Find information on a number of national programs, initiatives, and organizations that impact pediatric medical home policy, research, and practice.
National Indicators of Medical Home Access and Utilization
The National Center of Health Statistics at the Centers for Disease Control, under the direction and sponsorship of the federal Maternal and Child Health Bureau, conducted two surveys to assess child health status across the country. The National Survey of Children's Health and the National Survey of Children with Special Health Care Needs provide state and national data on the number of children and youth who receive coordinated, ongoing, comprehensive care within a medical home.
The surveys indicate the following:
- Fifty percent (50%) of all United States children receive care within a medical home (2015/2016)
- Forty-nine percent (49%) of all US children and youth with special health care needs receive care within a medical home (2015/2016)
- Of these, 36.3% of the Hispanic population, and 38.9% of the Black, non-Hispanic population of US children and youth with special health care needs receive care within a medical home.
For more information on the National Survey of Children's Health, the National Survey of Children with Special Health Care Needs, and other national measurement initiatives, view the following:
- Child and Adolescent Health Measurement Initiative: Also known as the Data Resource Center for Child and Adolescent Health (DRC), this center uses public data from the National Survey of Children's Health and the National Survey of Children with Special Health Care Needs to present information on the status of children's health throughout the United States.
- Medical Home Data Portal: Created in partnership with the National Center for Medical Home Implementation, the Medical Home Data Portal provides state-by-state information related to the number of children and youth—including those with special health care needs—who have access to a medical home in the United States.
Medical Home Recognition and Certification Programs
Several national organizations have developed programs that recognize and/or accredit health care organizations (hospitals, health centers, private practices) as medical homes, according to a specified set of standards*. The following is a list of these organizations:
- National Committee for Quality Assurance Patient-Centered Medical Home Recognition
- National Committee for Quality Assurance Patient-Centered Specialty Practice Recognition Program
- Accreditation Association for Ambulatory Health Care Medical Home On-Site Certification
- URAC Patient-Centered Medical Home Programs
- The Joint Commission Primary Care Medical Home Certification
*The National Resource Center for Patient/Family-Centered Medical Home does not endorse or support any one medical home recognition and/or accreditation program. A practice's selection of which program to consider should be based on what best meets the needs of the practice.
Maternal and Child Health Bureau Funded Medical Home Initiatives
The National Resource Center for Patient/Family-Centered Medical Home (National Resource Center) is a cooperative agreement between the American Academy of Pediatrics and the federal Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration.
The National Resource Center works in partnership with multiple MCHB-funded initiatives including those listed below to collectively increase implementation and sustainability of the pediatric medical home.
- AAP to Create a Network of Pediatric Clinicians to Care for Children withCongenital Zika Infection
Supported by the US Department of Health and Human Services, the American Academy of Pediatrics (AAP) is creating a network of trained pediatric clinicians to care for children with congenital Zika infection based on Centers for Disease Control guidelines. The initiative will use the Project ECHO (Extension for Community Healthcare Outcomes) to telementor clinicians in evaluating children, supporting families, and coordinating care with numerous specialists in the context of the pediatric medical home. For additional information, visit the AAP Children and Disasters Collaborative Initiatives Web Page.
- Title V Maternal and Child Health Services Block Grant Program
2016 State Title V Profiles
The Title V Maternal and Child Health Program is a federal-state partnership that ensures the health of mothers, women, children, and youth, particularly children and youth with special health care needs, throughout the United States.
- Resources for State Title V Programs to Achieve National Performance Measure 11 (Medical Home)
A compilation of medical home implementation resources for Title V programs, created by the National Center for Medical Home Implementation.
- Association of Maternal and Child Health Programs
The Association of Maternal and Child Health Programs (AMCHP) is a national resource, partner, and advocate for state public health leaders and others working to improve health of women, children, youth, and families. Members include Title V Maternal and Child Health Directors.
- Early Hearing, Detection, and Intervention Program
Administered by the American Academy of Pediatrics, the Early Hearing Detection and Intervention (EHDI) program enhances pediatric clinician knowledge of screening, diagnosis, and appropriate services for children who are deaf or hard of hearing, within the context of the pediatric medical home.
