KIDS (Kids and Families Impacting Disease Through Science) is an advisory group of children, adolescents and families focused on understanding, communicating and improving medicine, research and innovation for children. KIDS is a collaboration between the American Academy of Pediatrics (AAP) Section on Advances in Therapeutics and Technology (SOATT), local AAP Chapters, children's hospitals, local schools and other partners.
- Learn, teach, and advocate for medicine, research, and innovation that improves the health and well-being of children.
- Engage in the process through projects and consultation activities with hospitals, researchers, and other partners in the public and private sectors.
- Provide input on research ideas, innovative solutions, unmet pediatric needs and prioriteis
- Contribute to the design and implementation of clinical studies for children (e.g., assent, monitoring tools, schedules, etc.
- Serve as a critical voice for the children and families in the medical, research, and innovation processes
- Children ages 8 to 18 years* No fee required to join and participate
- Past experience with a clinical trial, or
- Experience using hospital service, or
- Some knowledge of taking medicine, or
- Interest in medicine and/or research, or
- Parents/guardians of such children
*Consideration given to younger Team Members on case-by-case basis
KIDS Connecticut Pilot
- Established for KIDS Team in Connecticut
- Broad collaboration
- AAP Section on Advances in Therapeutics and Technology
- Connecticut Chapter of AAP
- Connecticut Children's Medical Center
- Yale-New Haven Children's Hospital
- Pfizer Inc
- Local schools
- Has served as model for over 20 kids teams
What Do We Do?
- Learn about medicine and research that improves the health and well-being of kids
- Learn about various professions in medicine and research
- Help health care providers and researchers with their projects
- Suggest ways that medicine and research in kids could be done better
- Attend and participate in educational conferences
- Interact with companies and scientists studying things that will help kids
- Help start other KIDS Teams in the US and in other countries, share ideas and work together on projects
- And lots more!
For More Information
Charles Thompson, MD, FAAP
Immediate Past Chair, AAP Section on Advances in Therapeutics and Technology (SOATT)
iCAN (International Children's Advisory Network) is a worldwide consortium of youth advisory groups working together to provide a voice for children and families in health, medicine, research, and innovation through synergy, communication, and collaboration. Currently there are 17 chapters worldwide, including eight in the United States, and each chapter is composed of young people age 8-18 who have active leadership roles within their chapters and within the network as a whole. iCAN is supported fully by the Foundation for Children, which is the 501 (c) 3 nonprofit arm of the Connecticut Chapter of the American Academy of Pediatrics (CT-AAP). The goals of iCAN are to continue to increase its network of youth advisory groups, raise awareness about clinical research in children and their families through education, and provide a platform for children to voice their opinions to government officials, researchers and regulatory agencies. These goals are accomplished by the following objectives, shared by each chapter:
- Connect with similar youth advisory groups around the world
- Share ideas, best practices, challenges and cultures
- Learn from one another and capitalize on expertise
- Collaborate among stakeholders in research, innovation, advocacy, children and families
- Advocate for the health and well-being of children around the world www.icanresearch.org