Since 2013, the American Academy of Pediatrics has served as the National Coordinating Center for Epilepsy: Innovations in Access to Care for Children and Youth with Epilepsy (Center). The mission of the Center is to support those working to improve access to coordinated, comprehensive, quality care for CYE, particularly in medically underserved and/or rural areas across the life-course. Therefore, the goals of the Center are to:
Provide national leadership by building partnerships, sharing resources on best practices, and developing policies to improve access to coordinated and comprehensive care for CYE.
Provide infrastructure and technical assistance to the Transforming Health Care for CYE program grantees.
To accomplish these goals, the AAP leverages its expertise, structure, and partnerships with stakeholders to build on existing infrastructure and create a sustainable system of coordinated care for all CYE through individual, provider, and national strategies, monitored through comprehensive evaluation plans. Components of the medical home – accessibility, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective care – are integrated into each of the activities to ensure that the needs of all CYE are met across their life-course.
Debra Waldron, MD, MPH, FAAP
Trisha Calabrese, MPH
Sarah Hueneke, MPH
Alexis Katzenbach, MPH
Amy Shah, MPH
Peter Corcoran, MPH
QI and Evaluation
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U23MC26252, Awareness and Access to Care for Children and Youth with Epilepsy/ cooperative agreement. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.