CHILD Registry Mission

The purpose of the CHILD Registry is to enable pediatricians and others who care for children to improve child health and well-being through the use of data.

Children make up 23% of medical patients in the country, and many adult diseases have their roots in childhood. A clinical data registry for infants, children, and adolescents has the potential to substantially accelerate advances in child health and improve outcomes for children using quality data on a scale and scope that will have a profound impact on our nation’s future. Yet, no single entity is currently collecting child health and development data on all children in the country. To service this critical need, the American Academy of Pediatrics (AAP) will launch the Child Health Improvement through Longitudinal Data (CHILD) Registry to support its membership of over 67,000 primary care pediatricians, pediatric medical subspecialists, pediatric surgical specialists, and other pediatric health stakeholders.

2022 Registry Plan

For the 2022 calendar year, the Registry will be finalizing the initial build, testing the build with our Pilot participants, evaluating the build, then preparing for full launch.

CHILD Registry: 2022 and Beyond

After launching the initial build of the CHILD Registry, the CHILD Registry team has identified several strategic initiatives and anticipates that the Registry will naturally mature as it grows. To that effect, the AAP envisions the following maturation journey for the CHILD Registry.


To learn more about the CHILD Registry, watch this video presented at an AAP Section of Administration and Practice Management (SOAPM) Fireside Chat.

Last Updated

03/10/2022

Source

American Academy of Pediatrics