States which is approximately forty-thousand babies each year in the United States. By working together and sharing knowledge and expertise of the many CHD stakeholders, the goal of the Consortium is to decrease these staggering statistics.

CHPHC Mission

The mission of the Congenital Heart Public Health Consortium is to prevent congenital heart defects and improve outcomes for affected children and adults. The Consortium achieves its mission by:

  • Providing leadership and a unified voice for public health priorities
  • Expanding opportunities for surveillance and public health research
  • Informing public policy priorities that benefit public health and affected persons

Focus Areas

By prioritizing the work of the CHPHC, the consortium is working on the public health strategies identified through its mission to can influence critical and needed changes at the national level.

Database - the Database focus area serves to raise awareness of the research and public health surveillance opportunities available by leveraging the information available through data managed through multiple public and private entities.

Life Long Care - the lifelong care focus area serves to develop educational and practical resources to ensure that children, adolescents and adults maintain continuous congenital cardiology care throughout the lifespan. Long term outcomes include decreased morbidity and mortality and enhanced quality of life.

Public Health Framework - the Public Health Framework focus area serves to develop and communicate a comprehensive conceptual framework for an ideal public health system of prevention and care for people with congenital heart defects in the Unites States of America.

Strategic Plan

The strategic plan (in PDF Format) for the CHPHC was devel​oped as a tool to improve the Consortium's focus and direction, to ensure the CHPHC's financial and ideological sustainability and demonstrate the CHPHC's relevance and value to member organizations. The intent of this document is to provide a clear plan for assuring the mission is upheld and that progress is made towards achieving a unified voice for congenital heart defects. Key considerations for the strategic planning process include:

  • Programmatic relevance across the lifespan of children and adults with CHD
  • Opportunities to leverage the a collaborative approach and provide a unifying voice
  • Collaborative partnerships that strengthen the work of individual member organizations as aligned with the CHPHC mission
  • Infrastructure to achieve measurable outcomes and impact​​​
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