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Child Health Measurement Project Measuring Child Health Conference

The American Academy of Pediatrics' Department of Practice and Research and the Center for Heath Services Research convened a group of approximately 50 distinguished scholars and leaders on March 24 - 25, 2003 to consider carefully the state-of-the-art in health status assessment in children. During the 1½ -day conference, "Measuring Child Health: Critical Challenges in Developing and Applying Health Status and Outcome Measures," participants discussed what current methodological concerns need to be addressed to further the development of children's measures and how measures are currently being used, how they might be used, and needs that remain, particularly regarding barriers to application. The focus was on the range of measures sometimes referred to as "patient reported outcomes": heath status, functional outcome, and health-related quality of life.

To disseminate the work and ideas of this group to others not in attendance, a special journal supplement to Ambulatory Pediatrics was published (Volume 4, No. 4, July-August 2004). This supplement is the academic product of the conference and includes the following invited articles that articulate key issues in pediatric health status and outcome measurement:

Measuring Child Health: Scientific Questions, Challenges, and Recommendations

Validating Measures of Pediatric Health Status, Functional Status, and Health-Related Quality of Life: Key Methodological Challenges and Strategies

Measurement of Children's Health

Evidence that School-Age Children Can Self-Report on Their Health

Measuring Health Status and Quality of Life for US Children: Relationship to Race, Ethnicity, and Income Status

Toward Youth Self-Report of Health and Quality of Life in Population Monitoring

Use of Quality of Life Measures in Clinical Trials

Conference Planning Committee: Charles Irwin, MD, FAAP, Chair; Dennis Drotar, PhD; Lynn M. Olson, PhD; Barbara Starfield, MD, MPH, FAAP; Ruth E.K. Stein, MD, FAAP; Linda Radecki, MS; Mary Pat Frintner, MSPH

The conference and journal supplement were funded by the Agency for Healthcare Research and Quality, the Genentech Foundation for Growth and Development, and the AAP Friends of Children Fund

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