Youth with developmental disabilities and their families often struggle with the transition to adult healthcare. Difficulties finding adult providers who are comfortable and knowledgeable about various disabilities, trouble attaining insurance coverage, and lack of readiness for this transition are some of the issues that have been reported. This project will assess the medical home and transition needs of youth with developmental disabilities, their families as well as pediatric and adult providers in Columbus, Ohio.
We will form a community coalition comprised of youth and families, disability support groups, Ohio's title V program, local disability agencies and adult and pediatric providers, including interested residents and fellows to develop an action plan for coordinated transition to an adult medical home throughout the greater Columbus area. Ways to increase access to SCHIP and other funding avenues will be sought as well.