Title Autism: Engaging Families and Coordinating Services
AAP Grant ID 1869
Project Year 2011
City & State New York, NY
Program Name CATCH Planning
Topic Autism Spectrum Disorders
Program Description
The American Academy of Pediatrics recommends that systematic screening for autism spectrum disorders (ASDs) take place within pediatric primary care, with ongoing comprehensive care and coordination of services through the medical home. Children from low socioeconomic status (SES), immigrant families pose specific challenges to meeting this goal. Barriers to successful engagement and coordination of care within the medical home for these families likely include family, provider and community factors. The overarching goal of this project is to identify barriers to as well as factors likely to facilitate engagement and coordination of care.

We propose to assess families and providers in the context of systematic screening for ASDs using the MCHAT presently taking place within the medical home in a community-based primary care pediatric clinic, and through meetings with community care agencies and primary care partners in the community. We will obtain qualitative and quantitative data related to family attitudes, beliefs and perceptions, as well as barriers to utilization of available services and medical home care. Information will be used to develop strategies to optimize provision of services in the medical home and improve clinical outcomes for these high risk children.

1. Assess current practices and barriers related to engaging families of children identified with possible autism in the medical home
2. Identify how family characteristics and barriers impact utilization of care within the medical home for children with ASDs
3. Work with primary care partners and community agencies to identify optimal strategies for coordinating services for children with ASDs through the medical home
AAP District District II
Institutional Name NYU/Bellevue Hospital, 462 First Ave, New York, NY 10016
Contact 1 Caroline Martinez
Contact 2 Karen Hopkins
ID 20