- Healthy Tomorrows Partnership for Children Program
The Healthy Tomorrows Partnership for Children Program (HTPCP) is a competitive grant program that awards innovative, community-based projects to improve access to health care and promote preventive health services. In 2013, HTPCP formed an official partnership with the National Center to provide technical assistance to grantees and promote innovative HTPCP projects nationwide.
- National Center for Family/Professional Partnerships
The National Center for Family/Professional Partnerships promotes families as partners in health care decision making for children and youth with special health care needs.
- The Catalyst Center
The Catalyst Center focuses on improving health care coverage and financing for children and youth with special health care needs, particularly in the context of medical home.
- Leadership Education in Neurodevelopmental and Related Disabilities Programs
Also known as LEND, these programs provide long-term, graduate-level interdisciplinary training to improve the health of infants, children, and adolescents with disabilities. A collection of medical home competencies for these programs was created in partnership with the National Center for Medical Home Implementation.
- National Coordinating Center for the Genetics and Newborn Screening Regional Services Collaborative
This national center focuses on the provision of quality genetics and newborn screening services to communities and health care clinicians. This center focuses on coordinating care between pediatric medical homes and pediatric clinicians caring for children with genetic conditions.
Medical Home Initiatives of National Significance
Across the United States, multiple organizations are working on projects and initiatives that enhance the adoption of the medical home model of care. The following is a list of those projects and initiatives specifically focused on the pediatric medical home:
- Agency for Healthcare Research and Quality: Pediatric Quality Measures Program Centers of Excellence Grant Awards
A collection of grant funded projects focused on improving child health through the development of quality measures.
- Agency for Healthcare Research and Quality: Centers for Primary Practice-Based Research and Learning
Grant awards to eight practice-based research networks which collaborate to increase quality, patient safety, and effectiveness of primary care.
- Association of Maternal and Child Health Programs: Action Learning Collaborative for States to Implementation National Standards for Systems of Care for CYSHCN
With support from Lucile Packard Foundation for Children's Health, this learning collaborative supports eight states as they implement the Standards for Systems of Care for Children and Youth with Special Health Care Needs. Medical home is a core domain for system standards.
- Children's Health Insurance Program Reauthorization (CHIPRA) Quality Demonstration Grants
Grants within ten states that work to improve the health care quality and delivery systems for children enrolled in Medicaid and the Child Health Insurance Program.
- Consortia to Advance Medical Homes for Medicaid and CHIP Participants
This report presents results from the Commonwealth Fund and the National Academy for State Health Policy technical assistance project titled "Consortia to Advance Medical Homes for Medicaid and CHIP Participants." The project enhanced provision of care within a medical home to populations insured through Medicaid and the Child Health Insurance Program (CHIP).
- Medicaid and CHIP Payment and Access Commission
A non-partisan legislative branch agency that provides policy and data analysis and makes recommendations to the United States Government on issues related to Medicaid and Children's Health Insurance Program (CHIP) beneficiaries. Many efforts of this agency relate to pediatric medical home.
- Patient Centered Outcomes Research Institute
This research institute awards projects working to develop tools and techniques for improving patient-centered care and decision-making. Multiple projects work on pediatric initiatives, including the following:
- Development of Methods for Identifying Child and Parent Health Outcomes—Children's Hospital of Philadelphia (CHOP)
- Group Model Building to Engage Patient & Clinician Wisdom to Design Primary Care—Case Western Reserve University
- Incorporating Parent Preferences in Decision Making About Childhood Vaccines—Harvard Medical School
- Creating a Zone of Openness to Increase Patient-Centered Care—Palo Alto Medical Foundation Research Institute
- Patient-Centered Primary Care Collaborative
A national stakeholder organization focused on improving primary care through increased implementation of the patient-centered medical home.
- Safety Net Medical Home Initiative
A five year initiative that included 65 primary care safety net clinics that underwent patient-centered medical home transformation.
American Academy of Pediatrics