This page provides tools and resources developed by the National Resource Center for Patient/Family-Centered Medical Home to support pediatricians, allied health professionals, and families in increasing equity for children and youth with special health care needs and their families through medical home.
Health Equity Definition and Logic Model
- Health Equity Definition
In partnership with the Health Equity Subcommittee, the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) developed a customized definition of health equity, using Paula Braverman's definition from the 2017 Robert Wood Foundation "What is Health Equity? And What Difference Does a Definition Make?" report as its foundation.
In collaboration with the health equity logic model, this definition guides the efforts for the NRC-PFCMH in improving equity for children and youth with special health care needs and their families through medical home.
- Health Equity Logic Model
The National Resource Center for Patient/Family-Centered Medical Home developed a health equity logic model, outlining key activities, stakeholders and anticipated outcomes to support the increase of African American and Black children and youth with special health care needs and their families receiving care through a family-centered, equitable, and culturally competent medical home.
Virtual Roundtable Discussion
- Virtual Roundtable Discussion
- In July 2021, the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) hosted a virtual roundtable discussion focused on identifying recommendations for pediatricians to build stronger relationships with African American and Black families of children and youth with special health care needs (CYSHCN) within the medical home model of care. Participants of the roundtable included African American and Black families and caregivers of CYSHCN, members from the NRC-PFCMH Health Equity Subcommittee (Title V representatives, pediatricians, families of CYSHCN) and other key NRC-PFCMH stakeholders. Major themes from the roundtable discussion include:
- Building strong relationships between families of CYSHCN and pediatricians
- Allyship and cultural competency within family-centered care
- Addressing equity for African American and Black CYSHCN and their families through medical home
- Learnings from the virtual roundtable will provide important guidance on NRC-PFCMH equity activities for the coming years. Two resources have been developed from the virtual roundtable to highlight the critical need to ensure African American and Black CYSHCN and their families receive family-centered and culturally effective care through the medical home model.
- The roundtable executive summary captures the practical strategies and recommendations the NRC-PFCMH can implement to support building stronger relationships between pediatricians and African American and Black families of CYSHCN served in their clinic or practice.
- Graphic illustrators provide a visual representation of the discussion by capturing key themes and topics that reinforce the importance of equitable collaborations, care coordination, and culturally effective care for building stronger partnerships between pediatricians and African American and Black families of CYSHCN.
- Special thanks to our family partners:
David K. Armstrong, Parent Partner/Leader
Talethia O. Edwards, Grassroots Organizer, Coalition Builder and Advocate
Maria Miller, MHA, Disabilities Advocate
Nicole Washington, Certified Five Elements Healing Life Coach, NAMI Basics Teacher
Yvette Woods, M.Ed
Dana Yarbrough, Director, Center for Family Involvement at Virginia Commonwealth University
Health Equity Resources
- Health Equity Literature Review Table
Developed by the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), the health equity literature review table outlines recent publications pertaining to children and youth with special health care needs (CYSHCN) and children with disabilities (CWD) through the lens of equity and medical home. The table provides a snapshot of peer-reviewed research and other articles, highlighting the critical need for CYSHCN, CWD and their families who experience barriers and with less resources to receive care through the family-centered medical home model.
- Medical Home and Equity for Children and Youth with Special Health Care Needs (CYSHCN) in Title V/CYSHCN Programs: An Overview
Developed by the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), this overview summarizes strategies and initiatives that state Maternal and Child Health (MCH) programs have documented within their 2021 Application/2019 Annual Report and 2020 Needs Assessment. The information captured in this resource highlights overarching health equity efforts of the 39 states that selected National Performance Measure (NPM) 11 (medical home) as it relates to children and youth with special health care needs (CYSHCN) and their families. Additionally, data from the 2018-2019 National Survey for Children's Health (NSCH) are highlighted.
- Addressing Equity for Black CYSHCN
Available: 8/04/2022 - 8/03/2025
The National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) is offering a FREE PediaLink course that examines factors impacting equitable health care for Black children and youth with special health care needs (CYSHCN). This 2-hour course covers the following topics:
- Historical Trauma of Racism and Ableism in Pediatric Medicine
- Increasing Equitable Care for Black CYSHCN Through Medical Home
- Intentionally Engage Black Fathers in their Children’s Care
- Systems of Care for Black CYSHCN
This activity has been approved for AMA PRA Category 1 Credit™.
American Academy of Pediatrics