Title Maine Adolescent Council on Transition
AAP Grant ID 2005
Project Year 2012
City & State Portland, ME
Program Name CATCH Resident
Topic CSHCN/Disabilities
Program Description
The Maine Adolescent Council on Transition (Maine ACT) will be a community of leaders working to effectively manage and positively cope with chronic illness. The community includes early adolescents with chronic illness and their families (“teens” and “families”); college-age young adults with chronic illness (“mentors”); and Pediatric, Med-Peds, Family Medicine, and Psychiatry resident physicians at Maine Medical Center (“residents”). “Transition” refers to the process of movement from pediatric to adult-oriented medical care.

Modeled after successful programs at Dartmouth, Brown, and Duke, Maine ACT will consist of mentors and residents facilitating monthly meetings with teens and families, using leadership development as an underlying principal and goal. Topics will include, but are not limited to: talking to health care providers, dealing with feeling different among peers, and barriers to treatment adherence. A parallel parent/family group will meet separately to discuss similar themes from a family perspective, facilitated by a team of a young adult with chronic illness, a resident, and a social worker.

1. Establish leadership team of youth, residents, faculty, staff, and families that will meet regularly to guide project development
2. Assess need for psychosocial support, barriers to transition, and methods for referral to program through focus groups with major stakeholders (residents, sub-specialists, youth, parents, and young adult mentors)
3. Establish funding source for future program needs through grants, departmental funding, and donations from local businesses
AAP District District I
Institutional Name Maine Medical Center, 22 Bramhall St, Portland ME 04103
Contact 1 Jack Rusley
Contact 2
ID 126