Lifelong Care

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Lifelong Care for Children, Youth and Adults


​Children​, adolescents and adults with congenital heart defects (CHD) require lifelong congenital cardiology care. Due to impoved pediatric medical care and the success of surgical repairs, 90% of infants diagnosed with a CHD are living to adulthood. While the longevity and quality of life for children and adults living with a CHD has improved, these individuals and their families face a lifelong risk of health problems, disability and early death. 

"Stay Strong. Stay in Care" Campaign

"Stay Strong. Stay in Care" is a campaign from the Congenital Heart Public Health Consortium (CHPHC) designed to encourage people with congenital heart defects (CHDs) to stay strong by staying in care. A goal of the campaign is to show that anyone with CHD can accomplish great things, despite their medical condition. However, it's important to stay strong and healthy in order to achieve these goals, and a congenital cardiologist plays a key role in helping individuals with CHDs stay strong and healthy. Learn more about the campaign here.

Care Considerations Across the Lifespan

CHD is a lifelong condition that requires specialized care. Congenital cardiology care is important to address nutritional needs, exercise, intellectual disabilities and many cardiac-specific risk factors. Physicians that specialize in CHD have advanced training in this area and are better able to recognize health issues associated with the CHD. Access these resources for parents, youth and adults.

College as a Student with a Congenital Heart Defect: Top Things to Know

While students living with CHD can be successful at college, there are considerations to keep in mind when at school. Pediatric primary care clinicians and cardiologists play an important role in helping to prepare patients (and their parents) prepare for the college transition. College can be an exciting time with a lot of rewards. With a little help, CHD patients can be sure to make the most of their time at college.

Reproductive Health in Young Women with Congenital Heart Defects

Reproductive health considerations should start even before a young woman is ready to start a family. Adolescents and adults with a congenital heart defect (CHD) should talk with their healthcare provider regarding safe contraception options and the decision to carry a pregnancy. Women with a CHD have unique considerations with regard to prenatal care, genetics and the challenges of parenting.

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