The congenital heart defects (CHD) information sheets were developed by a workgroup of the Congenital Heart Public Health Consortium (CHPHC). They carefully reviewed published literature and developed these sheets to address frequently asked questions about CHDs. Topics include: prevalence, risk factors and causes, mortality, morbidity, and healthcare access and costs.
CHD Fact Sheet - short version
Download the Congenital Heart Defects Frequently Asked Questions as an Adobe Acrobat (PDF) file.
The short version fact sheet answers 5 basic frequently asked questions about congenital heart defects in an easy-to-share format.
CHD Fact Sheet - long version
Down load the
Congenital Heart Defects Frequently Asked Questions as an Adobe Acrobat (PDF) file.
The long version fact sheet addresses a wider range of questions and includes more detailed information with references. This can serve as a source document for sound bites and statistics regarding CHD.
The facts on the short sheet were based on the detailed information with references from the long sheet.
This one-page educational handout outlines barriers, challenges and actionable activities regarding the use of data for public health outcomes for children, youth and adults living with CHD. In the era of “big data,” numerous data sources are available and could be used to evaluate health outcomes, establish standards of care, and identify opportunities to advance care.
Congenital Heart Disease (CHD) represents a medical challenge that spans the life of a patient from birth through adulthood. With increased survival, the number of adults with CHD grows annually into the millions. Access to and maintaining lifelong care is becoming an increasing problem for this growing population. The access to care factsheet summarizes issue including the challenges to the system when specialty care is not sustained, reasons why young adults and adults fall out of care and lastly, public health opportunities to consider.
Handout regarding longer term outcomes, healthcare utilization and quality of life of for children, youth and adults living with CHD. Although once nearly fatal, both survival and life expectancy of individuals with heart defects have significantly increased with early diagnosis, improved surgical interventions and better medical management. Research is beginning to show that children and adults born with heart defects still face a lifelong risk of health problems, disability and sometimes even early death related to these defects.
State-by-State Surveillance Fact Sheets
All documents are in AdobeAcrobat (PDF) format.