Primary care health professionals and medical home teams must know, or have access to, current knowledge about epilepsy, including seizure recognition and diagnosis, prevention strategies and treatment options, co-morbidities, necessary psychosocial services, and the need to counter stigma. The specific educational needs are significant: making the accurate diagnosis; recognizing when referrals to subspecialists are necessary; understanding medication therapies and side effects; and ensuring care coordination and co-management with the specialists. The Academy offers a variety of resources that address caring for a child with epilepsy:
Seizures and Epilepsy
Referral to Pediatric Surgical Specialists (provides guidance on when to refer to a pediatric neurosurgeon)
Prevention of Drowning (children with epilepsy are at a greater risk of drowning)
Febrile Seizures: Clinical Practice Guideline for the Long-term Management of the Child With Simple Febrile Seizures
Treatment of the Child with a First Unprovoked Seizure (AAP endorsed)
Patient-and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems (Care coordination addresses family-centered care, calls for partnership across systems, and emphasizes quality and cost outcomes. The Pediatric Care Coordination Curriculum is an online resource that helps practices implement the recommendations in this AAP policy statement).
Rescue Medicine for Epilepsy in Education Settings (clinical report)
Mortality Risks in New-Onset Childhood Epilepsy (Pediatrics 2013) OBJECTIVES: Estimate the causes and risk of death, specifically seizure related, in children followed from onset of epilepsy and to contrast the risk of seizure-related death with other common causes of death in the population.