This family advocacy organization integrates parent partners into primary care practices to enhance family-centered care, care coordination, and cultural competence. Parent partners undergo continuous training and provide peer support to families of children with special health care needs.

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Implementation Insights:

  • Place paid parent partners with experience in caring for children and youth with special health care needs in primary care practices.
  • Reduce workload burden for physicians by delegating non-medical reponsibilities to non-physician team members.
  • Create clear and defined roles and responsibilities (including an official job description) for parent partners.
  • Provide emotional support and increase resilience to caregivers of children with special health care needs.
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American Academy of Pediatrics